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Self-management support needs for individuals with Myalgic Encephalomyelitis and their next of kin – a qualitative study Grønning, Kjersti; Lysfjord, Liv Eli; Røstad, Ann Katrin Hagen Background Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a complex, disabling condition...

I searched the forum for mentions. DCC was significant in: ME/CFS Identification of Novel Reproducible Combinatorial Genetic Risk Factors for [ME] in [DecodeME Cohort] and Commonalities with [LC], 2026, Sardell+ Neurodevelopment Genes Encoding Olduvai Domains Link Myalgic Encephalomyelitis to...

There is now: Genetics: Chromosome 18, DCC

The 15th most significant locus in DecodeME is overlapping the gene DCC. The lead variant at this locus is 18:53232948:C:T (rs72923287) with a p-value of 2.48x10-7. GeneCards summary for DCC: Full gene name: DCC Netrin 1 Receptor "DCC" stands for "Deleted In Colorectal Carcinoma" The...

This one tested it, but did not find an association with post-COVID symptoms, according to the abstract: Genetic Association between ACE2 (rs2285666 and rs2074192) and TMPRSS2 (rs12329760 and rs2070788) Polymorphisms with Post-COVID Symptoms in Previously Hospitalized COVID-19 Survivors (2022...

Identifying electroencephalography (EEG)-based biomarkers of Long COVID Casado Sánchez, Monserrat Abstract Long COVID is a condition marked by persistent symptoms such as fatigue, cognitive impairment, and post-exertional malaise (PEM), which are increasingly recognized as neurological...

Research Highlight about this study: Pathological potential of autoantibodies in long COVID Lucy Bird First paragraph Neurological symptoms are among the most debilitating features of long COVID, but their underlying mechanisms remain poorly understood. Santos Guedes de Sá et al. provide...

Yes, from my reading about CA10, as far as I know there are no known overlapping functions between the catalytic isoforms and the acatalytic CA8, CA10, and CA11, which don't appear to be in that chart.

Several posts have been merged with an existing thread: In the Expectation of Recovery, 2016, Faulkner

Stigmatisation in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) - a scoping review Patricia Vester, Stefanos Boudouroglou-Walter, Chantal Wieting, Jonas Schreyögg, Niklas Dammann, Annemarie Feißel, Katharina Piontek, Christine Blome Objective Myalgic Encephalomyelitis/Chronic...

Genetic association between LONG COVID and TMPRSS2 polymorphisms (rs12329760 and rs2070788) in Brazilian healthcare professionals Abstract Long COVID syndrome has a multifactorial cause that is not fully understood and may be influenced by both external and intrinsic factors. In this context...

Yes, I think the long COVID RCT will be more or less identical to this chronic pain RCT from the same author: https://s4me.info/threads/psychophysiologic-symptom-relief-therapy-for-chronic-back-pain-a-pilot-randomized-controlled-trial-2021-donnino-et-al.50684/

Evaluating the Therapeutic Benefits of Naltrexone in ME/CFS and Long Covid Patients: A Systematic Literature Review (P9-2.002) Manso, Karla Rodriguez; Saint-Felix, Marcos Web | DOI | Neurology | 2026 | Abstract only

One of the main premises of the article is that researchers studying this are not free to do so easily. @Learningandlistening it doesn't seem like you sufficiently considered whether the pushback on that research is justified. Not every research avenue is worth exploring. For example, it'd be...

Also, in the case of dieting, trying to will yourself to eat less is extremely difficult and usually ineffective. For the past few centuries of modern medicine, the medications that target GLP-1 did not exist. And now they do. And they're far more successful than willpower for eating less...

Yes, I think so too. I did find that Human Protein Atlas has some datasets, like this one with 27 cell types: https://www.proteinatlas.org/humanproteome/single+cell/dvp/data#cell_type_group_data For example, for neurons, it has non-missing intensity values for 8361 out of 19297 proteins. Might...

Overcoming barriers in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome research: The CureME participatory model Ella Abken, Caroline Kingdon, Sarah Tyson Abstract Research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) presents unique challenges. These stem from the...

Full recovery is possible: how women recover from myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) outside formal clinical settings Harper, Julie Aims Latest UK guidance for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) states there is no cure (NICE, 2021), leaving...

He's interested in it because of his personal experience with it. From the Wired article:

Thank you. If I understand correctly, I think you're saying specifically the word "bothered" changes it from being about symptom levels, to about how symptoms are perceived, which is more susceptible to bias unrelated to improvement. And that it'd be better to choose a more direct scale that is...