United Kingdom News (including UK wide, England, NI and Wales - see separate thread for news from Scotland)

For anyone who took part and can't read lengthy articles: it seems no sale was made, the Chinese government removed it very quickly on request from Britain.

The anonymised data was obtained legitimately from the Biobank by academic centres, which then listed it for sale. Which is...disappointing.
 
The North Wales ME/CFS service is running a webinar tomorrow - forum thread with details here

This is an opportunity to help nudge the service in a good direction, I hope some members will be able to participate.

There will be webinars from other Welsh regions later - WAMES, the Welsh patient charity has more information.
 
I haven't heard of her either, but the "recovering from ME/CFS" label on her site is a bit of a red flag for me. Usually, when someone pivots from being a patient to a "Registered Health Coach" for this specific condition, there's a sales pitch coming. It’s better to stick to established patient advocacy groups.
 
FicaR94 said:
I haven't heard of her either, but the "recovering from ME/CFS" label on her site is a bit of a red flag for me. Usually, when someone pivots from being a patient to a "Registered Health Coach" for this specific condition, there's a sales pitch coming. It’s better to stick to established patient advocacy groups.
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I've lost track: who are you referring to?
 
Link : https://www.mirror.co.uk/news/uk-news/woman-24-dies-hospital-after-37124440

Woman, 24, dies in hospital after paramedic 'thought she was overreacting'​

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Clarissa Street, 24, suffered a pulmonary embolism and spent more than an hour in a hospital corridor where a nurse gave her an oxygen mask that wasn't connected to anything, an inquest heard​

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I had never heard of anyone being given an oxygen mask without attaching it to anything, and I wonder how often it happens. It isn't clear to me if it was intentional or accidental. It reminds me of doctors giving patients placebos when they are in pain.
 
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Arnie Pye said:
Link : https://www.mirror.co.uk/news/uk-news/woman-24-dies-hospital-after-37124440


https://www.mirror.co.uk/news/uk-news/woman-24-dies-hospital-after-37124440


I had never heard of anyone being given an oxygen mask without attaching it to anything, and I wonder how often it happens. It isn't clear to me if it was intentional or accidental. It reminds me of doctors giving patients placebos when they are in pain.
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I saw a reddit thread about this and a doctor on there was saying it is drummed into them over and over in training that young woman hyperventilating and anxious = panic attack.

It's not much better if you present like that at a hospital as a man from my experience.

The 'everythings stress and anxiety' medical culture is killing people.
 
www.bbc.co.uk

Devon surfing champion on burnout: 'My body just shut down'

Eight-time English surfing champion Lucy Campbell looks forward after burnout left her bed-bound.
www.bbc.co.uk www.bbc.co.uk

"I was in bed for I think about six weeks I couldn't surf I was just completely exhausted."

Lucy Campbell talks about how the sport she fell in love with as a child almost broke her.

Campbell, 31, is one of the most successful surfers England has produced, with eight national titles to her name.

But after a severe spell of burnout that left her exhausted, isolated and unable to train, she is setting a new course, on her own terms...

...When results dipped, she pushed harder. Instead, her body shut down....

"I was in bed for I think about six weeks, I couldn't surf...

"My heart would be racing even when I was lying in bed," she said. "It felt like I had just been out for a run. I could not calm it down at all. My nervous system was in complete chaos."..

...Doctors later suggested she may have been suffering from Relative Energy Deficiency in Sport, known as RED-S when sports people restrict their diet, burnout or another form of adrenal fatigue, but there was no definitive test...

Burnout is recognised by the World Health Organization as an occupational phenomenon and is classed as a syndrome rather than a medical condition.

It is a state of physical, mental and emotional exhaustion caused by long-term stress and prolonged pressure that leaves people feeling detached, demotivated and hopeless.
 
Government study finds that for people receiving NHS talking therapy, adding Employment Adviser support was associated with better employment outcomes for those who were jobseeking, but worse outcomes for those who were in work at the start of treatment and for those who were long-term ill or disabled. Rather a blow for the DWP's plans to use Employment Advisers as a cure-all for the national sick list.

The impact of employment advisors in NHS Talking Therapies on employee earnings and employment status, England - Office for National Statistics

The change in employee earnings and employment status after receiving employment advisor support and psychological therapy, compared with psychological therapy only.
www.ons.gov.uk

www.disabilitynewsservice.com

Government research shows activists were right to warn of impact of DWP work advisers on mental distress

New government research has proved disabled activists were right to warn that receiving employment advice on top of NHS talking therapy would push many people with mental distress further away from…
www.disabilitynewsservice.com www.disabilitynewsservice.com

The study shows that, for those already in work or off sick from a job, adding employment advice to talking therapy reduced average earnings and the probability of being in work, compared with those only receiving talking therapy.

It also showed that, for most groups who were not working, providing voluntary employment advice sessions on top of talking therapy led – on average – to increased earnings and a higher probability of being in work.

But crucially, for those who were out of work and had the highest barriers to employment – those described as “long term sick or disabled” – the addition of employment advice to regular talking therapy made it less likely that a disabled person would be in work and reduced average monthly earnings, compared with those only receiving NHS talking therapy.
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Among individuals not working at the start of NHSTT treatment, receiving EA support alongside psychological therapy increased earnings and employment over time, compared with receiving psychological therapy only; on average, monthly earnings were £105 higher and the probability of being in paid employment after three years was 4.7 percentage points higher.
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So, a trivial difference that can be mostly attributed to employment assistance, and only for people who are seeking work and are capable of working. The bulk of the gains come from people "describing themselves as homemakers", I am not entirely sure what it means, but sounds like people most capable of work and are seeking work.
Individuals employed but off sick at the start of NHSTT treatment, who received EA support alongside psychological therapy, experienced an average decrease of £224 in monthly earnings and a 5.0 percentage point reduction in the probability of being in paid employment after three years, compared with receiving psychological therapy only.
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And the worse outcomes are worse than the better outcomes are better. The bar isn't just low, it's the absolute lowest:
Being a paid employee is defined as receiving monthly earnings greater than £0.
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No, even lower than that:
Negative monthly employee earnings values were set to zero
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It seems to me that the more rational way of doing this would have been to do it the other way around: employment assistance by default and optional psychotherapy, because what the hell is even the point of this McTherapy here? Especially as all employed groups had worse outcomes.

Oddly enough they used genetic matching even though it's well-known that socioeconomic lottery is far more important: having rich, healthy parents and growing up in a nice neighbourhood with good schools and strong social connections beats genetics every time.

Notable that there is no evaluation of the program's efficacy, which you can guarantee would make up the bulk of this report if it had been a net positive. That it's hidden means this program, the entire model, is a big loss. This here is the most generous interpretation they can make of it, and they simply hide the total.

So, the program will expand. It's so easy when you can just make stuff up. There is zero chance that this is a net gain for the government, they are wasting money to lose more money, which might as well be the #1 rule of biopsychosocial ideology.
 
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