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Wow! All hail @Webdog indeed! There's just paragraph after paragraph of amazing statements from Dr. Olson in that article, such as...

I wonder how many different ways he tried to word this before he gave up.

As others have mentioned, I suspect that outdoor sensory overload might contribute to PEM. If you have vestibular problems, you probably rely on your sight more than most people to provide information on your orientation/balance, but, in "grasping at straws" (i.e. visual cues) in that way, you...

I should add to my comment above, that Dr. Straus' statement that, in his experience, CFS "patients will commonly feel better - no matter what you give them," appears to have been based entirely on his one trial involving acyclovir and a placebo in the late 1980's. The trial only had 27...

I wonder if EMA (Elevator-Monopoly-Adele therapy), or something like it, would be a useful control in some of these studies, particularly in children. The idea being to compare the response to a nonsensical intervention to the proposed intervention. Quite possibly, both would give equivalent...

One of the links provided by @Esther12 above: A systematic review describing the prognosis of chronic fatigue syndrome found that... (It also claims, in 2005, that there is increasing evidence of the effectiveness of CBT/GET.) :banghead: However the full paper, which can seen by clicking on...

My library had it back about 10 years ago, but it was soft cover and it appears that it either wore out or went missing. I forget who, but a speaker at a recent Stanford symposium held up Dr. Bell's book and called it the best book on ME/CFS. It probably is in the sense of it being from the...

I could be wrong, but I seem to recall there being some charts in Dr. Bell's 1995 book "The Doctor's Guide to Chronic Fatigue Syndrome" that related to recovery (improvement) vs. age / sex / length of illness / etc... - or something like that. Perhaps someone with the book handy could tell.

Reminds me of Ron Davis' belief of there being "something" in the blood serum. Some molecule for which I think he had an upper or lower boundary on its size. If it's not present in healthy serum, I wonder if such a thing might be regarded as a sort of "poison"/"toxin" - perhaps some molecule...

I wonder what they consider an "intrusive" procedure. From what I can see, diagnosis might involve an EKG and a sleep study (if you don't take the patients word that they have disrupted/reversed sleep patterns). Likewise, you could pretty much check off "irritable bowel syndrome" based on...

My hands are too large to use handheld floss effectively on anything but my front teeth. However, a while back I ran across this (below) (Listerine "Ultraclean" - formerly called "Reach"). The floss units are disposable. They seem resilient enough to be re-used once or twice if rinsed, but I...

It's also worth noting that Dr. Ramsay listed "emotional lability" (mood swings) as a feature of ME. Emotional lability is also a symptom listed in the Canadian Consensus Criteria. The International Consensus Primer says: I'm somewhat embarrassed to say that this happened to me in my early...

This is the other video from The Jackson Lab that accompanies the article above. Researcher Julia Oh, Ph.D., discusses the microbiome and their research approach.

This reminds me of a documentary on treating cancer I saw in the late 1980's. It may have been the one on interferon that I mentioned in another thread. There was a middle-aged woman in a hospital bed who had been diagnosed with cancer. In desperation, she was telling her husband that she had...

Oh, he's very qualified... :) [If you're wondering about "Dr." Ed's bushy white hair, I'm pretty sure it's a reference to Sam Jaffe's portrayal of "Dr. Zorba" on the "Ben Casey" TV series in the early 1960's.

Words to the wise... and the not so wise.

Were it up to me, they'd write back and tell him that his requests are vexatious.

There's been a small outbreak of Kawasaki disease in San Diego. Usually a disease of young children, it causes inflammation of blood vessels throughout the body and can be fatal if not treated. Kawasaki's is considered rare. Its cause is unknown. In San Diego, sixteen children have come down...

Below is Columbia's July 2018 write up on how the combined results of microbiome and metabolite testing identified ME/CFS patients 84% of the time. As @Andy said, it needs to be replicated, and it's not a clinical test but something that I imagine can only be found in research settings. Still...

When it comes to patients, perhaps instead of "activists" they should have used the term "engaged patients," as this 2016 World Health Organization document would seem to suggest. Patient Engagement: Technical Series on Safer Primary Care...