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Trial By Error: Shaky Evidence for Signs of Functional Neurological Disorders http://www.virology.ws/2019/12/30/trial-by-error-shaky-evidence-for-signs-of-functional-neurological-disorders/ 30 December 2019 By David Tuller, DrPH One of my goals next year is to write more about so-called...

Eastern Daily Press: ME sufferer was told by doctors condition was 'in her head' https://www.edp24.co.uk/news/health/emily-canwood-from-fulmodeston-on-suffering-from-me-1-6440557 A woman left bedbound with an incurable illness revealed her fight simply to be believed. Emily Canwood, 24...

Lancashire Telegraph: Realities of living with ME this Christmas https://www.lancashiretelegraph.co.uk/news/18126222.realities-living-christmas/ By Aban Quaynor Chief Reporter A MUM-of-two has revealed the realities of living with a misunderstood, debilitating illness this Christmas. Gemma...

Merged thread Dr Ron Davis shares an update on research at the OMF-funded ME/CFS Collaborative Research Center at the Stanford Genome Technology Center. He shares holiday greetings and hope with the entire ME/CFS community.

Merged thread https://www.omf.ngo/2019/12/13/2019-year-end-message-stanford/ An End of Year Message from Ronald W. Davis, PhD, and Janet L. Dafoe, PhD We have accomplished so much with the amazing donations generously given to OMF and we are grateful. We have collected huge amounts of data in...

A letter sent to The Grace Charity for M.E. (www.thegracecharityforme.org) from NHS Digital (Data Co-Ordination Board) confirms that the NHS still mandates ME as a neurological illness – see https://www.thegracecharityforme.org/wp-content/uploads/2019/11/Myalgic-Encephalomyelitis_letter.pdf

Congratulations to Naomi – A Life Hidden – the First Year https://alifehidden.com/2019/11/25/first-year/ by Naomi Whittingham A Life Hidden is a year old this week. This milestone is an opportunity to look back on the year that has passed, and also to thank everyone who has supported my...

ME Association: “Get Well Soon” – Guest Blog by Louise Shepherd https://www.meassociation.org.uk/2019/11/get-well-soon-guest-blog-by-louise-shepherd-22-november-2019/ I was recently sorting through some of my belongs and came across my “Keepsake box.” As I dug my way through it, I found a...

Low-dose naltrexone in the treatment of myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) https://www.tandfonline.com/doi/full/10.1080/21641846.2019.1692770 Olli Polo, Pia Pesonen & Essi Tuominen ABSTRACT Background: Myalgic encephalomyelitis (ME)/chronic fatigue syndrome (CFS) is...

ME Association: Speak Up for M.E. in the General Election: Contact Your Candidates!| 19 November 2019 https://www.meassociation.org.uk/2019/11/speak-up-for-m-e-in-the-general-election-contact-your-candidates-19-november-2019/ Dr Charles Shepherd, Hon. Medical Adviser, ME Association. This...

DanvilleSanRamon.com : Tri-Valley Hero: Vidhima Shetty, sharing others' stories https://www.danvillesanramon.com/news/2019/11/17/tri-valley-hero-vidhima-shetty-sharing-others-stories Teen author, journalist from San Ramon receives Rising Star award by Dolores Fox Ciardelli Vidhima Shetty...

Now mentioned on the ME Research UK website - ME Research UK: Dialogues for ME/CFS http://www.meresearch.org.uk/information/dialogues/ This is a collection of videos created by Natalie Boulton, funded by an award from the Wellcome Public Engagement Fund. The full series will cover different...

MEA Summary Review: Low Dose Naltrexone (LDN) in ME/CFS | 14 November 2019 https://www.meassociation.org.uk/2019/11/mea-summary-review-low-dose-naltrexone-ldn-in-me-cfs-14-november-2019/ Charlotte Stephens, Research Correspondent, ME Association. A recent publication by researchers from...

Part 3 Beneath the Surface, Part 3 By Naomi Whittingham https://alifehidden.com/2019/10/28/beneath-surface-3/ The third and final part of a series analysing the British Association of CFS/ME (BACME) guidelines on severe ME. I have chosen to write extensively on this subject, as the...

Trial By Error: Where Is Bristol’s Review of Professor Crawley’s Ethics Missteps? http://www.virology.ws/2019/10/02/trial-by-error-where-is-bristols-review-of-professor-crawleys-ethics-missteps/ 2 October 2019 By David Tuller, DrPH I have repeatedly raised concerns about Professor Esther...

OMF Community Symposium on the Molecular Basis of ME/CFS 2019 The individual talks are now available on YouTube – https://www.youtube.com/playlist?list=PLl4AfLZNZEQPiRL9zpis8LtfaHBEMy4jS

Part 2 A Life Hidden: Beneath the Surface, Part 2 By Naomi Whittingham https://alifehidden.com/2019/10/02/beneath-surface-2/ The second of a three part series analysing the British Association of CFS/ME (BACME) guidelines on severe ME. I have chosen to write extensively on this subject, as...

Merged thread Dr Sarah Myhill: My Complaint to the GMC about the PACE authors https://www.drmyhill.co.uk/wiki/My_Complaint_to_the_GMC_about_the_PACE_authors 1 OCTOBER 2019 - UPDATE - ICO SLAPS DECISION NOTICE ON GMC! You can download the full Signed Decision Notice here - ICO Full Signed...

Dead but it won’t lie down: The myth that ME (Myalgic Encephalomyelitis) = MUS (Medically Unexplained Symptoms). http://www.oneagleswings.me.uk/dead-but-it-wont-lie-down/ (I did not write this article, but the author (who wishes to remain anonymous) has given me permission to put it on my...

OMF: An Exciting Week for Advancing ME/CFS Research https://www.omf.ngo/2019/09/16/an-exciting-week-for-advancing-me-cfs-research/ Linda Tannenbaum I’m pleased to share with the OMF community that the OMF sponsored Stanford ME/CFS Working Group and Third Annual Community Symposium on the...