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  1. Samuel

    "The Why: The Historic ME/CFS Call To Arms": new book by Hillary J Johnson

    does she say there is input INTO cdc causing the why? or direct export FROM cdc to e.g. uk or mayo? what does she say cdc insiders claim the disease consists of to one another? is there winking and nodding to the effect "we know it's dire, but let's shove it into the psycho quagmire for...
  2. Samuel

    Covid-19 vaccination experiences

    could not read whole thing but it looks like a study on lc and m.e. re v. is there a dedicated thread for this already? i feared they'd never do one. and i keep hearing akiko iwasaki at yale name. https://www.mercurynews.com/2022/05/01/long-covid-mystery-do-vacccines-help-or-hurt/ tipped...
  3. Samuel

    Covid-19 vaccination experiences

    in my country/county they have a window for housebound/bedridden vaccinations. something like 9am-4pm or 9am-6pm. you cannot specify when. they just come sometime. for sleep reasons, if i were woken at a time earlier than my body at that time can deal with, it would destroy me. this...
  4. Samuel

    Circadian rhythm disruption in [ME/CFS]: Implications for the post-acute sequelae of COVID-19, 2022, McCarthy

    life long for me. strongly related to health status for me as both cause and consequence. around y2k i went to what is probably a top medical bookstore in the world. in the whole bookstore, i found one sentence, in a thick book [on sleep i think], that mentioned the existence of reversed...
  5. Samuel

    The order of magnitude is off — ME/CFS is a human rights issue

    > ME/CFS charities are happy to endorse clinicians who say that there is a personality type that predisposes to ME/CFS. Our charities are happy to appoint doctors as medical advisors to the charities who, I think, commit medical malpractice, mostly well-meaning medical malpractice, but medical...
  6. Samuel

    The order of magnitude is off — ME/CFS is a human rights issue

    > How terrible it is to take young people and teach them that they can't trust their own assessment of how they feel. that was my case from earliest memories. there was nobody in my world i really knew i could trust. wanted to. the person with an ethics bacground really poses a problem. it...
  7. Samuel

    Long Covid in the media and social media 2022

    [this is a general reply to page 4 of this thread.] i greatly appreciate the summary descriptions of articles and social media posts and videos. i usually cannot go to the original source [and have js turned off partly to not have things show up]. thank you to all. i wonder what constitutes...
  8. Samuel

    [National Institute of Health] Community Advisory Committee – Guidelines for the Design of Clinical Studies in ME/CFS

    looks like progress. i'd like it to mention that subjects have often had to be their own doctors, whether they wanted to or not, often for their entire lives. therefore, they often have an interest in getting study data [for themselves and where possible for all] and results. i'd also like it...
  9. Samuel

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    [i also recall the initial control groups [per a supposedly mistakenly released draft at least] and true about the personnel selection. perhaps those will get official investigation at some point. the hiv/aids equivalent would have been to put aids deniers on the project, include a couple of...
  10. Samuel

    Vitamin K2 Modulates Mitochondrial Dysfunction Induced by 6-Hydroxydopamine in SH-SY5Y Cells via Mitochondrial Quality-Control Loop, 2022, Henfang et

    is this saying k2 does, in this case, good things like releasing mito that is damaged to be scavenged, or so?
  11. Samuel

    Covid-19 vaccines and vaccinations

    are you recovered a bit at least? i hope so. i was under the impression that you thought it was the spike protein and not the type of vaccine or so. perhaps i was mistaken?
  12. Samuel

    Metabolomics study of the effect of Danggui Buxue Tang on rats with chronic fatigue syndrome, 2022, Miao et al

    around 1989 in the west they made rodents swim in a milky liquid and called it cfs. there is also https://www.s4me.info/threads/efficacy-of-acupoint-catgut-embedding-combined-with-ginger-partitioned-moxibustion-on-cfs-of-spleen-kidney-yang-deficiency-syndrome-2017-xia-et-al.1526/ .
  13. Samuel

    Article claiming acupuncture on parents would treat their kids through quantum entanglement has been retracted. Retraction Watch, April 2019

    probably sympathetic magic. example: walnuts for your brain because it looks like a brain. example: causing/curing diseases by cognitions about those diseases.
  14. Samuel

    The biology of coronavirus COVID-19 - including research and treatments

    interesting. for clarity, sounds like you are saying, given this mrna nomenclature: - shot 1 - shot 2 [this is apparently called "fully vaccinated" in the usa at least] - booster 1..n [further shots after shots 1 and 2] that shot 2 should be 3-4 weeks after shot 1, IF intending ongoing...
  15. Samuel

    The biology of coronavirus COVID-19 - including research and treatments

    interval between first and second shots seems to vary. some sources say 3w for pfizer 4w for moderna while others seem to say 8w for moderna unless exceptions.
  16. Samuel

    The biology of coronavirus COVID-19 - including research and treatments

    i am sorry, i do not understand your second and third sentences. my only concerns about evusheld are wehther they are anything like scig or ivig in which case they could be dangerous for me. also it is not commonly used like vaccines so not much data, and no reports from pwme. ===...
  17. Samuel

    The biology of coronavirus COVID-19 - including research and treatments

    > I think it may be worth doing a thread on pandemic disinformation. It's clearly the new phase we are in right now, especially with most countries having dropped all basic measures, even not reporting deaths anymore. whose case and death numbers can be trusted? can i trust jhu numbers in...
  18. Samuel

    Rare disease registry

    i don't really understand this article but it seems potentially relevant [given e.g. the seeming heterogeneity of m.e., diagnostic questions, and the many things that pop up here that don't seem quite the same as known diseases but also are not part of m.e. definitions]...
  19. Samuel

    WebMD: Chronic Fatigue Syndrome: The Need to Raise Awareness

    i am really freaking uncomfortable with cdc messaging and that includes the above. can't go into dtails for health reasons. just because it isn't the era where they would literally [this is fully documented and stored using timestamp-service type evidence quality] go in and change every...
  20. Samuel

    Blog series: "Orthodoxy on trial: the pathogenesis of a diagnosis" by David Black

    Merged thread https://www.scottishlegal.com/articles/david-j-black-welcome-to-the-machine . David J Black: Welcome to the machine. via tom kindlon. worthwhile topic. seems related to...
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