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Government study finds that for people receiving NHS talking therapy, adding Employment Adviser support was associated with better employment outcomes for those who were jobseeking, but worse outcomes for those who were in work at the start of treatment and for those who were long-term ill or...

A bit of accidental honesty there.

Not to mention the danger to the public when sick people are forced to go on working in any job with an element of risk (driving, operating machinery, food preparation, looking after children...)

I see they introduced 'pacing' after week 4 of the 8-week trial, but they acknowledge that many patients will have been pacing already. Sums up the pointlessness of it quite nicely.

So much better than thinking thoughtlessly ;)

Perhaps when the website is rejigged to put the factsheets in a prominent place, this letter could go alongside them.

https://clinicaltrials.gov/study/NCT07567274#study-overview DMSO Dual-Route Therapy for Refractory Tinnitus in Long-COVID and Post-COVID-19 Vaccine Injury (DART-TINN) Prospective, single-arm, open-label pilot study of dimethyl sulfoxide plus lidocaine and other stuff. Participation criteria...

That's great, thank you

Those of us who block trackers on our computers/phones can't see tweets - we either get blank space or an error message. So it would be really useful and appreciated if the text of tweets could be copied and pasted into posts. Sorry for the extra work!

There really is! One organisation is funding gamechanging medical research, getting their message out on the BBC, and pushing the DHSC on the delivery plan. The other one wants to send us a packet of seeds and a colouring sheet.

The ethics process also should have flagged up the dishonesty* of using first-person pronouns to give the false impression that the autogenerated text is being produced by a human personality with which the user can develop some sort of relationship. These things are tools and everyone involved...

And even if ultimately each individual has to figure out the tactics of pacing for themselves, there is still a value in having an authority figure giving you encouragement and validation, because there are so many other external factors pushing you *not* to pace.

Authors could have stopped there really.

@nanay I really hope you are continuing to read this valuable detailed user feedback and that you are engaging honestly with the implications. These aren't cosmetic issues to be tweaked, they are major flaws in a product being marketed to a patient population at risk of harm.

There was this one by authors including Garner and Carson, which obviously has issues of its own. https://www.s4me.info/threads/challenging-the-current-hypothesis-that-thrombosis-is-responsible-for-the-post-covid-19-condition-2024-carson-davey-smith-garner-et-al.39004/

Saw this posted on social media today with a comment about how "exercise cleanses your brain!" which is clearly very oversimplistic (the study is on anaesthetised mice having their abdomens mechanically squeezed and the resulting movement in the brain). But it might be interesting for those...

You're now the second person to tell me that nettle tea has a good effect on their brainfog. Sadly it does nothing for mine! At least it was a pretty cheap and easy thing to try.

Expectations being managed downward.

What are they identifying as 'neuroinflammation' and 'neuroinflammatory activity'? (I've tried looking at the paper but too foggy.)