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  1. Kalliope

    News from Scandinavia

    There are numerous examples. They come all the time and Lightning Process is even mentioned in a digital reference book for doctors in a section about treatments for ME. The latest approval is from today. There's been a debate in the newspaper Aftenposten lately and today MD Georg Espolin...
  2. Kalliope

    BMC Immunology "Identification and characterisation of transient receptor potential melastatin 2 and CD38 channels of natural killer cells..." Balinas

    I was a bit unsure on which forum to put this thread in, but as NCNED connects this to further research on ME in their presentation of the study on Facebook, I thought it suited best here even though it's not about ME. The study itself though goes way above my head :confused:
  3. Kalliope

    Two new research projects received funds from the Norwegian ME Association May 12th

    The Norwegian ME Association donated on May 12th funds for two research projects. One of the research projects is by Fluge, Mella and their team. They want to try and find more objective ways to measure changes in patients enrolled in clinical trials by continuous measurement of physical...
  4. Kalliope

    BMC Immunology "Identification and characterisation of transient receptor potential melastatin 2 and CD38 channels of natural killer cells..." Balinas

    Identification and characterisation of transient receptor potential melastatin 2 and CD38 channeled on natural killer cells using the novel application of flow cytometry - by Cassandra Balinas, Sonya Marshall-Gradisnik et al
  5. Kalliope

    Psychology Today: A Revolution Is Happening in Psychology. Here's How It's Playing Out

    Oh, excellent. Thanks @MSEsperanza and @Andy I liked this passage from MEsperanza's link (we can add EAT and Paolo Macchiarini to the list of contested research published in the Lancet) The Lancet editor is using his journal’s reputation to defend the controversial study. But, as the study...
  6. Kalliope

    Psychology Today: A Revolution Is Happening in Psychology. Here's How It's Playing Out

    Psychology Today - May 2019 A Revolution Is Happening in Psychology. Here's How It's Playing Out by Matt Huston In the last decade, behavioral scientists concluded that their field had taken a wrong turn. Efforts to root out false findings and bad practices spurred a crisis now poised to...
  7. Kalliope

    The Academic Minute: Leonard Jason, Depaul University - Chronic Fatigue Syndrome

    The Academic Minute: Leonard Jason, Depaul University - Chronic Fatigue Syndrome I believe the label “chronic fatigue syndrome” has contributed to negative attitudes among health care providers towards patients with this disease. When my research team has evaluated different names for this...
  8. Kalliope

    News from Scandinavia

    Actor Svein Tindberg read a moving text about ME on Sunday's MillionsMissing event in Oslo. He has written the text himself and dedicated it to his friend Frøydis. Gave me goose bumps!
  9. Kalliope

    News from Scandinavia

    Jonas Bergquist was in studio yesterday on Swedish television talking about ME research. Not able to give a recap in English now, but perhaps others can?
  10. Kalliope

    A general thread on the PACE trial!

    :( A journal for physiotherapists has picked up this story and writes that the HRA-report concludes PACE was a thorough trial. The final decision from Cochrane on whether or not to retract the Larun review on graded exercise therapy as ME treatment is due now in May. It's bad in itself to give...
  11. Kalliope

    May 2019 - Awareness Week including Millions Missing

    There was a MillionsMissing event today in Stavanger, Norway. It was quite well attended with 100 people present and 2,3 K (and counting) viewers via streaming. The compère for the day was Eirin Sund, leader of the local union. Program: Patient talk from Emma, 10 years, read by Ella, 11 years...
  12. Kalliope

    Forskning.no: Cancer medicine didn't work for ME

    ah, that was badly translated. It says: "Helland, on the other hand, points out that several patients in both groups actually experienced an improvement"
  13. Kalliope

    Multidisciplinary Biopsychosocial Program for Chronic Musculoskeletal Pain at the Dead Sea, 2019, Dramsdahl et al

    I got an email back which said my question got forwarded to the foundation's scientific research committee which reported that it's concerning a pilot study which will be published in connection to an ongoing larger clinical trial.
  14. Kalliope

    Forskning.no: Cancer medicine didn't work for ME

    The Norwegian news site about research, Forskning.no, has written an article about RituxME. They have interviewed Øystein Fluge and team member Karl Johan Tronstad. They have also interviewed the leader of the national competence center for CFS/ME (known for their biopsychosocial approach to...
  15. Kalliope

    News from Scandinavia

    A brilliant letter to the editor in a local Norwegian newspaper. It's written by a nurse and ME-patient. Tønsberg blad: ME. Vi må faktisk snakke mer om det google translation: ME. We actually must talk more about it. Patients are distrusted, children have missed schooling and social...
  16. Kalliope

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    The article is used as a reference in a debate in Norway about patients with gender dysphoria. It's used as an excuse to not listen to another patient group either. The healthcare system has long been terrorized by ME / CFS proponents to conceal that there is effective treatment for the...
  17. Kalliope

    May 2019 - Awareness Week including Millions Missing

    Article about Gemma who is part of the Real ME, aiming "to bring an end to people suffering in silence this ME Awareness Week". CambridgeshireLive: Cambridge woman reveals the truth about living with a debilitating illness "ME remains a hidden disease. There is no known cure and no effective...
  18. Kalliope

    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    Article in InStyle which was unknown to me, but they have over 4 million followers on Facebook, so are reaching many readers. A personal story from an ME patient about the importance of the validation that comes with a diagnosis and the prospect of a biomarker.
  19. Kalliope

    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    New blog post: Trial By Error: My Exchange with the British Journal of Medical Practice As I have reported, I recently sent a letter to the editor of the British Journal of General Practice. To my surprise, when I woke up this morning I had an e-mail from him. Below is that e-mail, followed by...
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