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If i can remember i will look into how this could be done over the winter when I have got over my house move.

i think we should set up an annual international award for courageous ME patients. First one to go to Karina.

:wtf::banghead:

I am considering this for the house I’m in the process of buying. I have a downstairs loo there so won’t necessarily need to use the stairs more than a couple of times a day so my plan is 1 see how I get on without a stair lift for a couple of months 2 rent a stairlift for a few months trial if...

Surely enough of the discussion is out in the open that whatever happens anyone claiming this review is authoritative is going to look foolish even if it isn’t retracted

This :thumbup:

They will just continue to try to blag their way through it’s worked so far for them.

Yes this is what the British researchers at Nottingham and Birmingham will be involved in

Yes I think it’s the level of disability being higher in ME than MS that the biobank found in their paper. Presumably that applies across age range. Hard to actually deploy that information to influence people without sounding like we re trying to outdo MS patients tho.

Had a look on some MS websites apparently MS reduces lifespan by about 5 to 10 years.

Sticking my nose in wondering if Dr Nacul would be a possible option speaker? Maybe too busy with his new job in Canada and ongoing NICE involvement. He had worked with patient group @Suffolkres and were almost successful in getting a physician led service commissioned. So he knows what...

Ooh Cosmo Quiz style. Nice one Sly Just like doing IAPT CBT ;) My guess is B and C if I’ve only got one choice i have to go for C

From very brief research I read onset of MS was between 20-50. Onset (or at least diagnosis) of ME is a broad spread from children to older people with peaks in 20s and 40s. There are people with ME who have worked just as there are people with MS who have younger onset and maybe haven’t...

As gradual onset likely at least 8 years undiagnosed this is definitely a needle/needles in a haystack situation trying to identify what actually contributed and what was completely irrelevant. You don’t pick up the drip drip worsening as anything remarkable until it has stacked up into...

:D

I think a one off stressful thing initially gives me a boost but it’s just the same as any overexertion pay later. And an ongoing stressor definitely had a negative effect.

As you know I’m somewhat cynical ;) My bet is whatever the next announcement or step in this is it is now definitely planned for publication on the website on 31 October :whistle:

I must tell my relatives they will think this is hilarious

It’s that symptom catastrophising thing Auntie Trudie likes to bang on about innit. Sit and do some nice flowers and think nice thoughts instead of the silly exaggerated ones.......

Interesting that they managed to understand that safety is uncertain due to information on adverse events being scarce......