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A lot of people on that Twitter thread thanked Sharpe for providing the link to the crowdfund page and said they were now going to donate. Including one person who said they were going to donate quite a large amount; I looked at the list of the latest donors on the crowdfund page this morning...

Seconding this, the lack of a PayPal option is the only thing keeping me from being able to donate (although I can't afford much - but every little bit helps!), and I see that other folks have the same problem. Being able to use PayPal would likely open up a substantial stream of additional...

Same here, I returned mine in January and it still just says 'Processing' on their website...

That's an interesting observation that really strikes a chord when one remembers Wessely's claims of 'death threats', his declaration that he feels safer in Afghanistan than here amongst all the dangerous militant ME sufferers, his winning of the Standing Up For Science prize for his bravery in...

Signed it and Tweeted it.

It's sort of hard to see the Cochrane review as having independently validated the PACE findings, when on page 31 of the decision by the ICO tribunal on the releasing of the PACE data, Trudie Chalder said that "all three of the PACE principal investigators sat on the [Cochrane] review panel"...

This game was previously discussed here: https://www.s4me.info/threads/robin-a-video-game-where-you-play-a-woman-with-me-cfs.1418/#post-23959 . A nice effort but unfortunately not very accurate and a bit cringeworthy, depicting ME as just being tired.

Excellent report that really lays bare the design flaws and the misleading/biased/contrived claims of 'recovery'. Thank you to all of the authors.

Yes, those pesky toxins! Ugh, it's the 'extreme tiredness' definition again - it always sets off my BS monitor as to whether the author even knows what ME/CFS is and instead is confusing it with chronic fatigue, or narcolepsy, or similar. (And yes, the article was BS in 2003, so why re-release...

I simply can't find strong enough words to express how utterly repulsive I find Vogt's tweet. It's incredible that any human being can say something that crass, especially someone who is paid to be in the profession of helping sick people. And for Michael Sharpe to 'Like' it - just...ugh...

Wow, that's a truly beautiful song, Robert1973. Lovely voice, lovely guitar, and very moving lyrics.

Thanks for the advice! I've now edited the post to make it look more sensible.

Do you mean the trailer video that plays at the top of the page? It's also found on YouTube:

Good idea! :cookie: (But I would like to see it stand online in its current position in a mainstream paper.)

I just read the whole thing and wow, it is very good. An excellent informative and detailed article that says it like it is about both the disease itself and the political machinations involved in the years of denying/trivialising it, with plenty of links to references. My one concern though...

I haven't seen that method before, thanks! I can usually use Videodownloadhelper for all web videos but occasionally there's an odd one that it can't download without having to install a 'companion' app that I don't want to install, and then I use the Keepvid site instead. But Keepvid wants to...

I downloaded a copy. If you have the Firefox web browser, you can add the VideoDownloadHelper add-on and it will let you download YouTube videos. http://www.downloadhelper.net/ (I think it works with Chrome too, but not sure how well, I don't have Chrome)

I like that idea a lot! :):):):D:D:D:thumbup::thumbup::thumbup:

Oh God, what a load of twaddle. Why are these people still being given any credibility? Yeah, like we really need more unevidenced, non-scientific, psych-based research... I wonder how much of our tax money will go to this latest pile of poo?

I received mine today (UK), so that was not bad considering the holidays.