Search results

The radiation theory doesn't look good to me, but I mainly dropped by to say 'welcome to the forum' to @rachel76 - hope that you're finding the discussion useful. Always good to get someone new joining in.

From their correspondence, it looks like 'probably' is standard for moderate quality evidence in Cochrane reviews: "Some practical issues will arise, e.g. which term shall we use to reflect the grading? Usually “probably” is used for moderate level evidence, while “may” is used for low level...

Their section on selective reporting bias is BS. Truly shameful that Cochrane let them publish this.

Where did you see that? When I ctrl+f it doesn't come up.

Not for the contested one, where it seems like Larun got her way: "There is moderate‐certainty evidence that exercise therapy was probably more effective than control in reducing fatigue at end of treatment". And also "1.8 Self‐perceived changes in overall health There is moderate‐certainty...

Thanks for all this Michiel - I haven't been able to read things through yet but I'm looking forward to doing so and seeing what you've dug up.

I have to admit that I don't understand the problem here or what it would be useful to do. I get the impression it might take years of work to really understand it too... any volunteers?

That blog was also posted in this thread : https://www.s4me.info/threads/a-messiah-in-the-norwegian-health-system-lightning-process-and-the-norwegian-medical-establishment-blogpost-by-nina-e-steinkopf-2019.11210/page-2#post-205136 It's relevent to this thread too, so maybe worth having it...

The NPHI looks like an absolute disaster for patients. To me, it seems that it's allowed some quacks to become their 'CFS experts', and now the whole system is committed to standing up for them while pretending that they're defending science in the face of anti-science activists.

Standards seem to be going down.

Sorry - had to go back and edit to destroy your joke. I'm so bad!

https://www.bristol.ac.uk/graduation/honorary-degrees/honorary-graduates-2019/fiona-fox/ That's pretty hilarious given Fox's role in Bristol's SMILE trial (and of course PACE, and the general smearing of CFS patients). Adam Finn was one of the organisers of the conference that decided Crawley...

It probably made no difference, but imo it's worth not giving any advance warning to powerful figures if you think that there's going to be a media story critical of them, especially at an institution like the BBC.

Thanks for all of your work summarising this stuff Michiel. Thanks for explaining that. So the old tool may have given them less leeway on classing certain aspects of a trial's risk of bias, but more leeway to then just ignore areas where trials had a high risk of bias? So the good news is...

You keep rightly pointing out when I've been loose with my language (I really need to be more careful), but still, the arguments about the legitimacy of seeing autism as something that should be 'treated' are very different to concerns about CBT/GET as a treatment for CFS. Actually, I suppose...

But no-one uses this classification of autism to argue that, therefore, behavioural interventions are not effective. Different diagnoses can be applied for different reasons, and with differing degrees of usefulness, so I can see how people can argue that (by the standards of much medicine) we...

Surely there's no way they'd put the interests of patients over those of their mates!

We don't even have a way of clearly identifying who has ME/CFS and who does not. At the moment I think that any attempt to argue that the evidence around possible physical causes undermines CBT/GET as a treatment will just strengthen the hand of Wessely/White/Sharpe.

If that translation is close to correct, that is an absurd thing to say. If Fink's work is of poor quality and legitimate patient concerns have been dismissed then that is an important thing to investigate in the context of this prize.

Their key innovation here seems to be not having a control group that did not received CBT/GET. I' thought I'd repost comments from the old place on results from a different CBT for cancer-fatigue trial this team did that showed no improvement in objectively measured activity levels. The rest...