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  1. Forbin

    ME/CFS International Research Symposium, March 2019, Australia

    As I recall, Ron Davis simply presented the results, without really characterizing them in any way (as, say, a "null result"). The results of both groups appeared similar. If he intended to convey anything else, then I did not grasp it.
  2. Forbin

    An Hour of Light and Sound a Day Might Keep Alzheimer’s at Bay

    When I first read this, I took "bathing" literally. :)
  3. Forbin

    ME/CFS International Research Symposium, March 2019, Australia

    I saw that part of Dr. Davis' talk, also. IIRC, I believe he said that his son feels better when "he has a fever" - so it may be any kind of fever. Your idea that the energy production necessary to produce a fever may be able to temporarily override a presumed hypometabolic state is very...
  4. Forbin

    ME/CFS International Research Symposium, March 2019, Australia

    He spoke about it in his talk at the beginning of Day 2. He also showed a couple of slides related to the T-cell study. I did not see it "live," but a recording of the entire day seemed to be up on the site for a while. The next day, it seemed like only the afternoon portion of that recording...
  5. Forbin

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    Well, the Wikipedia article on the New York Post says: This 1983 headline is fairly infamous:
  6. Forbin

    ME/CFS International Research Symposium, March 2019, Australia

    I think I saw most of Dr. Davis speech at the start of the second day. I lost the feed when he started to recap about the nano-needle and I couldn't get back. The news that was unknown to me (at least) was that the T-cell clonal expansion that had been seen in 4 ME patients turned out to also...
  7. Forbin

    Special Report - Online activists are silencing us, scientists say Reuters March 2019

    “What a terrible injustice! - - Ilsa, I'm no good at being noble, but it doesn't take much to see that the problems of some 17-24 million little people don't amount to a hill of beans in this crazy world when a couple BPS researchers' feelings are being hurt. Someday you'll understand that."...
  8. Forbin

    ME/CFS International Research Symposium, March 2019, Australia

    I'm guessing that the talk by Dr. Cara Tomas was embargoed, since the feed went to "We'll Be Back Soon" just as she was being introduced - unless it's just me. ETA: Now it says "We are sorry that this presentation cannot be shared" - so, yes, embargoed.
  9. Forbin

    Trial By Error: Kaiser Permanente Changes Course

    Wow! All hail @Webdog indeed! There's just paragraph after paragraph of amazing statements from Dr. Olson in that article, such as...
  10. Forbin

    Trial By Error: Professor Sharpe’s Retraction Requests

    I wonder how many different ways he tried to word this before he gave up.
  11. Forbin

    Do you get post-exertional malaise from being outdoors?

    As others have mentioned, I suspect that outdoor sensory overload might contribute to PEM. If you have vestibular problems, you probably rely on your sight more than most people to provide information on your orientation/balance, but, in "grasping at straws" (i.e. visual cues) in that way, you...
  12. Forbin

    Trial By Error: Stupid Studies

    I should add to my comment above, that Dr. Straus' statement that, in his experience, CFS "patients will commonly feel better - no matter what you give them," appears to have been based entirely on his one trial involving acyclovir and a placebo in the late 1980's. The trial only had 27...
  13. Forbin

    Trial By Error: Stupid Studies

    I wonder if EMA (Elevator-Monopoly-Adele therapy), or something like it, would be a useful control in some of these studies, particularly in children. The idea being to compare the response to a nonsensical intervention to the proposed intervention. Quite possibly, both would give equivalent...
  14. Forbin

    ME/CFS and permanency

    One of the links provided by @Esther12 above: A systematic review describing the prognosis of chronic fatigue syndrome found that... (It also claims, in 2005, that there is increasing evidence of the effectiveness of CBT/GET.) :banghead: However the full paper, which can seen by clicking on...
  15. Forbin

    ME/CFS and permanency

    My library had it back about 10 years ago, but it was soft cover and it appears that it either wore out or went missing. I forget who, but a speaker at a recent Stanford symposium held up Dr. Bell's book and called it the best book on ME/CFS. It probably is in the sense of it being from the...
  16. Forbin

    ME/CFS and permanency

    I could be wrong, but I seem to recall there being some charts in Dr. Bell's 1995 book "The Doctor's Guide to Chronic Fatigue Syndrome" that related to recovery (improvement) vs. age / sex / length of illness / etc... - or something like that. Perhaps someone with the book handy could tell.
  17. Forbin

    Mitochondrial complex activity in permeabilised cells of chronic fatigue syndrome patients (2019) Tomas, Brown, Newton, Elson

    Reminds me of Ron Davis' belief of there being "something" in the blood serum. Some molecule for which I think he had an upper or lower boundary on its size. If it's not present in healthy serum, I wonder if such a thing might be regarded as a sort of "poison"/"toxin" - perhaps some molecule...
  18. Forbin

    Canadian Consensus Criteria not suitable: PACE trial minutes

    I wonder what they consider an "intrusive" procedure. From what I can see, diagnosis might involve an EKG and a sleep study (if you don't take the patients word that they have disrupted/reversed sleep patterns). Likewise, you could pretty much check off "irritable bowel syndrome" based on...
  19. Forbin

    what are you using for toothpaste?

    My hands are too large to use handheld floss effectively on anything but my front teeth. However, a while back I ran across this (below) (Listerine "Ultraclean" - formerly called "Reach"). The floss units are disposable. They seem resilient enough to be re-used once or twice if rinsed, but I...
  20. Forbin

    Predictors of chronic fatigue in adolescents six months after acute Epstein-Barr virus infection: a prospective cohort study,2018,Pedersen et al

    It's also worth noting that Dr. Ramsay listed "emotional lability" (mood swings) as a feature of ME. Emotional lability is also a symptom listed in the Canadian Consensus Criteria. The International Consensus Primer says: I'm somewhat embarrassed to say that this happened to me in my early...
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