Search results

Very uneven. They publish articles + blogs for which they have no editorial responsabilities. So they've got nice posts from Tony Bernhard focusing on dealing with ME on a daily basis, one or two papers from Allen Frances criticising the psychologisation of badly understood diseases, ordinary...

This is another article part of the new narrative that seems to be emerging. It uses the recent results of Georgetown University to quickly describe the new landscape of ME/CFS, (references to the drop of GET in US guidelines, to David Tuller's work and @Tom Kindlon 's review of harm due to...

Chronic fatigue syndrome, Gulf War illness as unique disorders, brain chemistry study shows https://www.sciencedaily.com/releases/2017/11/171110084312.htm And a title that will please everyone: Chronic fatigue syndrome is NOT all in the mind- but caused by changes in brain chemistry, a study...

References:

Brain Chemistry Profiles Shows Chronic Fatigue Syndrome and Gulf War Illness as Unique Disorders https://gumc.georgetown.edu/news/Brain_Chemistry_Profiles_Shows_Chronic_Fatigue_Syndrome_and_Gulf_War_Illness_as_Unique_Disorders Researchers find distinct molecular signatures in chronic fatigue...

It seems more and more treatment recommandations are being updated! http://www.mydr.com.au/first-aid-self-care/chronic-fatigue-syndrome

MEA review: http://www.meassociation.org.uk/2017/08/mea-review-to-the-heart-of-the-issue-new-study-on-two-day-cpet-in-m-e-and-ms-29-august-2017/

That is great, too often a weakness in numerous trials, where the lack of a sedentary control group allows to have doubts as to wether the differences are due to the disease or to inactivity.

https://www.careopinion.org.uk/opinions/422141

Why Sci-Hub Will Win by James Heathers

BBC's (long) review of Unrest: http://www.bbc.com/news/stories-41888146

Ruthann Richter on November 8, 2017 I found there was too much certitude in this claim, as the study hasn't been reproduced yet (and cytokines studies seem to be difficult to reproduce): http://scopeblog.stanford.edu/2017/11/08/demystifying-chronic-fatigue-syndrome/

General health *36-Item Short Form Survey Instrument (SF-36) Link to questionnaire Outcome measurement in functional somatic syndromes: SF-36 summary scores and some scales were not valid. Schröder A, Oernboel E, Licht RW, Sharpe M, Fink P. Journal of Clinical Epidemiology 2011 Link to article...

I was wondering the same thing after reading a Canadian article. https://www.s4me.info/index.php?threads/treating-patients-with-mups-article-more-interesting-than-its-title.858/#post-14486 It seems more and more people are aware of the problems around ME. The well-oiled narrative set up by BPS...

Blog post about it (Paul Whiteley): https://questioning-answers.blogspot.fr/2017/11/childhood-adversity-and-chronic-fatigue-syndrome.html

Article in the Daily Mail: People with chronic fatigue syndrome ARE exhausted, claim researchers: Sufferers have 'less energy in their cells' http://www.dailymail.co.uk/health/article-5058807/People-chronic-fatigue-syndrome-exhausted.html

By Sara Husni Article published by Ivey International Centre for Health Innovation (Canadian business university) and way more interesting and documented than the title would suggest. It seems there really is a new narrative about ME emerging...

Merged thread: 'Stock photos are terrible at depicting illness' http://www.slate.com/articles/health_and_science/medical_examiner/2017/11/stock_photos_are_terrible_at_depicting_mental_and_physical_illness.html They are particularly deplorable for ME... More threads on this topic Psychosocial...

https://www.surveymonkey.co.uk/r/QZ8BV3T?platform=hootsuite

by Marion Michell http://inclusionproject.org.uk/guest-post/chronic-illness-and-confidence/