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  1. Forbin

    CFS and sleep disorders: Evidence that extremely low frequency magnetic fields and radiofrequency electromagnetic fields are factors to investigate

    Low frequency danger? Looks like I picked the wrong day to order "The Very Best of Barry White." :)
  2. Forbin

    The biology of coronavirus COVID-19 - including research and treatments

    Researchers find autoantibodies that may be responsible for the blood clotting seen in some COVID-19 patients. Half of the hospitalized patients in the study showed the presence of these autoantibodies at some point. ETA: This seems to be a different autoantibody study from the one posted...
  3. Forbin

    The biology of coronavirus COVID-19 - including research and treatments

    This may get outsized attention, not just because it's in the New York Times, but also because the lead author is from Emory University, which is literally across the street from the CDC. As I recall, the CDC's Dr. Reeves collaborated with Emory University's Department of Psychiatry and...
  4. Forbin

    A cohort study of whether parental separation and lack of contact [...] predicts disease severity [...] in young peoples ME/CFS, 2020, O'Donnell et al

    Forgive me if I missed it, but I don't recall "emotional distress" being a "recognized trigger" of ME/CFS. Possibly, it's a reference to the next line: That "link" has always seemed extremely dubious to me and, even if it were somehow true in some cases, it would be an antecedent, not a trigger.
  5. Forbin

    Does existing science sufficiently demonstrate that exertion is the correct focus concept?

    This study, by Drs. Alan and Kathleen Light, showed significant increases in the expression of certain sensory, adrenergic and immune genes over time in CFS patients vs control following moderate exercise. The top line shows the controls. The CFS patient response is at the bottom. Alan Light...
  6. Forbin

    Does your ME cause sleep inversion?

    If a lot of ME patients do have abnormal sleep patterns (I certainly do), I wonder how that might have affected all those studies on "morning cortisol" that they used to love to do on ME patients. It's probably not very sensible to test the "morning cortisol' level of people who would normally...
  7. Forbin

    Impact of hypnotic safety on disorders of gut-brain interaction: A pilot study, 2020, Damis and Hamilton

    It's really quite simple - DGBI are the same as FGIDS. :) Technically, neither is an acronym since, by definition, acronyms can be pronounced (like "NASA"). DGBI and FGIDS are just confusing and redundant initialisms - especially since both are plural.
  8. Forbin

    Post Covid-19 Syndrome naming

    Could be worse... could be "Yuppie Covid."
  9. Forbin

    Webinar: Scientific Research on ME/CFS in the Age of COVID-19 - Hanson, Lipkin, Nath - Oct 26th, 2020, 6 to 7pm ET.

    I think, for some people, ME takes a while to evolve. On my doctor's recommendation, I tried to exercise my way back to health on a stationary bike just a couple of months after onset. I desperately wanted to get better, so I really tried hard for more than a month [It didn't help at all]. I...
  10. Forbin

    ME/CFS Alert with Llewellyn King and Deborah Waroff - Episode 120: Interview with Leonard A. Jason of Depaul University

    Leonard Jason's 1999 prevalence figure for US adults 18 and over was 0.422% The current US Population over 18 (2019 estimate) is 255,042,109 255,042,109 x 0.00422 = 1,076,277 current US cases over 18 meeting Jason's criteria. This assumes the prevalence has remained steady since 1999, when...
  11. Forbin

    Whether to have a flu vaccination

    Coincidentally, I'm going to get the flu vaccine at the local pharmacy this evening. I started to get annual flu shots after I came down with what was probably the "Swine Flu" (H1N1/09) in June 2010. In the US, the epidemic lasted from the spring of 2009 to August 2010, so I was "lucky" enough...
  12. Forbin

    Open Medicine Foundation (OMF) fundraising

    If you're worried that you may have missed it, it looks like "Triple Giving Tuesday" runs from today (10/20) through December 1st ( a total of 44 days, I think). https://www.omf.ngo/2020/10/15/triplegivingtuesday-is-almost-here/
  13. Forbin

    What research do you want to see? (study ideas)

    I'd be interested in a prospective study that tries to capture data on patients as the severity of their symptoms undergoes long term shifts. Anecdotally, it seems like some patients experience a level of improvement (though not necessarily recovery) during a window of 3 to 5 years after onset...
  14. Forbin

    Does anyone have a list of common ME symptoms please?

    True spinning vertigo is the worst. I don't know how it's possible to function at all with that. I think the general term "balance problems" or "balance impairment" should probably be used in lists of ME symptoms. The more specific terms are easily confused with one and other. My concern is...
  15. Forbin

    Does anyone have a list of common ME symptoms please?

    I always look for "dizziness" in lists of ME symptoms. It seems like it shows up maybe 50% of time. Perhaps that's how often it shows up in patients. I wish it showed up in lists more often. People just can't grasp how incapacitating it can be when it's chronic. "Lightheadedness" tends to sound...
  16. Forbin

    Cardiac Dimensions and Function Are Not Altered among Females with the Myalgic Encephalomyelitis/Chronic Fatigue Syndrome. Iversen et al. 2020

    That would be an interesting relationship. FWIW, a genetic form of long QT syndrome may be rare, but acquired/transient long QT syndrome may be more common. The acquired form can result from certain drugs, including certain classes of antibiotics. Also, low potassium and/or magnesium...
  17. Forbin

    Genesis and dissemination of a controversial disease: chronic Lyme, 2020, Gocko et al

    I bet this is pretty much the same level of consternation that the priestly class felt not long after the printing press was invented in the middle of the 15th century.
  18. Forbin

    Cytokine profiling of extracellular vesicles isolated from plasma in ME/CFS: a pilot study, 2020, Giloteaux, Levine, Hanson et al

    I wonder what factors determine the size distribution of EVs, and if any other conditions show a distribution like the one they found. I did find this overview of EVs, but it seems a bit "above my pay grade" on first glance. Overview of Extracellular Vesicles, Their Origin, Composition...
  19. Forbin

    Reductions in Cerebral Blood Flow Can Be Provoked by Sitting in Severe ME/CFS patients, 2020, Van Campen, Rowe, Visser

    So blood pressure and heart rate did not change between being supine and sitting in either group, but the initial blood pressure was higher in the ME/CFS group (though not significantly so). Is the implication that low blood volume in ME/CFS patients is behind the decreased cerebral blood flow...
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