I wanted to add that the strong scene where she has to be lifted to the ground from her wheelchair by Omar
was intended I think to illustrate to the audience what PEM looks like, as she had just been at a loud, crowded parade/festival, which she had been able to attend (in her wheelchair) due to...
https://apnews.com/19f6bfec15a74733b40eaf0ff9162bfa
(I sure wish journos would stop calling it "pot", btw)
This old fart who doesn't even know what it is or does, has just gone against state rights and has repealed the existing (imperfect) protections against the feds raiding legal Cannabis...
I'm sorry I forgot to answer you in the other thread.
I don't recall much but I know she showed herself unable to walk, tolerate noise, light, touch. She talked about how her brain felt like it was misfiring. She showed herself unable to talk, and mentioned not being able to write her own...
I'm also not certain it is ethical to have a medical professional not of the parents' choice at the meeting that was already likely
high-tension for the parents; not to mention the medical professional doing this "evaluation" also happens to head up a clinic that also happens to be recruiting...
So much great feedback here, thank you all so much. I'm stupid tired right now so can't reply just yet--just wanted to thank you all for chiming in. I have questions, maybe tomorrow.
The problem is the more we respond to her TED talk, the more she and they get to say "See? I was right! I was right! See the crazy loons coming out of the woodwork like I said they would? Pay no attention to the content of their harping, they're lunatics with an agenda. We're such brave...
The reason it might be useful to try both of these now is bc the landscape is entirely more fertile at this moment. The momentum is building in a way that is adding credibility to us as a patient group and disease, as well as making it "safe", and even possibly "hot" for journalists to pick this...
Haha, that I did! She does not go into it much iirc other than mentioning the newer CDC name is stupid and misleading (paraphrasing,
maybe someone with a better memory can chime in.) I think greater focus on that is to come.
This site uses cookies to help personalise content, tailor your experience and to keep you logged in if you register.
By continuing to use this site, you are consenting to our use of cookies.