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Esther Crawley. No doubt others too.

gullibo biasebo hellnocebo :sneaky:

Call to arms. Cult must feeling a bit threatened. Wagons need circling ever tighter. Sacred texts need another round of scholarly incantation to reinvigorate the brethren's commitment to the cause.

It remains my view that the vast majority, perhaps even all, of everything we currently 'know' about ME/CFS is just the downstream secondary and typically contingent consequences of the as yet unidentified primary underlying pathology. All of what we are seeing so far is just the normal...

Yep. This shit is now firmly entrenched in all of medicine, and doing massive harm. It is, incidentally, also destroying medicine's credibility on a massive scale. But they are in complete denial of it. More than a little morality play judgement in it too. Mostly just a giant excuse...

Silicon Valley is an insular hotbed of hivemind tech genius-idiots, and a stark example of why technocracy is a bad idea.

Patients being 'overachievers' pre-onset was yet another psycho-behavioural trope about us for a while. Some still believe it. EDIT: Snap!

characterized by motor, sensory, or cognitive difficulties that show internal inconsistency and cannot be explained by structural nervous system damage. Because structural nervous system damage is the only possible physiopathological explanation. There are no other possible physiopathologies...

Two steps forward, one step back. They are slowly coming around, but it is going to be a tortuous, prolonged, and probably only ever partial admission and acceptance on their part.

Deliberately so. They are attempting to claim all medical conditions as their turf under the guise of their 'transdiagnostic' scam. It is nothing more than a massive brazen power grab, with no justification at all, and massive costs to patients and broader society. I curse the day that ME/CFS...

No argument. My point is simply that even when they ostensibly report a result they can't get it better than marginal, and not consistently, even if that result is legit. Legit or not, they have nothing of substance.

Or on the rare occasion when they do show a statistically significant objective result it is marginal and of little real world benefit. e.g. PACE for the 6WMT in the GET arm.

And not just hormones either, I will bet. Homeostasis is certainly a thing, but it is a dynamic equilibrium on at least many measures (e.g. blood pressure). When extended real-time collection of what are currently single point data can be done for days-months can be done then a whole new set...

You are not wrong. People need to understand and accept that BACME and their like-minded colleagues have not changed their view of ME/CFS one iota, and never will. All they have changed is their sales pitch, and only marginally, simply to adapt to the changed political realities around ME/CFS...

"There is no society-wide brain degradation occurring because of ongoing mild Covid infections..." Noted for future reference, including in legal proceedings.

I say that among the small number of golden rules in medicine is: Never lie to the patient. There are a couple of very limited exceptions: if the patient is in a psychotic or dementia state, or is a very small child. Even then the lie should be as minimal as possible. But beyond that just...

Oranges and tennis balls are both spheres, but we don't play tennis with oranges nor eat tennis balls.

Or you could just tell patients the basic idea of PEM and to listen to their body, and over time learn through direct experience how to avoid or minimise exacerbating symptoms. And admit that you got nothing more than that.

Tailored neuromodulation strategies show promise within an integrated multidisciplinary management framework And always will.

With friends like these...