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  1. Cheshire

    Vincent Deary, "CFS and the facts of life - an article for clinicians"

    Argg. Why did you dig that awful piece that I had forgotten? I'm going to shut my mouth because this pompous morron with his condescending pseudo empathetic tone makes me sick. Go solve your own existential problems and leave us alone Vincent...
  2. Cheshire

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    @oldtimer and @Woolie Can't say how much I agree! The more I read about CBT, the more appalled I am by the whole concept. On the theoretical side, I have seen nothing convincing proving that thoughts and behaviors are causing psychiatric problems. On a more ethical side, none of the papers I've...
  3. Cheshire

    IiME letter to Mark Baker (NICE) re: CBT & GET as recommended treatments

    Yes, it's in the patients' survey thread.
  4. Cheshire

    Format of NICE stakeholder meeting?

    Another attendee's point of view
  5. Cheshire

    Unrest - reviews and general articles

    Article in Vogue: This New Documentary on Chronic Fatigue Syndrome is a Must-See—and Not for the Reason You Think by Je Banach
  6. Cheshire

    Format of NICE stakeholder meeting?

    Charles Shepherd's (ME Association) summary: http://www.meassociation.org.uk/2018/01/reviewing-the-nice-guideline-for-me-cfs-the-stakeholders-engagement-workshop-a-report-by-dr-charles-shepherd-17-january-2017/
  7. Cheshire

    Feedback from Stakeholder Engagement Workshop for the NICE guidelines on ME, Jan 2018

    Charles Shepherd's (ME Association) summary: http://www.meassociation.org.uk/2018/01/reviewing-the-nice-guideline-for-me-cfs-the-stakeholders-engagement-workshop-a-report-by-dr-charles-shepherd-17-january-2017/
  8. Cheshire

    Trial By Error: My Six-Month Review

    Very promising things to come! (Links between PACE trialists and insurance companies, he met one person who was on the PACE trial, two people who were in the Royal Free Hospital outbreak...)
  9. Cheshire

    Prognosis of ME/CFS – by David S. Bell, MD

    There are "patients' stories" on Per Fink's functional clinic website. The site doesn't seem to work properly for me, but here's the link in case it's temporary or due to my computer: http://funktionellelidelser.dk/en/patients%26families/patient-stories/ At least one of these stories had struck...
  10. Cheshire

    (Not a recommendation) Alastair Miller: The prognosis of CFS/ME

    Well, it seems that some of his buddies did, but the results are not really sexy, so why using them? Link to the study: https://bmchealthservres.biomedcentral.com/track/pdf/10.1186/s12913-017-2437-3?site=bmchealthservres.biomedcentral.com
  11. Cheshire

    2008: Electronic Support Groups, Patient-Consumers, and Medicalization: The Case of Contested Illness, Barker

    Most of the sociology texts talking about ME I've read so far were blindly accepting the "no biological factor there" paradigm, hence patients are trying to fabricate a disease for psychosocial reasons. They're supposed to uncover the social factors of everything but they do not question at any...
  12. Cheshire

    Cognitive behavioural therapy for MS-related fatigue explained: A longitudinal mediation analysis, 2018, van den Akker et al

    Pathologize normality. Offer your useless therapies that do not work. Then make people feel guilty because they don't get better. Build up a nice career on this pile of shite. :sick::sick::sick:
  13. Cheshire

    Scientist Spotlight: Derya Unutmaz, M.D.

    https://jaxmecfs.com/2018/01/12/january-2018-spotlight-interview-with-derya-unutmaz/ Edit: this interview is on the Jackson laboratory MECFS blog. The interviewer, Courtney Gunter, is their program manager. (They link to S4ME in their resources page!)
  14. Cheshire

    Jen Brea's #UnrestPBS twitter chat (numerous guests)

    Apparently #UnrestPBS is trending!
  15. Cheshire

    Jen Brea's #UnrestPBS twitter chat (numerous guests)

    Happening right now, twitter chat with Jen Brea and Michael VanElzakker
  16. Cheshire

    School sends home sick asthmatic 5y/o, then bans him from Xmas party for ‘poor attendance’

    Why are these people allowed to be working in schools? How could someone sane consider that to be educational in any way?
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