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  1. TiredSam

    New German guideline for ME published today

    Something about sunbeds actually.
  2. TiredSam

    New German guideline for ME published today

    Thanks. To be honest, the woman next to me did it just as quickly. She started to stand up, so I jumped up and barged her out of the way to hand my paper in first. I would have been devastated if she'd beaten me.
  3. TiredSam

    New German guideline for ME published today

    You can count me. I will be German soon. Brexit and all that. Passed my language test with 96%, passed my citizenship with 100% and broke the record at the test centre. For the citizenship test we had 2 hours, but it was on a Saturday afternoon and the examiner, wearing a Hoffenheim scarf and...
  4. TiredSam

    Guideline "Tiredness" by DEGAM

    They are a very mixed bunch, and just making it to the meeting is too much for some of them. A couple of them have been to fatigatio conferences. Here's a bit of local activism when a father decided to get up and do something...
  5. TiredSam

    Guideline "Tiredness" by DEGAM

    Here's a link to my blog: http://forums.phoenixrising.me/index.php?threads/my-trip-to-the-charite-in-berlin.44474/ List of all parts of the blog is on page 4 of that thread.
  6. TiredSam

    New German guideline for ME published today

    http://forums.phoenixrising.me/index.php?threads/blog-on-a-said-to-be-bad-official-german-report-on-me-cfs-german-with-link-to-english-translation.43277/
  7. TiredSam

    Guideline "Tiredness" by DEGAM

    They say it's completely shit. Some of them are unable to work and have finally decided to stop fighting and accepted a diagnosis of depression and been on a rehab (Kur) just to get half a pension. The woman from the film "In Engen Grenzen" is in my group, the Kur nearly killed her. There's the...
  8. TiredSam

    New German guideline for ME published today

    It actually backfired horrendously and resulted in the Robert Koch institute report.
  9. TiredSam

    New German guideline for ME published today

    I'll translate anything you write into English for you.
  10. TiredSam

    New German guideline for ME published today

    DEGAM werden sich wohl was gedacht haben.
  11. TiredSam

    New German guideline for ME published today

    Nothing to see here, move along. I will resign from fatigatio, as mentioned on the other thread about this. Fortunately I am not currently affected by this because I am in hiding from the health authorities, don't claim anything and never go to my doctor. It's like hiding from the Spanish...
  12. TiredSam

    Guideline "Tiredness" by DEGAM

    By the way, for our English-speaking readers, "zum Fremdschämen" means to be embarassed on someone else's behalf, like when your husband farts in company or something. The head of Fatigatio has just behaved in an equivalent manner.
  13. TiredSam

    Guideline "Tiredness" by DEGAM

    I am way behind on my forum reading, and have only just seen this. I too must face the sad realisation that I am the German equivalent of an AfME member. My main contact with other sufferers is this forum (S4ME). In Germany Fatigatio was the first society I found, so I joined it. I go to their...
  14. TiredSam

    Patient Engagement In Research: Why Do We Do It At All?

    This is interesting. I'm sure it couldn't possibly be because it will be easier to dismiss the views of a lay member speaking on their own behalf than those of a patient representative speaking on behalf of a group. Now that we have lay members, where are the patient representatives supposed to...
  15. TiredSam

    Activity diaries

    I've been keeping one for about 2 years, I still fill it in every day out of habit. Really easy and simple. It has helped me to define a rank order of activities and how long I can safely spend on each one (shopping, kitchen work, playing music, and walking are things I don't do at all any more...
  16. TiredSam

    Stanford ME/CFS Initiative: PEM Avoidance Toolkit

    I think this is an excellent document for new patients in the mild category who haven't made themselves much worse yet by not knowing how to pace. The document refers to tracking HR twice, and also recommends support groups, educational literature and going on the internet, where those...
  17. TiredSam

    Oscar nominations now being announced - will Unrest be among them?

    Damn. I was looking forward to seeing @Valentijn on the red carpet in a posh frock :(
  18. TiredSam

    Why we victim blame -- and why Larry Nassar shows we shouldn't

    Couldn't help being reminded of someone when I read this.
  19. TiredSam

    Henrick Vogt: "intense negativity spread by individuals/CFS groups/researchers" partly to blame for family's suicide

    I never thought the depths a member of the BPS brigade could stoop to would leave me speechless. Congratulations Mr Vogt, you've done it. I have absolutely nothing to say.
  20. TiredSam

    "Time for Unrest": ME article by Nathalie Wright

    I once met a young female bricklayer who was told by a colleague "You've got my son's job". I didn't realise people made the same kind of comment at Uni, I assumed it was just bricklayers, so might I take the opportunity to publicly apologize to any bricklayers reading for my unwarranted and...
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