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    COVID-19 vaccine: UK regulators warn people with history of 'significant' allergic reactions not to have Pfizer/BioNTech jab

    Also on the BBC website - BBC News: Covid-19 vaccine: Allergy warning over new jab https://www.bbc.co.uk/news/health-55244122 People with a history of significant allergic reactions should not have the new Covid jab, regulators say.
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    Autoantibodies to Beta-Adrenergic and Muscarinic cholinergic receptor in ME patients - Bynke, Bergquist et al -2020

    Merged thread Open Medicine Foundation: New OMF Funded Research Paper https://www.omf.ngo/2020/08/15/new-omf-funded-research-paper/ August 15, 2020 From the Desk of Jonas Bergquist, MD, PhD Uppsala University Open Medicine Foundation (OMF) is pleased to share the published results of an...
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    25% M.E. Group

    25% ME Group stance on exercise https://25megroup.org/25-me-group-stance-on-exercise https://25megroup.org/wp-content/uploads/2020/08/25-ME-Group-stance-on-exercise.pdf We are the 25% ME Group Charity, the only charity concerned specifically with the needs of those most severely affected by...
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    MEA: Real People. Real Illness. ME Awareness Month 2020.

    MEA: Real People. Real Illness. ME Awareness Month 2020. ME/CFS affects the lives of over 265,000 people in the UK alone. The ME Association put together this video, with the help of real people with ME, to show the different types of people suffering with ME.
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    Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation?

    Merged thread Valerie Eliot Smith: COVID-19, NICE and ME: towards litigation? https://valerieeliotsmith.com/2020/05/05/covid-19-nice-and-me-towards-litigation/ May 5, 2020 On 18 March 2020, I tweeted this: “#coronavirus is ongoing international emergency. #MyalgicEncephalomyelitis has been...
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    Dr Karl Morten - UK researcher based at Oxford University

    Merged thread MEA: Fundraising: University of Oxford – Understanding the causes of ME/CFS | 14 April 2020 https://www.meassociation.org.uk/2020/04/fundraising-university-of-oxford-understanding-the-causes-of-me-cfs-14-april-2020/ Myalgic Encephalomyelitis/Chronic Fatigue Syndrome is a...
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    A Life Hidden - Blog posts by Naomi Whittingham

    A life Hidden: Life in Lockdown: What Matters When All Is Lost by Naomi Whittingham https://alifehidden.com/2020/04/09/lockdown/ On the eve of 2020, in New Year Reflections, I looked back on a difficult 2019 and asked: “What might I be called upon to face this year?” I could not have...
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    Invest in ME: International ME conference week, May 2020

    From Invest in ME Research: IIMEC15 Conference News - COVID-19 A statement from Invest in ME Research regarding the International ME Conference Week events in London in May 2020. http://investinme.org//IIMEC15-news-Corona.shtml A statement from Invest in ME Research regarding the...
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    25% ME Group: 25 year anniversary of the 25% ME Group

    25% ME Group: 25 year anniversary of the 25% ME Group https://25megroup.org/25-year-anniversary-of-the-25-me-group by Simon Lawrence This year marks the 25 year anniversary of the 25% ME Group, the only charity concerned specifically with the needs of the severely affected. Further details –...
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    MEAction: INVITE YOUR DOCTOR TO LEARN ABOUT ME – MEDICAL EDUCATION EVENT IN LONDON, 1st April 2020

    Merged thread MEAction UK: Med-Ed event about ME in London! Invite your healthcare professionals https://www.meaction.net/event/diagnosis-management-and-care-of-me-at-the-lshtm-medical-education-event/ DIAGNOSIS, MANAGEMENT AND CARE OF ME AT THE LSHTM – MEDICAL EDUCATION EVENT APRIL 01, 2020...
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    Coronavirus: Advice from ME organisations

    25% ME Group on the Coronavirus https://25megroup.org/download/1796/?v=3226 re Coronavirus and members of the 25% ME Group, Severe ME charity Message from Dr Nigel Speight, Medical Advisor to 25% ME Group https://25megroup.org/patrons-trustees-advisers I have been asked to give some medical...
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    The Guardian: DWP accused of offering disabled people 'take it or leave it' benefits

    (Not about ME but may be of interest} The Guardian: DWP accused of offering disabled people 'take it or leave it' benefits https://www.theguardian.com/society/2020/mar/02/dwp-accused-of-offering-disabled-people-take-it-or-leave-it-benefits Lower value ‘deals’ allegedly offered to vulnerable...
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    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal their daily struggle with the crippling condition...
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    A Life Hidden - Blog posts by Naomi Whittingham

    When Coping Is Too Much https://alifehidden.com/2020/02/25/when-coping-is-too-much/ by Naomi Whittingham Life has been painful, of late. Circumstances have brought a profound awareness of my limitations. The ongoing serious illness of someone I love. The approaching first anniversary of...
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    Edinburgh News: Edinburgh SNP councillor Ian Campbell stands down for health reasons

    Edinburgh News: Edinburgh SNP councillor Ian Campbell stands down for health reasons https://www.edinburghnews.scotsman.com/news/politics/edinburgh-snp-councillor-ian-campbell-stands-down-health-reasons-1886039 Edinburgh SNP councillor Ian Campbell has announced he is resigning for health...
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    Coronavirus: Advice from ME organisations

    From the ME Association: Coronavirus infection and ME/CFS by Dr Charles Shepherd https://www.meassociation.org.uk/2020/02/coronavirus-infection-and-me-cfs-11-february-2020/ "The chances of someone with ME/CFS contracting this new strain of coronavirus, or even coming into contact with someone...
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    Trial By Error: CBT and Irritable Bowel Syndrome

    Trial By Error: My Letter to One of Mahana’s Gastroenterology Advisors http://www.virology.ws/2020/02/05/trial-by-error-my-letter-to-one-of-mahanas-gastroenterology-advisors/ 5 February 2020 By David Tuller, DrPH On its website, Mahana Therapeutics has listed sixteen gastroenterology and...
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    Dr Myhill’s complaint to GMC about PACE authors.

    Merged thread Dr Sarah Myhill: Update on Dr Myhill's complaint to the GMC about the PACE authors https://www.drmyhill.co.uk/wiki/My_Complaint_to_the_GMC_about_the_PACE_authors 20 JANUARY 2020 UPDATE AND SUMMARY OF EVENTS SO FAR I complained about the PACE authors to the GMC After much time...
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    From the 25% ME Group website - Diagnostic Tests 4 Myalgic Encephalomyelitis

    I came across this document on the 25% ME Group website and thought it might be of some use / help / interest to others. From the 25% ME Group website - Diagnostic Tests 4 Myalgic Encephalomyelitis https://25megroup.org/download/1796/?v=3159 This is a summary of a highly detailed, sourced...
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    UK Genome Wide Association Study (GWAS) project: indicate your support and/or willingness to take part and/or join the mailing list

    MEA Website Survey: Why are we asking about genetics research into ME/CFS? | 06 January 2020 https://www.meassociation.org.uk/2020/01/mea-website-survey-why-are-we-asking-about-genetics-research-into-me-cfs-06-january-2020/ Dr Charles Shepherd, Hon. Medical Adviser, ME Association. The ME...
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