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6) Many entries also highlighted disbelief towards ME/CFS by social acquaintances. People didn't fully understand the impact of the disease. It is often worse than that. They don't want to understand. There are few conditions where ableism is so systemic, overwhelming, entrenched, and cruel.

Sorry to hear this, @Hoopoe. This kind of sadly all too common abusive nonsense is exactly why patients should have the right to record therapy sessions, and to use them in complaints, disciplinary, and legal proceedings. For medico-legal assessments a recording should be mandatory, and...

The fatal core flaws and dishonesty in the BPS arguments have been laid out in detail many times over, including in the formal literature and submissions and reports. All the BPS cult are doing is shamelessly recycling the same shit over and over, louder and louder, and claiming this is legit...

I see no mention of efficacy. All the form of science and none of the content. This is just marketing. Straight propaganda. Justifying an already failed system installed way ahead of the evidence. That is exactly what it is happening. All because a few gargantuan egos can't admit they and the...

In response, Berry says it’s not for us to say whether an individual would benefit from this improved mobility. “I think that’s open to interpretation.” What a gutless cop-out. :mad:

Second of two done. :thumbup: --------------- $32, 741 raised. 43% of total. 13 days left. Seems to be picking up pace. :)

:speechless:

Me neither. I was at my peak fitness when I got ME/CFS, with a resting BP of 60/100, and HR of 60. Ideal weight. Physically active, including walking and riding a bike for transport. Ate properly, didn't smoke, or drink much alcohol. No late night partying. No significant history of ill...

This.

I think the economic problems really are starting to bite hard across the board. Can't just disrupt critical and finely balanced energy and trading systems to that degree, that quickly, in such an arbitrary and chaotic manner, without serious and sustained consequences. Plus some longer term...

Also to control for patients simply substituting the treatment for normal daily living activities, resulting in no overall change to activity levels.

+1

They think they own us and our story, and that we have no right to object. Indeed, they think us even trying to tell our own story and criticise their hijacking of it is some kind of major psychological and moral pathology that justifies even more intrusion and hijacking by them.

Barely even that. And we have to fight to get even that and dodge the tsunami of mismanagement relentlessly forcing itself upon our lives.

'ACT assumes that Obvious flaw is obvious.

Medicine demands physicians be invulnerable, trained to push through exhaustion, As I have noted before, medicine's great blind spot is in dealing with conditions that feature a major reduction in stamina. From day one of med school, through to at least a decade or so post graduation, the...

It is a good article, that touches on many of the points we have been making for decades. But I also agree with @rvallee about the problems with the perversion of evidence-based medicine, having all the form but none of the content, and that being used to stifle dissent and criticism. Would...

I would expect such a phenomenon to be lethal, and within minutes. If they had said a significant reduction in cellular energy production, that would be at least plausible as an initial hypothesis. But a complete collapse is not even vaguely plausible.

a complete collapse of cellular energy production, News to me.

Epecially that.