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I have signed, because for me it's a protest and I'm all for objecting to Per Fink; it's my way of saying 'NO!'. Once again I'm signing a petition that I don't think will do any good. As I don't think this will work I think we need informed people there to show his dangerous nonsense for what...

@mariovitali - I don't have the knowledge to understand your posts re:machine learning I'm afraid, but it's clear you have put in lot of work and passion into it. Do you intend to try and publish any of this?

Just incase anyone wants to let them know they've published dangerous nonsense:

One thing I learnt the hard way is to be very disciplined about my keys. I fell into a horrible situation a few years ago when I was testing going out by returning some mailorder clothes via the company's shop in town. It was a very easy short drive, free parking, and a short walk I felt was...

I had a bath this morning and it made my nose bleed. Bet they haven't got anywhere put that in their data.

Not working for me either! I've deleted the post. I dunno..perhaps the shrimps carrying the that bit of the internet across the Atlantic have been eaten by a flotilla of jelly fish or something. Or maybe I did it wrong.

I'm another who was told 2 years, though to be more accurate the GP actually said that he couldn't say how long it would take, it could be "2 weeks, 2months or 2 years". I think he must have forgotten to include 2 decades... 2 centuries. Anyway, so far 2 years, like tomorrow, hasn't come.

Thank you for this Graham! I hope Prof. Munafò is genuine in his response.

I can't remember either, that's why I carefully mentioned no names in my comment!

Hi Tilly, I'm sorry you and son are having such a difficult time. Has any medical/health practitioner examined your son re: his walking on tip toes? This really is just a thought, but I just wonder if the tendons in the back of his leg were too short due to growing and perhaps exacerbated by...

If I were reading this I might want to know who made the decision but it's up to you. It's a really good letter, Graham, I hope he takes it on board.

So if we're all rare who are the poor sods who are common?

I'm an 'Advocate' too and I have been every time I take one of these tests. The odd thing is that they're supposed to be rare, but there's 2 other Advocates just in this thread. I also know other Advocates. Not so special now am I. I think the thing this questionnaire gets right is my...

My expectations for your letter are realistic too, but I'm grateful that you're writing one. I'm sure whatever you decide to send will be good. There's value in speaking up and it may have some benefit.

correction - I don't think all of it's needed, though it's still good to include something of what you mention about how the problems in the research are protected and the failure of people who know what's wrong to stand up and be counted. Anyway, well done @Graham

I think The Stir-upper and The Big-mouth-ranty-person are doing a brilliant job ;) For what it's worth I completely agree about (not in any order): i length ii what action is wanted iii own published work should be in the references (should also be mentioned in the body of the text) iii...

It's no good - I just can't be fooled by the word 'biological' when its context says something different. I'm trying but it's not working. eta - Perhaps I'm being premature - I'm refering to the tweet from Pariente's presentation - perhaps it doesn't represent his words well. We'll see when...

Glad you've had some relief from the pain and I hope this is the solution you need - let us know how you get on @LucyLouWho

I'm wondering whether people undergoing this diet change have had adverse bowel habit changes. I understand that constipation can be an issue - has anyone found this to be the case?

It's yet another of those aspects of having ME that's as clear as mud. I will have it because I'm asthmatic. Having flu jabs used to worry me a lot, and I still have some concern but I have tolerated them fairly well so far when I've had jabs. To me flu plus asthma attack with my level of ME is...