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  1. Samuel

    Whole-exome sequencing uncovers oxidoreductases DHTKD1 and OGDHL as linkers between mitochondrial dysfunction and eosinophilic esophagitis (2018)

    interesting that it could be mitochondrial. i have many esophagus issues, but don't know what causes them. i have been assuming that one was caused by a gastroscopy biopsy that did not heal [it started right after it], and most are caused by vagus nerve issues. but that could be wrong. are...
  2. Samuel

    New York State: Department of Health info page

    the internet archive had no current or previous version, so i told it to save it. [i had wanted to diff today's version. perhaps we will be able to diff it in the future now. but of course we should all be saving both good and bad webpages offline also whenever possible.] thank you to all of...
  3. Samuel

    Donation to Tuller/research as respond to our critics

    combining a few ideas: #IDonatedToActualScience even though it's investigative reporting we're talking about for crowdfunding :] === ETA: i donated FOR actual science would clearly cover david's crowdfunding
  4. Samuel

    Michael Sharpe skewered by @JohntheJack on Twitter

    interesting juxtaposition.
  5. Samuel

    Michael Sharpe skewered by @JohntheJack on Twitter

    at one point i collected a list of fallacies in papers and lectures etc. before pace. i only looked at a few [such as the "one or many?" angels on heads of pins papers around 1999 or so and some common lectures]. for example, equivocation fallacy [using a word with one meaning in one place and...
  6. Samuel

    Gastroparesis, post-prandial pain, eating difficulties

    Eating much less fiber seems to help. A commercial organic chicken broth with salt and ginger might be helping a little. gastroparesis started with ldn. i wonder what the effect of h2 blockers is, positive or negative. i didn't know that ppi's were used. aren't those a bit risky? not that...
  7. Samuel

    David Tuller - Trial By Error: A Post About Andrew Lloyd

    i'd like to see an article focusing directly on the militancy narrative in a thoughtful, influential magazine. slate, or new york times magazine, or whatever. perhaps in the usa, where it is more out of reach. smc handing the reporter the story, the sex offender smear, the foia tribunal...
  8. Samuel

    AFME decide Geneva is where their #millionsmissing contribution should be

    idk any details. parts of WHO and UN are very much worth engaging with. we have not explored enough of this to my knowledge. but i don't trust afme. [i refuse for us to assume an entity turned over a new leaf before having seen what was underneath the old leaf and what is underneath the new...
  9. Samuel

    Donation to Tuller/research as respond to our critics

    @Kalliope: brilliant. imo we can have more than one. not nec at same time. one for @dave30th is the most urgent. #MyalgicEncephaloAccuracy? [not that anybody can spell that.] #ActualScience could work with the science reform movement. i want something like #IStandWithPWME for the long...
  10. Samuel

    [McGarry et al. 2018] Hypoxia, Oxidative Stress and Inflammation

    https://www.ncbi.nlm.nih.gov/pubmed/29601945 > In this adverse microenvironment synovial cells adapt to generate energy and switch their cell metabolism from a resting regulatory state to a highly metabolically active state which allows them to produce essential building blocks to support their...
  11. Samuel

    PACE trial TSC and TMG minutes released

    > While I understand that trust in the charity remains an issue for some, I strongly refute the statements I have seen about individual researchers having any role, including a decision-making one, in the charity it seems pwme do not fully know who/what donates or effectively controls afme?
  12. Samuel

    Nature: Machine Learning Spots Treasure Trove of Elusive Viruses; Possible Application in ME Research

    didn't read but does this square with ron davis not finding viruses? are any of these phages?
  13. Samuel

    Canadian Neuroscientists Say Daily Ibuprofen Can Prevent Alzheimer’s Disease

    i think this might contradict or clarify the recent reports that anticholinergics including ibuprofen are correlated with dementia.
  14. Samuel

    Entire issue of Post Graduate Medical Journal (11/1978) devoted to ME

    interesting. is this known in medicine? what parts of a cbc/cmp require knowledge of blood volume to interpret correctly? ignorant questions: can drinking a lot [maybe salt too?] before blood tests help this particular problem? when does homeostasis kick in?
  15. Samuel

    Low-dose Naltrexone articles and experiences

    I tried low-dose naltrexone (LDN) for a month, but had several episodes of prolonged severe nausea, vomiting, delayed gastric emptying, sweating, diarrhea, and worse IBS. In one episode, I needed to vomit for something like 7 hours but could not. Strange regurgitating, but no vomit. When...
  16. Samuel

    Action for ME has joined S4ME

    tipping point: "the time at which a change ... cannot be stopped". i find that optimistic. we need hard slogging. many victories alem-scale and larger. and then we achieve a tenuous beachhead, like omaha. and then we have to break through. and so on.
  17. Samuel

    Evidence Refuting the Existence of Autoimmune/Autoinflammatory Syndrome Induced by Adjuvants (ASIA), 2017, Elwood et al

    > Patients undergoing allergen-specific IT receive 100 to 500 times more injected aluminum over 3 to 5 years, compared with hepatitis B and human papillomavirus vaccine recipients. this sounds like a potential concern for those who have been injected with a lot of allergy shots, if aluminum...
  18. Samuel

    Action for ME has joined S4ME

    ugh, 6 pages of discord? > The CAA were poorly thought of for years in a way not dissimilar to AfME and then suddenly, voila! [real, not rhetorical] is it just myself who missed the full, transparent account of the "suddenly" part? that part of history i think needs to be full and transparent...
  19. Samuel

    Five patients made 8,303 emergency calls in a year - BBC News Website

    fundamental attribution error, perhaps? http://changingminds.org/explanations/theories/fundamental_attribution_error.htm btw the site has some potentially useful stuff. === [more specifically, i wonder if what you are referring to could be outlined roughly like this:] 1) exploitation of...
  20. Samuel

    Action for ME - New sponsor - The Haywoods group

    newcomers might want to know that afme did things like support pace. newcomers might want to know that meaction.net is 100% unrelated.
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