Also on the BBC website -
BBC News: Covid-19 vaccine: Allergy warning over new jab
https://www.bbc.co.uk/news/health-55244122
People with a history of significant allergic reactions should not have the new Covid jab, regulators say.
Merged thread
Open Medicine Foundation: New OMF Funded Research Paper
https://www.omf.ngo/2020/08/15/new-omf-funded-research-paper/
August 15, 2020
From the Desk of Jonas Bergquist, MD, PhD
Uppsala University
Open Medicine Foundation (OMF) is pleased to share the published results of an...
25% ME Group stance on exercise
https://25megroup.org/25-me-group-stance-on-exercise
https://25megroup.org/wp-content/uploads/2020/08/25-ME-Group-stance-on-exercise.pdf
We are the 25% ME Group Charity, the only charity concerned specifically with the needs of those most severely affected by...
MEA: Real People. Real Illness. ME Awareness Month 2020.
ME/CFS affects the lives of over 265,000 people in the UK alone. The ME Association put together this video, with the help of real people with ME, to show the different types of people suffering with ME.
Merged thread
Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?
https://valerieeliotsmith.com/2020/05/05/covid-19-nice-and-me-towards-litigation/
May 5, 2020
On 18 March 2020, I tweeted this:
“#coronavirus is ongoing international emergency. #MyalgicEncephalomyelitis has been...
Merged thread
MEA: Fundraising: University of Oxford – Understanding the causes of ME/CFS | 14 April 2020
https://www.meassociation.org.uk/2020/04/fundraising-university-of-oxford-understanding-the-causes-of-me-cfs-14-april-2020/
Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is a...
A life Hidden: Life in Lockdown: What Matters When All Is Lost
by Naomi Whittingham
https://alifehidden.com/2020/04/09/lockdown/
On the eve of 2020, in New Year Reflections, I looked back on a difficult 2019 and asked: “What might I be called upon to face this year?” I could not have...
From Invest in ME Research: IIMEC15 Conference News - COVID-19
A statement from Invest in ME Research regarding the International ME Conference Week events in London in May 2020.
http://investinme.org//IIMEC15-news-Corona.shtml
A statement from Invest in ME Research regarding the...
25% ME Group: 25 year anniversary of the 25% ME Group
https://25megroup.org/25-year-anniversary-of-the-25-me-group
by Simon Lawrence
This year marks the 25 year anniversary of the 25% ME Group, the only charity concerned specifically with the needs of the severely affected.
Further details –...
Merged thread
MEAction UK: Med-Ed event about ME in London! Invite your healthcare professionals
https://www.meaction.net/event/diagnosis-management-and-care-of-me-at-the-lshtm-medical-education-event/
DIAGNOSIS, MANAGEMENT AND CARE OF ME AT THE LSHTM – MEDICAL EDUCATION EVENT
APRIL 01, 2020...
25% ME Group on the Coronavirus
https://25megroup.org/download/1796/?v=3226
re Coronavirus and members of the 25% ME Group, Severe ME charity
Message from Dr Nigel Speight, Medical Advisor to 25% ME Group
https://25megroup.org/patrons-trustees-advisers
I have been asked to give some medical...
(Not about ME but may be of interest}
The Guardian: DWP accused of offering disabled people 'take it or leave it' benefits
https://www.theguardian.com/society/2020/mar/02/dwp-accused-of-offering-disabled-people-take-it-or-leave-it-benefits
Lower value ‘deals’ allegedly offered to vulnerable...
Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal their daily struggle with the crippling condition...
When Coping Is Too Much
https://alifehidden.com/2020/02/25/when-coping-is-too-much/
by Naomi Whittingham
Life has been painful, of late.
Circumstances have brought a profound awareness of my limitations. The ongoing serious illness of someone I love. The approaching first anniversary of...
Edinburgh News: Edinburgh SNP councillor Ian Campbell stands down for health reasons
https://www.edinburghnews.scotsman.com/news/politics/edinburgh-snp-councillor-ian-campbell-stands-down-health-reasons-1886039
Edinburgh SNP councillor Ian Campbell has announced he is resigning for health...
From the ME Association:
Coronavirus infection and ME/CFS by Dr Charles Shepherd
https://www.meassociation.org.uk/2020/02/coronavirus-infection-and-me-cfs-11-february-2020/
"The chances of someone with ME/CFS contracting this new strain of coronavirus, or even coming into contact with someone...
Trial By Error: My Letter to One of Mahana’s Gastroenterology Advisors
http://www.virology.ws/2020/02/05/trial-by-error-my-letter-to-one-of-mahanas-gastroenterology-advisors/
5 February 2020
By David Tuller, DrPH
On its website, Mahana Therapeutics has listed sixteen gastroenterology and...
Merged thread
Dr Sarah Myhill: Update on Dr Myhill's complaint to the GMC about the PACE authors
https://www.drmyhill.co.uk/wiki/My_Complaint_to_the_GMC_about_the_PACE_authors
20 JANUARY 2020 UPDATE AND SUMMARY OF EVENTS SO FAR
I complained about the PACE authors to the GMC
After much time...
I came across this document on the 25% ME Group website and thought it might be of some use / help / interest to others.
From the 25% ME Group website - Diagnostic Tests 4 Myalgic Encephalomyelitis
https://25megroup.org/download/1796/?v=3159
This is a summary of a highly detailed, sourced...
MEA Website Survey: Why are we asking about genetics research into ME/CFS? | 06 January 2020
https://www.meassociation.org.uk/2020/01/mea-website-survey-why-are-we-asking-about-genetics-research-into-me-cfs-06-january-2020/
Dr Charles Shepherd, Hon. Medical Adviser, ME Association.
The ME...
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