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https://www.cbssports.com/nba/news/mo-bamba-still-dealing-with-covid-19-symptoms-despite-june-diagnosis-theres-no-timetable-on-his-return/ Mo Bamba still dealing with COVID-19 symptoms despite June diagnosis: 'there's no timetable on his return'

Bump. Take Zuck’s money.

@Trish can edit to incorporate your option and hers.

Merged thread From email We have a unique opportunity to share with you: Donate to OMF’s Facebook Fundraiser on Tuesday, Dec. 1 (International Giving Tuesday), and have your gift matched by 6x! When you donate to our #TripleGivingTuesdayOMF Facebook Fundraiser tomorrow, Facebook will match...

Ok to edit as you like.

I’m intrigued by MECFS patients with no brain fog....seems like they have a better prognosis. I think under IOM you can be diagnosed without cognitive issues.

Do you have brain fog (e.g. impaired concentration, cognition, etc.)? 1) Always, almost always 2) Only during PEM, otherwise I am normal 3) Never, almost never (e.g. can read long complex books with no issues) 4) Sometimes

Sorry for slightly off topic post but, I thought we were interested in cyclophosphamide due to its effect on T-cells? E.g. https://www.sciencedirect.com/science/article/abs/pii/S0305737215002030

This is a bit harsh, I think. By a proper trial, I assume you mean a RCT trial? 1) Personal accounts are valuable because they can point researchers in a direction so that they can conduct controlled trials!! 2) The overwhelming emphasis and energy on this forum is on "combating" gaslighting...

HHS and the Steven & Alexandra Cohen Foundation Announce $25 Million “LymeX” Innovation Accelerator – Largest Lyme Public-Private Partnership in History https://www.hhs.gov/about/news/2020/10/10/hhs-steven-alexandra-cohen-foundation-announce-25-million-lymex-innovation-accelerator.html Some...

Another reason is that MECFS never had a breakout viral campaign like ALS did. This raised over 100 million USD. https://www.cnn.com/2020/11/22/us/pat-quinn-als-ice-bucket-challenge-dead-trnd/index.html

https://immunology.sciencemag.org/content/5/53/eabc7191

Threads by Robert Phair and request to monitor thermoregulation. https://forums.phoenixrising.me/threads/a-community-thermoregulation-experiment.82096/ https://forums.phoenixrising.me/threads/thermoregulation-and-body-temperature.82073/page-2#post-2308614

I disagree with most of the above post. I had a real dramatic response that was more than a 10% improvement (went from moderate to mild) It was not a placebo response. I am noticing reduced response at about 3 months, suggesting tachyphlaxis. I think butydoc had a response at .1 mg—why should...

https://www.nature.com/articles/s41573-020-0082-8

For me I don't think it's a question of overdoing it, but rather that it just stopped working.

I think you are probably correct about drugs that work in the brain.

It seems like some of us are losing our response to Abilify. Same thing happened with antivirals— they worked great until they didn’t. So why does this happen with this disease but not so much with other diseases? Please don’t make me read a long research paper......

https://finance.yahoo.com/amphtml/news/eli-lillys-arthritis-drug-gets-034748143.html Eli Lilly's Arthritis Drug Gets Emergency Use Approval For Treatment Of COVID-19

@Jessie 107 How long have you been taking Abilify?