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Have just ordered this. Out of stock at Amazon Prime but other sources available. Am very curious about these red blood cells and their different shapes. It seems to be being followed up now. What a shame it has been ignored for all this time. EDIT: the following added...

@TiredSam @rgn007 Also make sure pwme are not swept up into 8, they are prescribed B12 when recommended by Consultants, they are investigated for heart issues when they have heart symptoms and not left to deteriorate, nor told that ( many) people with ME are mad when visiting a cardiologist...

I was in hospital electively the week before last. I was very worried that I was not well enough to be in hospital, which actually sounds odd, and I posted that here. A certain level of fitness is required to " manage" the hospital experience. I rested very hard before I went in which would not...

@Luther Blissett Thanks Luther. Just had a look at this on the Amazon site which prints a fair bit of the preface and introduction as well as a contents page. The contents are as I remember although I recollect quite a small book which this doesn't seem to be. Maybe one day I'll enlarge my ME...

Thank you @MsUnderstood Dr Simpson's work made quite an impression on me even though it is quite a while since I read it. How interesting that you were a participant but unfortunate that the work was not pursued.

Dr Simpson and Nancy Blake published a book together, quite a short book, which I can't now see on Amazon. Nor can I remember if I bought the book. Dr Simpson died in about 2015 but Nancy Blake is still working on ME: she commented on Jenny Spotila's blog recently. @Mattie- I am working from...

The work of Dr Simpson on the haemorheological properties of blood seems extraordinarily neglected. I tried to have a conversation with a haematologist once about this bit he looked blank. There is also a condition ( which I have, another one) called factor v Leiden where the blood is sticky. I...

Last week I was admitted to hospital electively for tests, including general anaesthesia, relating to the mitral valve prolapse and severe regurgitation I experience. It's a condition more common in pwme than the general population. There seem to be at least two types, and the one I have is...

Has anyone asked TEDX straightforwardly where the other 35 comments are? Or has that question been disappeared too?

Definitely resend. Great letter Trish. Thank you for using your energy on it. Could you include a sentence in your covering letter referring to the significant progress by' real scientists' especially in the US over the last year since you sent your letter to him?

https://www.actionforme.org.uk/uploads/pdfs/cmrc-board-minutes-101017-draft.pdf Minutes of the Oct 2017 CMRC meeting 1. CS was not listed at all. Is this an admin error, or something more? Does CS remain a member of tthe CMRC? I don't think he is participating here yet. Perhaps @Jonathan...

I agree. I do believe it is time for CS to let go of his 'in the tent' argument but unfortunately, there is no sign of this. David Tuller's blogs have shone a light on what the BPSers are and have been doing which is nothing that benefits people with ME.

@Barry- I beg your pardon. You are right. Said my brain was fried!

This is not very coherent. Am still not expressing myself clearly after anaesthesia but I wanted to comment below. Have scanned David's article and I am even more concerned that MEA continues its link with Esther Crawley via CMRC. Have commented on MEA fb page on this if anyone cares to 'like'...

From a reading of the letter, I think there were considerable time constraints in play e.g. he began by saying he hoped it reached them in time to be considered and there was a mention of Dec 7th. This may have meant it went off in a rush.

Heartbreaking with not an ounce of self pity. I know I used the same word as you @Trish. It just fits best.

http://occupyme.net/2017/11/25/for-serious/#comments I came across Nancy Blake again when she responded to Jenny Spotila's blog last week. She's obviously still very involved in the ME scene, but apart from the book with Leslie Simpson, I haven't come across her. In her discussion she posts...

@arewenearlythereyet I don't think so. Part of his argument was something to the effect that after red blood cells had been ' fixed' for a while, they assumed certain properties which they didn't have if they were analysed immediately on drawing the blood, i.e. we were misled in concluding the...

Am writing from memory but I did once have a copy of a book written by Nancy Blake and Dr Leslie Simpson. It was the same Nancy Blake. I remember her CV. His contribution was about the properties of red blood cells in pwme: he theorised something to the effect that blood cells differed in...

@Forestvon Well done! I think the ME community is going to have to act individually as well as as a group and it will enhance our effect. It's harder to push away an individual well argued communication with rubbish about group harassment. I think we should all be looking for opportunities to...