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  1. Allele

    Protest song about ME & Angel on the Water

    Someone started chopping onions in my room as I listened to that gorgeous song, @Robert 1973.
  2. Allele

    CFS part of the Finnish Lääkäripäivät 2018 conference

    sign me up, alvin :cake:
  3. Allele

    chromogranin a test

    I have no experience with this so I'm afraid cannot contribute anything useful. I do wonder though what is involved in the 5-hiaa test that causes a crash? It's always good for patients to know these things. Is your medical team looking into the other diagnoses that are associated with your...
  4. Allele

    Scientist Spotlight: Derya Unutmaz, M.D.

    Yes, a realistic and gracious example of what it's like to be a scientist in the field of ME. (Looking at you, EC and SW :cautious: )
  5. Allele

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    I think the point here is that everyone gets "harassed" on the interwebs. Everyone is subject to every possible flavor of response. Whether you interpret something as harassing or not, if you post in a public place, or have a public life in any way, you are going to get pushback. Some of it...
  6. Allele

    "Time for Unrest": ME article by Nathalie Wright

    If there were a prize for internet posts I would give it to this one, @Jonathan Edwards . :trophy@ I'd say I wish SW would see it but I fear it would just be assimilated, Borglike, into his crazy narrative.
  7. Allele

    inhalers, nebulizers, prednisone, montelukast, tricky stuff, related stuff

    Corticosteroids in even the tiniest doses are terrible for me. They send me into a very unpleasant/unbearable CNS overdrive. This is also true for most hormones. YMMV though, we all have such different responses to things. If trialling, starting at ridiculously low doses is prudent, imo.
  8. Allele

    Let's talk wheelchairs and mobility scooters

    Wow, I just saw this nifty thing on the front page of Reddit: a scooter attachment for a wheelchair, kind of the best of both worlds! Warning: it's a gif
  9. Allele

    Gaming addiction classified as disorder by WHO

    I think a real addiction (as distinct from dependency or frank absence of either) would be when the pursuit of that activity is such that it is harmful to the person and/or others in their lives. Similarly, when desire for the substance/activity supersedes the natural inclination for self-care (...
  10. Allele

    Nasobiotex L. Sakei Probiotic Powder for sinus microbiome - anyone tried it?

    Wow, thank you @Webdog for that comprehensive write-up. How fantastic you are able to breathe so much better :party: Looking forward to see if this works for me:nailbiting:
  11. Allele

    "Time for Unrest": ME article by Nathalie Wright

    @Nathalie Wright, I'm speechless at the thoroughness, clarity and blistering precision of your game-changing article. I don't know how to thank you for this, except to tell you that my awe is equal to my gratitude for this epic piece of journalism. Thank you thank you thank you from the legions...
  12. Allele

    Gaming addiction classified as disorder by WHO

    Must we pathologise everything? The likely end result must be that "human" is a pathological condition. From the way we are collectively behaving, that is not an entirely unreasonable conclusion.
  13. Allele

    Trial By Error: COPE to BMJ Open: More Details, Please!

    Pushback has to come from somewhere. It's not coming from the politicized medical-indstrial complex. Blowing open the sham of psych "science" needs to happen. I do think there is a place for certain psych ideas/applications, but they are much, much narrower than the current blanket...
  14. Allele

    Trial By Error: COPE to BMJ Open: More Details, Please!

    A bit OT here, but isn't the most obvious and elegant answer to Medically Unexplained Symptoms to engage in a whole lot more medical research to explain them? How did we land in a spot where it is presumed that all avenues have been exhausted and thus absence of evidence is equivalent to...
  15. Allele

    Centre for Welfare Reform: "Deleted BBC News Item on Unum"

    There actually is conspiracy. Conglomerates with lots of power and money regularly pull strings like this, and then call those who notice it and/or object "conspiracy theorists". N.B. The term was coined by the CIA for the express purpose of discrediting people who were paying attention to...
  16. Allele

    Public Sessions Just Recriminalized Medical Cannabis

    Yep, you have both IDed two of sessions' puppetmasters, @Luther Blissett and @James . Also to benefit are his for-profit prison friends...
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