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  1. Forbin

    OMF/Ron Davis Research Update May 2018

    Just some speculation... If enough people with ME are tested, eventually someone who tested positive will go into remission. If they then tested negative, it would correlate the test to the symptoms. If the test was still positive, however, it might suggest that the nanoneedle is detecting some...
  2. Forbin

    Researchers Question “Gold Standard” Status of CBT

    To be fair, according to a 2002 survey, the average length of psychoanalysis in the US was then 5.7 years (longer for certain conditions). Still, in 2010, the New York Times published a story about a woman who had been in analysis for 40 years (not all that time with one doctor).
  3. Forbin

    Researchers Question “Gold Standard” Status of CBT

    When I was in college, um... mumble-years-ago, my psychology professor's initial format was to present study after study showing that psychotherapy did not work. In fact, all sorts of studies showed that psychotherapy/analysis actually prolonged patient recovery from emotional problems (people...
  4. Forbin

    Ideas For Marketing ME More Effectively...

    One problem that occurs to me is that using "ME" as pronoun in a marketing campaign ("Stand by ME," "Forget ME Not," etc...) will have to overcome a hurdle in the US, at least. While the term "M.E." seems to be in such common use in the UK that news presenters use it without explanation, in the...
  5. Forbin

    Brain function characteristics of chronic fatigue syndrome: A task fMRI study, Shan et al, 2018

    Could they instead measure ME/CFS patients against other ME/CFS patients? I'm thinking in terms of stratifying patients by some other test(s) of cognitive impairment and then seeing if their results on this type of fMRI test correlated to their degree of cognitive impairment established by other...
  6. Forbin

    Chance discovery links inflammatory bowel disease with common bacterial gut toxin

    This is probably a very big deal if it's been published in "Cell," one of top-ranked peer reviewed scientific journals. Makes me wonder what else bacterial toxins and their breakdown products are doing that we don't know about.
  7. Forbin

    Ideas For Marketing ME More Effectively...

    I don't suppose I'm the first to have thought of this, but if we want a sort "meme" to encourage people to support M.E. patients and research, this might be a good song to co-opt. The lyrics of this 1961 Ben E. King song seem fairly appropriate and there have been many excellent versions (done...
  8. Forbin

    Worldwide Action: Sign #MEAction’s Letter to Francis Collins by May 16th

    Your right if you apply Jason's prevalence rate to the entire US population, but Jason only measured the prevalence in adults over 18. It could be the same for those under 18, but I don't know if anyone has made that estimate. Applying Jason's value to just the current US adult population you'd...
  9. Forbin

    Esther Crawley's contribution to #MEawarenessweek

    There really should be an awareness day to bring attention to the plight of researchers who suffer from tunnel vision. That light they see ahead is often coming from a dead end.
  10. Forbin

    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Some leading ME researchers and clinicians say the treatment is safe and effective. They also say that if you don't have the treatment you'll never-the-less reach the same level of improvement as those who did receive it if you just wait one year's time. Meanwhile, there is considerable...
  11. Forbin

    Public Food for thought: Crohn's=Mycobaterial infection?

    Although sometimes it seems mentioned as an afterthought, both Ian Lipkin and Mady Hornig have said that will also be looking at fungi as part of the Microbiome Discovery Project.
  12. Forbin

    Could robots be counselors? Early research shows positive user experience

    If they try to measure patients' "feelings" instead of their objective activity, they may just wind up measuring how comfortable patients are with lying to robots.
  13. Forbin

    Electroconvulsive Therapy

    I'd be fairly concerned about this: I suppose memory loss (temporary or permanent) would be easy to notice if it were of something obvious like your spouse's name, your phone number, your address, etc... But how would you even know if you lost a memory of something more obscure, like your...
  14. Forbin

    Could robots be counselors? Early research shows positive user experience

    I swear I hear my robot therapist coming up the steps, but he never seems to get here.
  15. Forbin

    Could robots be counselors? Early research shows positive user experience

    How about a blue t-shirt? What could go wrong? "Hear me now and believe me later. You look like a flabby little girly man. Have you seen Sarah Connor? You need more exercise! I'm going to recommend some CBT. That's 'Conan's Barbarian Therapy.' Have you seen Sarah Connor? No, I am NOT a robot...
  16. Forbin

    David Tuller - Trial By Error: A Q-and-A with Leonard Jason, on Case Definition

    I wondered about this too, as the only definitive cognitive problem I can recall developing in the immediate aftermath of the onset of ME was "word finding." I noticed this problem quite early in the illness, years before there were any formal definitions of ME/CFS that included it. But, if you...
  17. Forbin

    David Tuller - Trial By Error: A Q-and-A with Leonard Jason, on Case Definition

    If the problem with the ICC is that it specifies too many symptoms - apparently thus capturing people with a primary psychiatric disorder because they will assert most every symptom in the book - I don't see how the solution to that problem is to use a criteria that lists fewer symptoms (like...
  18. Forbin

    Blog: Spoonseeker, "An Offer You Can’t Refuse"

    Took me a while to think of this, but... "Loss of agency" "Stripped of agency" https://en.wikipedia.org/wiki/Agency_(sociology)
  19. Forbin

    Simon Wessely Research & Related Quotes

    Well, looks like we won't be seeing a paper on hubris coming from him anytime soon.
  20. Forbin

    Ron Davis Q and A -Massachusetts- March 2018

    If I understood this right, he thinks there is a single underlying mechanism that is capable of producing different symptoms in different patients. He also mentioned seeing different (genetic) mutations in different patients. I may be wrong, but it sounds kind of like the underlying mechanism...
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