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    ME Association: MPs demand more biomedical research for cruel ‘death sentence’ disease

    MPs demand more biomedical research for cruel ‘death sentence’ disease | 22 June 2018 http://www.meassociation.org.uk/2018/06/mps-demand-more-biomedical-research-funding-for-cruel-death-sentence-disease-22-june-2018/ ME Association Press Release, By John Siddle, 21 June 2018. MPs demanded...
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    Scottish MP Carol Monaghan and her work for people with ME/CFS

    Carol Monaghan: We must change perceptions of the debilitating illness ME https://www.politicshome.com/news/uk/health-and-care/illnesstreatments/house/house-magazine/96009/carol-monaghan-we-must-change With an estimated 250,000 people in the UK affected, Myalgic Encephalomyelitis (ME) is...
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    ME Association: The 2018 Invest in ME Research Conference Report – Dr Charles Shepherd

    http://www.meassociation.org.uk/2018/06/the-2018-invest-in-me-research-conference-report-dr-charles-shepherd-14-june-2018/ The 2018 Invest in ME Research Conference Report – Dr Charles Shepherd | 14 June 2018 Dr Charles Shepherd provides a summary report of the 13th Invest in ME Research...
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    David Tuller: Trial By Error: A Letter to Health Officials About BMJ’s Lax Editorial Standards

    Trial By Error: A Letter to Health Officials About BMJ’s Lax Editorial Standards http://www.virology.ws/2018/06/06/trial-by-error-an/ 6 June 2018 By David Tuller, DrPH I am not sure what is going on at BMJ and why editors there seem incapable of acknowledging their flawed decision-making...
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    The Canary: Judges just forced the DWP to review the benefit claims of countless people

    Judges just forced the DWP to review the benefit claims of countless disabled people https://www.thecanary.co/uk/2018/05/31/judges-just-forced-the-dwp-to-review-the-benefit-claims-of-countless-disabled-people/ A panel of judges has backed the Department for Work and Pensions (DWP) into a...
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    What Doctors Don’t Tell You: ME: the cure that went away

    What Doctors Don’t Tell You: ME: the cure that went away https://www.wddty.com/magazine/2018/june/me-the-cure-that-went-away.html Bryan Hubbard June 2018 Chronic fatigue and ME could be dramatically improved with exercise and therapy, a landmark study discovered. But it was bad science, and...
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    Merryn Crofts - media and inquest

    The ME Association and Press Coverage of Merryn Crofts Inquest by Dr Charles Shepherd | 28 May 2018 http://www.meassociation.org.uk/2018/05/the-me-association-and-press-coverage-of-merryn-crofts-inquest-by-dr-charles-shepherd-28-may-2018/ Dr Charles Shepherd, Hon. Medical Adviser, ME...
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    ME Association: Government Inquiry into support for children and young people with special educational needs and disabilities (SEND)

    Government Inquiry into support for children and young people with special educational needs and disabilities (SEND) | 23 May 2018 http://www.meassociation.org.uk/2018/05/government-inquiry-send-23-may-2018/ The Education Committee at the House of Commons is holding an inquiry into the...
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    The Journal (Ireland): Column: 'We are ill. We are not faking this illness. It is not in our heads'

    The Journal (Ireland): Column: 'We are ill. We are not faking this illness. It is not in our heads' http://www.thejournal.ie/readme/column-we-are-ill-we-are-not-faking-this-illness-it-is-not-in-our-heads-4000345-May2018/ Before the illness struck me twenty years ago next month, I was a...
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    Janet Dafoe - The Whitney Plea

    Janet Dafoe - The Whitney Plea Janet Dafoe has shared a special plea from her son Whitney, and she's asking for your help to amplify his voice as part of the #MillionsMissing day of action this Saturday...
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    ME Association: ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP

    ‘ME Awareness Week 2018’ New Early Day Motion Launched by Carol Monaghan MP | 09 May 2018 http://www.meassociation.org.uk/2018/05/me-awareness-week-2018-new-early-day-motion-launched-by-carol-monaghan-mp-09-may-2018/ An early day motion has been launched by Carol Monaghan MP, and she needs...
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    BBC Newsbeat: M.E. And Me - documentary available from Tuesday 8th May, 6am

    It is now on YouTube at -
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    BBC: Chronic fatigue syndrome treatment 'should be withdrawn'

    Chronic fatigue syndrome treatment 'should be withdrawn' http://www.bbc.co.uk/news/newsbeat-44004882# A common treatment for chronic fatigue syndrome should be scrapped immediately, according to one of the UK's leading experts in the illness. Dr Charles Shepherd says graded exercise therapy...
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    ME Association - ME Awareness Week: ‘Missing behind closed curtains for 12 years’ – Woman describes living with M.E.

    ME Awareness Week: ‘Missing behind closed curtains for 12 years’ – Woman describes living with M.E. http://www.meassociation.org.uk/2018/05/me-awareness-week-missing-behind-closed-curtains-for-12-years-woman-describes-living-with-m-e-07-may-2018/ Geraldine Scott, Eastern Daily Press, 6th May...
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    The Irish News: Hope for ME: Co Down woman's campaign for the thousands living with chronic fatigue syndrome

    Hope for ME: Co Down woman's campaign for the thousands living with chronic fatigue syndrome http://www.irishnews.com/lifestyle/2018/05/02/news/campaigning-for-hope-for-the-thousands-living-with-debilitating-condition-me-1318377/ Co Down mother Joan McParland found herself bed bound due to the...
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    David Tuller - Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website

    Trial By Error: The Shopping Bag Study; and New York State’s Revamped Website 24 April 2018 By David Tuller, DrPH http://www.virology.ws/2018/04/24/trial-by-error-the-shopping-bag-study-and-new-york-states-revamped-website/ And now, from our good friends in the psychology department at the...
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    ME Association - Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes - 21 April 2018

    ME Association - Forward ME – Meeting with Dr Diane O’Leary about possible WHO coding changes - 21 April 2018 http://www.meassociation.org.uk/2018/04/forward-me-meeting-with-dr-diane-oleary-about-possible-who-coding-changes-21-april-2018/ Forward ME Notes of meeting held on Wednesday 28 March...
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    Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Systemic Exertion Intolerance Disease: Three Distinct Clinical Entities; 2018; Twisk

    Myalgic Encephalomyelitis, Chronic Fatigue Syndrome, and Systemic Exertion Intolerance Disease: Three Distinct Clinical Entities Frank N.M. Twisk http://www.mdpi.com/2078-1547/9/1/19
    • Eagles
    • Thread
    • 2018 criteria diagnosis me/cfs paper twisk
    • Replies: 19
    • Forum: ME/CFS research
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    I Am Stuck In The Prison That Is ME

    I Am Stuck In The Prison That Is ME Ellie Bunce https://www.huffingtonpost.co.uk/entry/i-am-stuck-in-the-prison-that-is-me_uk_5acf4ab8e4b0648767777931
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    David Tuller: Trial By Error: My Australian Tour, Continued

    Trial By Error: My Australian Tour, Continued 11 APRIL 2018 By David Tuller, DrPH http://www.virology.ws/2018/04/11/trial-by-error-my-australian-tour-continued/
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