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    Australia: $4.7 million for UNSW researchers to investigate long COVID

    Relevant forum threads: https://www.s4me.info/threads/immunological-dysfunction-persists-for-8-months-following-initial-mild-moderate-sars-cov-2-infection-2021-phetsouphanh-et-al.20889/...
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    Distinct functional connectivity patterns in [ME/CFS & LC] during cognitive fatigue: a 7 Tesla task-fMRI study, 2026, Inderyas, Marshall-Gradisnik+

    But if the brain activity necessary for the task isn't happening, or is impeded from happening, then choice doesn't enter into it (rational or otherwise). it's just not happening.
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    Distinct functional connectivity patterns in [ME/CFS & LC] during cognitive fatigue: a 7 Tesla task-fMRI study, 2026, Inderyas, Marshall-Gradisnik+

    Yes, and: Funny how these apathetic and uninterested people managed to sign up for and participate in the study, completely voluntarily... Also the speculation about 'response to trauma' here is weird.
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    Preprint Evidence of Accumulating Neurophysiologic Dysfunction in Persistent Post-COVID Fatigue, 2025, Germann et al

    I'm wondering the same thing, having got new fancy bathroom scales which tell me my muscle mass is similarly on the cusp of normal and athlete-standard - this after four years of being housebound and extremely sedentary.
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    Trial Report REGENECYTE cord blood cell therapy in post-COVID syndrome: a phase IIa randomized, placebo-controlled trial, 2026, Huang et al

    Little or no change in quality of life measures across the 6 months (see graphs) suggests the improvement in fatigue scores is an artifact of the Chalder fatigue questionnaires.
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    Association Between Obesity and Post-COVID-19 Condition in Military Conscripts, 2026, Domanyi et al.

    It would be potentially interesting to compare waist-to-height ratios before and after infection, in a physically active population like this one - less likely to be putting on extra belly fat from being sedentary, so it might line up with results being found elsewhere regarding changes in fat...
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    Problems arising for pwME from additional diagnoses of MCAS, hEDS and POTS. Advocacy discussion.

    Just to give another example, I googled 'Long Covid neuropathy' last night and one of the top results was the NHSInform page on Long Covid: https://www.nhsinform.scot/long-term-effects-of-covid-19-long-covid/ [edit to add, sorry, it's the POTS link given on that page, not the LC page itself]...
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    Reduced ATP-to-phosphocreatine ratios in neuropsychiatric post-COVID condition: Evidence from 31P magnetic resonance spectroscopy, 2025, Schilling+

    Slow phosphocreatine recovery was mentioned in the WASF3 study https://www.s4me.info/threads/wasf3-disrupts-mitochondrial-respiration-and-may-mediate-exercise-intolerance-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-2023-hwang-et-al.34776/page-13#post-583206 Wonder if anyone's looking...
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    Rosetta Stone Study: £1.1m awarded to investigate links between ME/CFS and Long Covid

    https://www.bbc.co.uk/sounds/play/w3ct8txt Starts at 06.55. It starts rather badly with historical quotes about "lethargy" and "gloom" but improves once Danny Altmann starts talking about the different things they'll be looking at (gut microbiome, autoimmunity...) He says ME and LC research has...
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    Motion is lotion (Guardian on shoulders)

    It's worth emailing the readers' editor about a blunder like that.
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    UK House of Lords/ House of Commons - relevant people and questions

    My MP is on the APPG and I'd be happy to be part of a small group to draft a question which I could then put forward (barring unexpected events or crashes, but that's life).
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    UK House of Lords/ House of Commons - relevant people and questions

    I wonder if there would be any chance of getting a sympathetic MP to ask a question challenging the use of the unevidenced BACME model in clinics. I'm sure it would only be met with the usual waffle, but it would at least make the point that BACME neither serves patients nor represents us. Which...
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    UK House of Lords/ House of Commons - relevant people and questions

    It would be slightly better if MPs asked specific questions based on facts instead of these open-ended questions about "what is the government doing to support...", which invite and enable the ministers to give meaningless waffle answers. For example, the meaningless waffle of "The...
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