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  1. TiredSam

    ME Association monthly poll: Effective forms of pain management

    Lying down and waiting 12-48 hours until it stops. Nothing else works.
  2. TiredSam

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    Well I was being a bit silly. But just the fact that it's another pretty woman looking tired at her desk is annoying enough.
  3. TiredSam

    Petition: Remove CBT/GET from NICE guidelines NOW (ALL COUNTRIES can sign)

    The photo is of a doctor doing a facepalm, which sends entirely the wrong message. What's she thinking - "Oh no, not another ME patient!"
  4. TiredSam

    (Stanford, California, USA) Recruiting: Brain MRI and Immune Profiling CFS

    They need to take a good long look in the mirror.
  5. TiredSam

    (Stanford, California, USA) Recruiting: Brain MRI and Immune Profiling CFS

    I hope when they find a cure it isn't only for right handed people.
  6. TiredSam

    Celebrities with M.E | WORLDS HOTTEST PEPPER video

    Would I be right in assuming that your friend is extremely proud of himself?
  7. TiredSam

    Interviews on ME on Radio Solent

    Hi and welcome :)
  8. TiredSam

    Gary Burgess talking ME/CFS BBC Radio 5 live Wed 1pm

    If you're not happy about a moderating decision please PM the moderation team to discuss it, rather than complaining publicly in breach of rule 9. The subject of this thread is: Gary Burgess talking ME/CFS BBC Radio 5 live Wed 1pm Any further off-topic posts will be deleted.
  9. TiredSam

    From the NHS : OSCAR - Online Support and Clinical Advice Resource

    Well thank goodness it's possible to replace a negative self-fullfilling prophecy with a positive one: I first read about positive self-fullfilling prophecies from this book, which was kindly recommended to me by anonymous and unsolicited letter in 1983: As an open-minded and optimistic...
  10. TiredSam

    Analysis of minister’s response in Westminster Hall PACE debate

    This bothers me every time I read it. I am a mild sufferer, by which I mean life-changingly ill but not completely housebound. GET and CBT should not be recommended for mild sufferers, because it will just make them moderate and then severe. If we are talking about ME/CFS then GET does not offer...
  11. TiredSam

    How to follow up on the Carol Monaghan debate in Westminster

    30 years has a Hillsborough-like ring to it. Perhaps now it's our turn?
  12. TiredSam

    Norway and prof. Gundersen: PACE-debate in newspaper Morgenbladet

    You mean inviting all his colleagues to join?
  13. TiredSam

    Norway and prof. Gundersen: PACE-debate in newspaper Morgenbladet

    As far as I'm aware he hasn't applied to join us, but if he did I would usher him politely in.
  14. TiredSam

    Tues 20 Feb | UK parliamentary debate: PACE trial and its effect on people with ME - Carol Monaghan, MP

    He's not really talking to her, but making a vacuous statement to everyone else, saying "read it before you criticize it", knowing that most people won't or can't. He's been patronising the wrong 17 million people for years, and he's showing no signs of stopping, or realising that we have been...
  15. TiredSam

    BBC video, 'when mental health gets physical'

    I watched the video in the OP for less than thirty seconds. Up to the point where the narrator, who was gabbling on, said "mental health has physical symptoms too" and then raced on to her next point. Let's press pause right there. Let's think about what she just said, and how many ways that...
  16. TiredSam

    Tues 20 Feb | UK parliamentary debate: PACE trial and its effect on people with ME - Carol Monaghan, MP

    It's also another way of saying "You only have to read it and you'll understand why we are right. What? You lack the scientific background to read it? Here, let me explain it to you ..." And now she can walk the walk.
  17. TiredSam

    Tues 20 Feb | UK parliamentary debate: PACE trial and its effect on people with ME - Carol Monaghan, MP

    This is Michael Sharpe's snooty way of saying "Hey everyone, she hasn't even read it!" Which he cannot possibly know. Didn't she say in the debate that her training was in science? Of course she's bloody read it. If that ill-informed catty remark is the best you've got Mr Sharpe, you need change...
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