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  1. Binkie4

    Electroconvulsive Therapy

    FWIW- I had 2 individual doses of ECT in the 60s. I was 17. I had no memory loss: took my A levels 6 months later and achieved v good grades, straight to uni. No further psych treatment other than GP antidepressants. My mother had ECT when she was 80 as an inpatient. It relieved her of a...
  2. Binkie4

    Q&A with Prof Chris Ponting May 2018

    @Robert 1973 Interesting reply. I had not seen that 2012 letter defending Simon Wessely (in your link) before. My opinion of Holgate remains the same. I look forward to seeing what Chris Ponting can achieve. It would be wonderful if the CMRC came into play and benefitted patients. Watching...
  3. Binkie4

    Q&A with Prof Chris Ponting May 2018

    SimonM Chris is suggesting there is currently rather more to it than that @Simon M .Are you able to help in elucidating what this might be? I have always been concerned at what I have seen of Holgate's behaviour, his support of Crawley, treatment of Geraghty etc. I am prepared to see Chris...
  4. Binkie4

    Anybody had an angiogram ?

    I've had a pulmonary angiogram, if that helps. NHS UK. (It is like the ct angiogram described in the link) I had to undress and put on a hospital gown. A nurse asked me several questions in particular whether I had had a procedure where a contrast dye had been used. I hadn't. Very rarely there...
  5. Binkie4

    ME Awareness Conference with Dr Amolak Bansal - Saturday 12 May 2018 2pm

    Threads merged ReMEmber has its annual conference in Burgess Hill on the above date (12th May), unfortunately coinciding with #millions missing. Speakers are Dr Bansal who will talk about Julia Newton's research, and Dr Shepherd...
  6. Binkie4

    Ron Davis Q and A -Massachusetts- March 2018

    I wondered about that too. He spoke very precisely.
  7. Binkie4

    Ron Davis Q and A -Massachusetts- March 2018

    Can anyone help @Ravn with her/ his questions above? Sorry I can't help. Takes me too far out of my knowledge zone to even try.
  8. Binkie4

    Ron Davis Q and A -Massachusetts- March 2018

    The one at the beginning of this thread is from March this year, to accompany a viewing of ' unrest'. The information in the other one seems to be, as @Barry says, from 2015.
  9. Binkie4

    Ron Davis Q and A -Massachusetts- March 2018

    As far as I understand I think Prof Davis is looking for a biomarker for ME/ cfs. The closest he has got is by examining pwme red blood cells which do not deform in the same way as non patients. All the cases he has tested ( not very many, both patients and non patients) show this consistent...
  10. Binkie4

    Ron Davis Q and A -Massachusetts- March 2018

    My O2 score is pretty much always low. This would fit with full oxygen not being picked up, along with many other conditions. Wonder what the O2 level is of those few pwme whose blood Ron has studied.
  11. Binkie4

    Ron Davis Q and A -Massachusetts- March 2018

    There's a thread somewhere that discusses the deformability of red blood cells and GWI.(posted below) If I have this right, Ron Davis' (with San Jose Univ) research shows the red blood cells do not deform as necessary to fit along narrow capillaries so that full oxygen is not being picked up...
  12. Binkie4

    Ron Davis Q and A -Massachusetts- March 2018

    No information given but they hoped to have an answer about one thread by the end of the summer. Towards the end of the clip if you want to check it. 'There may be ways to manipulate people out of the circuit: they are looking at one primary circuit which they hope to have an answer to by the...
  13. Binkie4

    A series of PACE funding FoI requests

    Welcome @AR68. Your post sounds intriguing . Looking forward to hearing more. Hope that you are moving towards normality.
  14. Binkie4

    Blog: The struggle continues….

    Just unbelievable and infuriating! Criminal!
  15. Binkie4

    Ron Davis Q and A -Massachusetts- March 2018

    Thanks @Daisymay. I'm not sure he answered that question specifically. The family study that he spoke of may throw some light on that. Not sure how anyone else views it, but I thought this presentation had a crisper more focussed note. It was interesting that he wasn't trying to group patients...
  16. Binkie4

    Ron Davis Q and A -Massachusetts- March 2018

    March 2018- short Q and A Ron Davis says they are working on 4 possible biomarkers. They believe something may be wrong with a central control system in the body. If this can be corrected, there may be no need for a new drug.
  17. Binkie4

    David Tuller - Trial By Error: Goodbye, Australia; and Two Updates

    I think we may be looking at the wrong discipline to analyse this. Psychology is useless.(bold) "The goal of qualitative phenomenological research is to describe a "lived experience" of a phenomenon. As this is a qualitative analysis of narrative data, methods to analyze its data must be quite...
  18. Binkie4

    BABCP Band 'Bedlam' (featuring Trudie Chalder) gig

    I wish I could commit to singing in a band, or anything. I am not reliable because of this vile illness.
  19. Binkie4

    Michael Sharpe skewered by @JohntheJack on Twitter

    @Indigophoton It's too innocent. It doesn't sound an honest picture to me .....am I being too suspicious?
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