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  1. Samuel

    inhalers, nebulizers, prednisone, montelukast, tricky stuff, related stuff

    this might be slightly incoherent or too long due to brain not working. i have lung issues.(*) my doctor's initial idea was 7 days of prednisone to calm lungs down, plus an adrenaline inhaler. i was a little concerned, but only on the basis of anecdotal reports and general caution. for...
  2. Samuel

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    i don't get it. that is probably because i, as opposed to everybody else, don't get it. but /just in case/, i will ask. @CarlyMayhew put effort into a letter to a specific franchisee. right? captain obvious [that's me] asks: has this letter been sent to ted [without the x anywhere in the...
  3. Samuel

    What blood tests would you get?

    which confused me wrt the wpi random forest and klimas papers. those showed il-8 and il-6 high. were those insufficiently powered or the methodology unproven?
  4. Samuel

    Nature: A reboot for chronic fatigue syndrome research

    cannot read but good to see nature seemingly sucking less this time. now, to the nature editor: withdraw the maddox prize 1] accurately reporting why 2] every bit as publically as you bestowed it 3] in all of the same venues to which you released it and it got subsequently picked up...
  5. Samuel

    Unrest - reviews and general articles

    is there, or can anybody supply in his or her own words [very rough description is ok], a list of symptoms [and maybe signs] portrayed in the movie? i asked this elsewhere, but this seems to be a more appropriate thread. i'll delete there.
  6. Samuel

    Jen Brea comments on Esther Crawley's behaviour

    even worse, there might be, as has been the case, parents who are all too happy to go along with authority. these children are isolated and not being protected from their families OR the authorities. they are children, so they do not know who they can trust. not even whether they can trust...
  7. Samuel

    Ranitidine (Zantac) for its IL6 inhibitory properties

    my il-6 has been tested by a research lab to be around 7. also il-8 in the quadruple digits [one of the highest in the study]. also tnf-a around 10. i think this comports with wpi's paper on cytokines and i think klimas's, but not hornig. however, my crp has been tested a few times as normal...
  8. Samuel

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    i am ignorant, but: is it possible that ted, having hosted ted fellow jen, and probably knowing her personally, might want to rein in tedx if they have tacitly or explicitly supported ec? ted know their brand is tarnished recently. they probably are concerned they overextended their brand...
  9. Samuel

    Unrest gets a mention in "The best documentries of 2017" @ Vox

    great to see your enthusiasm! but you forgot to answer the question! i'll guess it doesn't cover the cf label! :] just trying to find out what is in the movie and whether reviewers are paying attention. i presume sundance style doesn't refer to "Sundance Style! What Kristen Stewart, Chloë...
  10. Samuel

    Unrest gets a mention in "The best documentries of 2017" @ Vox

    > chronic fatigue is that addressed in the film?
  11. Samuel

    Auto-inflammatory diseases – What can they tell us about ME/CFS?

    hi @Woolie, i can't comment on je's post much until i have the health level to go over it closely. i want to make sure i understand it. but fwiw, the philosopher thought occam was an /aesthetic/ rule. that's /all/ he thought of it. he didn't think it raised probability. philosophers didn't...
  12. Samuel

    Hospitalized Patient w/ Severe ME Looking For Treatment Guidelines

    the iacfs/me primer, at least the original, is dangerous. it recommends exercise for severe sufferers. it also says infections are not a problem. there is an meicc primer. it does not do that. you are right that it is not ok and you are right that severe is marginalized even within the me...
  13. Samuel

    Auto-inflammatory diseases – What can they tell us about ME/CFS?

    @Woolie in https://www.s4me.info/index.php?threads/which-autoantibodies-would-you-test-for.1481/page-2#post-28213 , i describe a symptom profile that has massive numbers of symptoms and signs. i have this profile, and i believe others on this forum, perhaps 2-3 on that thread alone, possibly...
  14. Samuel

    Which autoantibodies would you test for?

    i hope the following is coherent and readable. i am not able to do better at this time. i think this thread raises highly interesting questions. please consider the following symptom profile. === for some pwme, the symptoms that you see in the literature are a miniscule subset of what they...
  15. Samuel

    Hospitalized Patient w/ Severe ME Looking For Treatment Guidelines

    i cannot read all this thread, including the initial post, as my brain is being fried on the hot venusion surface someplace, but i read this, and it is right. please believe me people: not every pwme can tolerate this stuff. hospitals exist to make people better. i think the fact that we have...
  16. Samuel

    OMF/Ron Davis Research Update December 2017

    fyi to omf: not loud enough for me at max volume with max computer volume.
  17. Samuel

    News from Dysautonomia International

    i got partway through. apart from being mentioned on the mcad slide, was there anything mentioned about angioedema? i have c1-inh normal but 4x antihistamines is either insufficiently effective or not effective.
  18. Samuel

    Efficacy of acupoint catgut embedding combined with ginger-partitioned moxibustion on CFS of spleen-kidney yang deficiency syndrome.., 2017, Xia et al

    i read in a detailed tcm book that a particular potion's recipe was incorrect for a thousand years. a mistaken hanzi character was used, but it was not corrected. it was just repeated. so i hope they are careful. "CFS of spleen-kidney yang deficiency syndrome" makes it seem that there is a...
  19. Samuel

    Article: Nature, "Peer reviewers need more nurturing"

    i think partly what is being fought over is credibility, authority, and status. there is an attitude out there that peer review confers truth. as a performative act, much like "i pronounce you man and wife" means you are married, peer-reviewed means it's true. this is magical thinking. as...
  20. Samuel

    Public Who shall we nominate for the 2018 CNN Hero Award?

    great idea. does this thrust an obligation on a candidate or winner?
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