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I guess that they had a so-so response previously by using immunoadsorption to remove ß2 adrenergic receptor antibodies. 3 out 10 patients had long lasting moderate to marked improvement for 6-12+ months. Maybe Sanofi has an interest in immunoadsorption? Immunoadsorption to remove ß2...

No idea about this article but, this guy has 3 affiliations in 3 continents, yet he has a hotmail account as his email account? He is not listed as faculty in Plovdiv. Can’t find him at Deakin. Can’t find him at Chulalongkorn U either. and he titles himself Prof. Dr. Michael Maes, M.D...

Feel free to edit title to better reflect the topic—I don’t know how to edit titles. Thanks.

Merged thread Good news. Was this posted already?

https://www.newyorker.com/news/q-and-a/the-contrarian-coronavirus-theory-that-informed-the-trump-administration The Contrarian Coronavirus Theory That Informed the Trump Administration Pretty amazing interview here—complete meltdown.

Wishing for a speedy recovery. Unfortunately, his prediction last month re Covid hasn’t aged well. Lipkin: Virus probably won't kill as many as SARS https://globalcenters.columbia.edu/news/us-virus-hunter-w-ian-lipkin-assisting-china

This article is relevant to Covid, but posting here because of this sentence, criticizing empty social media gestures. ...... I guess this looks bad, but if my math is right, then 2.5 million did contribute, which is huge. The Ice Bucket Challenge raised $220 million...

@deleder2k mentioned a potential relation between HLA-C*07:04 and response to cyclophosphamide—any more info about this? https://www.s4me.info/threads/ron-davis’s-big-immune-study-is-looking-at-hla-genes-hla-wtf-here’s-the-story-simon-m-blog.4798/#post-215167

What does this even mean? Google translate??? That if you don't have lower back pain then you are unlikely to believe in biomedicine?

https://www.nbcnews.com/health/health-news/man-dies-after-ingesting-chloroquine-attempt-prevent-coronavirus-n1167166 Man dies after ingesting chloroquine in an attempt to prevent coronavirus

Coronavirus Ravages 7 Members of a Single Family, Killing 3 https://www.nytimes.com/2020/03/18/nyregion/new-jersey-family-coronavirus.html?action=click&module=Top Stories&pgtype=Homepage Wow. Genetic component to virus response?

✅ done

Lower or higher ESR?

https://www.nytimes.com/2020/03/09/health/hiv-aids-london-patient-castillejo.html?searchResultPosition=2 If there was a genotype that was resistant to MECFS, then perhaps we could undergo bone marrow transplants like this guy.

If someone attends they should press Lipkin about his prediction that he made a couple years ago that there would be a treatment for this disease by now. This type of bluster (a different b word could also be used here) is not helpful— it unrealistically inflates patient expectations. Also...

I don't know the history of this thing, but why are these groups funding her group? @dave30th Have you invited her to respond to your criticisms? Can you petition the journal to release the peer-review comments? EIC seems to be a bit of a self promoter (you google).....

Yup, and i would support an eponymous name. There are a ton of them. https://en.wikipedia.org/wiki/List_of_eponymously_named_diseases They even have an Edwards Syndrome. Thinking out loud...I'm not sure how critical the billing codes are for a disease that has no treatment. If we had...

Good thread with some helpful comments from @adambeyoncelowe 1) I favor a more inclusive approach to diagnosis and to patient selection in research studies. Yes to 2) The important thing now is fund raising 3) The narrower your criteria, the more difficult it is to raise funds, simply...

As the only human in the known universe to actually prefer the name CFS, I offer the following compromise--The Kronic or Kron (which can be used as an adjective--s/he is very Kroned {or Kronned} out). For marketing and fundraising purposes a really horrible sounding name is highly prefered, so...

Is this the thing now— writing one year reviews? I can hardly wait till they start publishing weekly reviews....just imagine how many publications will be generated.