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https://www.cnn.com/2020/07/15/sport/elena-delle-donne-wnba-opt-out-denied-spt-intl/index.html Has “Post-Treatment Lyme Disease Syndrome”. WNBA won’t let her opt out of playing. [[What is the elite consensus on Post-Treatment Lyme Disease Syndrome— this is ME/CFS, no?]]

Ummmm. I’m so grateful that sufficient funding is available for this critical research.

1) Robert Phair's metabolic trap study (labwork) is ongoing but delayed due to Covid--Phair gave a short update on PR a month or two ago. 2) Need more clinical studies of existing approved compounds that *might* work in ME/CFS--e.g. (1) JAK inhibitors (rinvoq reduces fatigue in RA...

Merged thread Maybe more about post-covid symptoms than actual discrete mental illness?????

OK, but consider that the three main criteria used for diagnosis are fatigue, PEM and sleep disruption. Let's assume a 1-10 symptom severity scale with 10 being the worst. Which person has the truest disease--Person A who is fatigue 10, PEM 10 and sleep 10 or person B who is fatigue 1, PEM 10...

https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0233468 Brain penetrant!

Dear @Mithriel, When describing MECFS symptoms, I prefer it if you put them in personal terms, e.g., using "I" statements, and to please try to avoid generalizing over what you feel the true symptoms of ME/CFS are. If you feel that fatigue is a minor symptom for you, that is wonderful, but it...

Cyclophosphamide is used as a treatment for many diseases.

Merged thread Fauci was a cyclophosphamide pioneer

I respectfully disagree with some of this. 1) I don't see any diagnostic criteria where PEM is listed as *THE* cardinal symptom. IOM, CCC and Fukuda all require fatigue as well or in addition other things. 2) I agree with "problems with energy" being common to MECFS. But that could mean...

Send email to Tompkins— please post his reply— thanks. https://www.massgeneral.org/surgery/cem/faculty-and-staff/ronald-tompkins rtompkins@mgh.harvard.edu

https://nymag.com/intelligencer/2020/07/anthony-faucis-boss-on-why-things-could-be-much-better-soon.html?utm_source=tw A Long Talk With Anthony Fauci’s Boss About the Pandemic, Vaccines, and Faith

Another disaster article from NYT— mentions psychologists but not MECFS maybe someone on twitter could @ her

I know I'm a minority opinion on this, but I do not support having PEM as a mandatory symptom (Yes, I know PEM is required under CCC and IOM). I'm 100% sure I have the syndrome of ME/CFS. I am not 100% sure I have this acute PEM thing. If I have a day with 10,000 steps, the following day(s)...

https://www.nytimes.com/2020/06/27/opinion/laura-hillenbrand.html?action=click&module=Opinion&pgtype=Homepage From a Loss, Something Found No, not ME/CFS (well one sentence), but only to note that this article appears on the same page as the article about Post-Covid brain dysfunction that does...

Maybe someone on Twitter could @ her to point out she missed ME/CFS Also here http://melindawennermoyer.com/

Can Covid Damage the Brain? https://www.nytimes.com/2020/06/26/opinion/coronavirus-brain-damage-dementia.html?action=click&module=Opinion&pgtype=Homepage Somehow this article does not mention ME/CFS at all despite quoting Mady Hornig. No bueno

https://www.nature.com/articles/s41467-020-16436-w