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  1. EzzieD

    Michael Sharpe skewered by @JohntheJack on Twitter

    OMG, that's wonderful! :rofl:
  2. EzzieD

    Vote for Unrest as your favorite 2017-18 Independent Lens film

    I've just voted and Unrest is up to 2,023 votes / 74% of total now. Doing very well!
  3. EzzieD

    Michael Sharpe skewered by @JohntheJack on Twitter

    Oh my gosh, when I said a couple pages back that I wondered if Sharpe would even tell someone of Godwin's stature to 'read the paper', I was just joking around. But now he has actually told Godwin exactly that! And even more amusingly, the link Sharpe gave doesn't work, it leads to a 'This...
  4. EzzieD

    Michael Sharpe skewered by @JohntheJack on Twitter

    Mr Sharpe is unhappy with Mr Godwin's comment about the PACE trial. (Will Sharpe tell Mr Godwin that he should 'read the paper', as Sharpe always thinks everyone critical of the PACE trial hasn't done?)
  5. EzzieD

    Children’s views on research without prior consent in emergency situations: a UK qualitative study, 2018, Woolfall et al (including Crawley)

    Twitter is a weird place. I only joined recently just to follow the latest news in science developments re ME, have only made about 6 or 7 tweets, mostly just supportive comments or to thank a few journalists or researchers for their work. I mainly just Like or Re-Tweet. Yet I found myself...
  6. EzzieD

    Michael Sharpe skewered by @JohntheJack on Twitter

    Sharpe has been retweeting numerous Feynman quotes recently - the irony of their insightful content being retweeted by someone like him is just staggering! :jawdrop:
  7. EzzieD

    Free nasal microbiome test/study at uBiome

    Thanks @Rosie and @Inara, looks like we'll be waiting indefinitely then!
  8. EzzieD

    Free nasal microbiome test/study at uBiome

    Has anyone ever heard back from these people? My kit still says 'Pending' on their website, after their having recieved my kit back in January! As I live outside the US, the postage for the kit was quite expensive, and I feel like I've wasted money which I can ill afford. The only contact...
  9. EzzieD

    A song for ME: Blowin' in the wind

    Wow, that is so beautiful, both the music and images, and the quotes used. So very touching, it brought tears to me too. Wonderful job.
  10. EzzieD

    A couple-based psychological intervention for chronic fatigue syndrome [In progress, April 2018]

    TBH, the knitwear lady would probably do just as well (especially if she wears one of her own blue cardigans while carrying out the therapy). In your link, it shows that Dr Cuddy is at Kings College London. It appears that despite PACE's failure at providing any objective evidence of CBT as...
  11. EzzieD

    A couple-based psychological intervention for chronic fatigue syndrome [In progress, April 2018]

    This idea sounds incredibly lame and not-thought-out (as is usual with this sort of thing). I haven't heard of Dr Marion Cuddy, their primary contact. Does she have any experience/previous track record with ME/CFS? Yes, this! Almost tempting (but not enough), LOL.
  12. EzzieD

    USA - Mayo clinic

    It's a shame, it's a cute video that looks like much enthusiasm was put into it, but yes, it is totally wrong and I do care that some students made a video that misunderstands what ME/CFS is. It's out there on YouTube in the public domain for all to see, and the message anyone who happens...
  13. EzzieD

    Leonard Jason wants ME/CFS patients to do a PEM survey

    Just finished it, thanks for the link! It's good to be able to take part in ME/CFS research that doesn't require one to be living in America and/or to have to travel - hope they get a lot of international response and that the survey results will be helpful for their research.
  14. EzzieD

    David Tuller's new crowdfunding campaign (April 1, 2018)

    A lot of people on that Twitter thread thanked Sharpe for providing the link to the crowdfund page and said they were now going to donate. Including one person who said they were going to donate quite a large amount; I looked at the list of the latest donors on the crowdfund page this morning...
  15. EzzieD

    David Tuller's new crowdfunding campaign (April 1, 2018)

    Seconding this, the lack of a PayPal option is the only thing keeping me from being able to donate (although I can't afford much - but every little bit helps!), and I see that other folks have the same problem. Being able to use PayPal would likely open up a substantial stream of additional...
  16. EzzieD

    Free nasal microbiome test/study at uBiome

    Same here, I returned mine in January and it still just says 'Processing' on their website...
  17. EzzieD

    Mind, Madness and Power - Simon Wessely and others

    That's an interesting observation that really strikes a chord when one remembers Wessely's claims of 'death threats', his declaration that he feels safer in Afghanistan than here amongst all the dangerous militant ME sufferers, his winning of the Standing Up For Science prize for his bravery in...
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