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  1. Forbin

    A couple-based psychological intervention for chronic fatigue syndrome [In progress, April 2018]

    This concept sounds somewhat similar to something done in Alcoholics Anonymous where people known as "sponsors" help to keep recovering alcoholics on the right track. The difference would be that, unlike the healthy member of a couple, AA sponsors have themselves followed a program of recovery...
  2. Forbin

    (Not a recommendation) Bath University, Volunteer for research investigating Chronic Fatigue Syndrome

    Could have been worse... They might have asked patients to listen to this. :eek:
  3. Forbin

    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    Have the inherent risks of shopping bag research taught us nothing?
  4. Forbin

    The biopsychosocial model

    The incredibly "useful," but wrong, Ptolemaic world system was so accurate (it was just as good at matching and predicting observations as the later Copernican system) that it managed to hold science back for 1500 years.
  5. Forbin

    How do we make sure ME prevelance numbers are as accurate as possible?

    The estimate of 800,000 US cases is based on Leonard Jason's 1999 study. He found a 0.422% prevalence rate (95% confidence interval, 0.29%-0.56%) and applied it to the US adult population in 1997 (the actual figure was 836,000). However, the US adult population has increased since 1997, and so...
  6. Forbin

    Trial By Error: Professor Michael Sharpe’s Gaffe on Australian Radio

    I think it has something to do with PACE being a thing of beauty, like an ocean liner, or something like that. [Note: No one perished in the incident below.]
  7. Forbin

    Trillions Upon Trillions of Viruses Fall From the Sky Each Day

    I'm still reeling from the recent study that shows (as I've long suspected) that hand dryers in public restrooms are blowing bacteria all over your hands. :eek...
  8. Forbin

    Trillions Upon Trillions of Viruses Fall From the Sky Each Day

    Well, given that the surface of the Earth is 510.1 trillion square meters, that's 408,080,000,000,000,000,000,000 (408.08 sextillion) viruses falling per day - or 53.7 trillion viruses per person. The HIV-1 virus weighs 1x10^-18 kg. If that was the average weight of all those viruses, about...
  9. Forbin

    Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Systemic Exertion Intolerance Disease: Three Distinct Clinical Entities; 2018; Twisk

    Good find! I was going by the 1990 Ramsay paper cited by Twisk. It mentions "a complaint of general or local muscular fatigue following minimal exertion with prolonged recovery time," but doesn't mention other post-exertional symptoms that one might associate with PEM. It also doesn't mention...
  10. Forbin

    How I felt after 70 days of lying in bed for science (2015)

    Well, if the person in this study could effectively recover from severe, enforced deconditioning in just a couple of weeks, I'd say the six month long PACE trial results pretty much prove that deconditioning is not the proximate cause of ME.
  11. Forbin

    Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Systemic Exertion Intolerance Disease: Three Distinct Clinical Entities; 2018; Twisk

    So, they're not the same, except when they are. The definitions are different but not mutually exclusive. Post exertional malaise, for example, may fulfill a requirement for the 1994 CFS definition, but it is not mentioned in Ramsay's 1990 ME definition. I have to wonder when the term...
  12. Forbin

    Llewellyn King: "Congress to Hear From an Army of Very Sick Petitioners"

    Actually I think it is important to lobby legislators regardless of which party is in power. We need Senator Foghorn Leghorn going to the NIH Budget review meeting and saying, "Now Francis, I see y'all only got $5 million going to this ME/cfs disease thing. Now, I've been gettin' an earful from...
  13. Forbin

    Cimetidine: An immune modulator that actually seems to be working for me

    I've always thought it was an amazing coincidence that Tagamet, a front line drug in the treatment of stomach ulcers, was approved for over-the-counter sale in the US in 1995... the same year that the the FDA began to recommend antibiotic treatment for ulcers caused by h. pylori. I think...
  14. Forbin

    David Tuller: Trial By Error: My Berkeley-Backed Crowdfunding Campaign

    Came across this really old tweet...
  15. Forbin

    Orthostatic Intolerance in PwME (POTS?/NMH?) - discussion thread

    I wonder what it is when your vision "greys out" like TV static, or goes totally black for a few moments upon standing or rising from deep crouching position. I had this during most of my teen years, but it had pretty much gone away before I got ME in my early twenties. It must have been from...
  16. Forbin

    Emerge Q and A with David Tuller

    I suspect that the Mayo Clinic is so convinced of their protean powers to diagnose anything, that they are even more convinced that there must be a psychological explanation when they can't. Humility is not likely their long suit.
  17. Forbin

    A future replacement for Psychiatry? - Hardware visionary Mary Lou Jepsen’s next act is to read your mind—no implants required

    From the climax of the classic, 1951 sci-fi/horror film "The THING From Another World." The soldiers prepare to confront the murderous, alien "THING." Lt. McPherson: "You know, I've got a worry.... What if that THING can read our minds?" Lt: Dykes [hefting an axe]: "Then he's going to be real...
  18. Forbin

    Demystifying Medicine video: "What is chronic fatigue syndrome?"

    Usually, videos like this wind up being fairly equivocal, but not this time...
  19. Forbin

    Solve ME/CFS Initiative: Discovery Forum 2017: Presentation of Dr. Maureen Hanson

    Dr. Hanson @ 3:33 [bolding mine] Perhaps it's time to declare that there is a biomarker.
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