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  1. Samuel

    Opinion piece: If only Brexit had been run like Ireland’s referendum [not posted for the politics]

    we need experts at this stuff, and one reason i support meaction is that i think at some point they will be able to hire the really serious and experienced beltway firms in washington and so on. but this idea is intuitively appealing. imagine plastering the manipulosphere with personal...
  2. Samuel

    UN Meeting on Human Rights in Mental Health: A Response

    "mental health" means in practice whatever political actors want it to mean.
  3. Samuel

    Occupy ME blog post: The NIH Pilot Program: Wait and See

    @ballard i hope meaction knows about your graphics. imagine that one all over the web and social media.
  4. Samuel

    Book for smart people who have neuroimmune diseases

    @Hutan suggested i post this as a thread in this forum. i first mentioned it in an autism vs. m.e. thread. from memory, the book covers self-help for smart people, research questions, observations, interviews, lists of resources, misopathy, etc. [LINK=amazon]B00MNR7AI8[/MEDIA] ...
  5. Samuel

    World ME Alliance, was previously IAFME: International Alliance for ME

    in my browser, the quote shows with an upward-facing arrow on top, next to the name. you can click on my quote of you, and then click on your quote of me, and one more, and you will find the question. you will also find that i asked it more than 2w ago. it is a sincere question. it is...
  6. Samuel

    World ME Alliance, was previously IAFME: International Alliance for ME

    i have not received an answer to this question. @Action for M.E. would you be so kind as to answer the question?
  7. Samuel

    Ideas For Marketing ME More Effectively...

    great ideas and enthusiasm, and great topic, but i find myself discomfited by this thread. it has "caution" written all over it. === fear is already the go-to motivator for political actors. the market is saturated in many places. imo, while we can use fear appropriately in specific cases...
  8. Samuel

    Study shows yogurt may dampen chronic inflammation linked to multiple diseases

    "funded by the National Dairy Council, a non-profit organization supported by the U.S. Department of Agriculture's national dairy checkoff program" -- article "Since 1915, National Dairy Council (NDC) has been a non-profit organization founded by dairy farmers and funded through the national...
  9. Samuel

    Patients with chronic fatigue syndrome do not score higher on the autism‐spectrum quotient than healthy controls, 2018, Bileviciute‐Ljungar et al

    maximal tinfoil might suggest that if you can link two disease populations in order to make the less-attackable one more attackable by association, then you do it. if you cannot, then you say they are not connected. but i'd guess that the study is just meaningless moronic heat thrown off by...
  10. Samuel

    Blog: Spoonseeker, "An Offer You Can’t Refuse"

    shouldn't take us off topic from your bolded text, but this quote reminded me of a question i had about pace design. it claims that pacing is bad and that cbt and get are good. in principle, saying that pacing does not work, taking horton's comment into account, is consistent with pushing a...
  11. Samuel

    World ME Alliance, was previously IAFME: International Alliance for ME

    @Action for M.E. i appreciate your answering questions on this forum. i wonder if you would be so kind as to answer an absolutely direct question, absolutely directly? "do you /both/ [1] regard m.e. as an ordinary organic disease and [2] have an unbendable policy of acting according to that?"...
  12. Samuel

    Does stress increase risk of breast cancer? A 15‐year prospective study

    interesting. is this rigorously done? what does prior 3y refer to? prior to the start of the 15 year study? thus in principle 18y? it would be good to also measure whatever can be determined concerning adverse childhood experiences [i do not know if that body of research is useful or...
  13. Samuel

    Dentistry; dental treatment

    just so it is clear, silver is a marketing term for mercury amalgam. i'd call it a lie; it seems reasonable to assume that many consumers would think it's actually pure silver. carbocaine does not have epinephrine. i have had good results with it. in fact, i have hyperalgesia, so expected to...
  14. Samuel

    World ME Alliance, was previously IAFME: International Alliance for ME

    the old thread seems to have disappeared in forum search @Adrian. here is my post on it: https://www.s4me.info/threads/afme-decide-geneva-is-where-their-millionsmissing-contribution-should-be.3489/page-2#post-62191 i find it disturbing that afme are talking to who. it is we who need to be...
  15. Samuel

    The “scandal” of the PACE trial for CFS/ME, BLB Solicitors

    on a forum for cdc employees, we were once castigated by a bigot for setting up google alerts. i'm more inclined to say that google alerts [and competitors] are useful tools for activism [not merely for persecution] and they are not an indicator of deviance.
  16. Samuel

    NIH reply to my open letter to Francis Collins [The Kafka Pandemic]

    hi @petrichor, nobody has asked francis to influence whether particular grants get selected.
  17. Samuel

    The “scandal” of the PACE trial for CFS/ME, BLB Solicitors

    to me, individual lawsuits are not appropriately real consequences. prison terms would be one example of real consequences. alongside real consequences, massive retractions and genuinely truth-seeking official and unofficial investigations are needed. [not to mention science, services, and...
  18. Samuel

    Metabolic and Fatigue Profiles Are Comparable Between Prepubertal Children and Well-Trained Adult Endurance Athletes, 2018, Anthony Birat

    dunno if this is relevant to anything anybody is thinking about. https://www.frontiersin.org/articles/10.3389/fphys.2018.00387/full
  19. Samuel

    NIH reply to my open letter to Francis Collins [The Kafka Pandemic]

    hi all, new blog post on the kafka pandemic. it is related to my 2016 open letter to francis collins. http://thekafkapandemic.blogspot.com/2018/04/nih-reply-to-my-open-letter-and-legal_24.html many nih employees will read it, so comments on the blog itself might be useful in getting across...
  20. Samuel

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    possibly related to this type of thing? "Dougherty v. Indiana Bell Telephone Co., 440 F.3d 910, 917 (7th Cir.2006) (... surveillance videotape showed the claimant engaging in normal, everyday activities, such as driving his car and hauling shopping bags)." ---...
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