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To me, those copies of correspondence indicated that Tovey wasn't asking for much of a change, and I didn't see it as indicating Cochrane had really understood all the problems with the research used to promoted exercise therapy for CFS. I would still expect any updated review from Larun to be...

Thanks for keeping an eye on that. Please let us know if you get anything new.

@Michiel Tack - As you say, the changes are pretty small and I'm not sure anyone would dispute that these sorts of changes could occur. That the 'treatment' is so ridiculous, doesn't involve real contact with the supposed 'healer'/therapist, doesn't involve promoting a model that encourages the...

Oh yeah - I hadn't even seen the 'open transcript' option.

It looks like you can only do it if you uploaded the video. This is a guide: http://titaniumhelp.fullerton.edu/m/FAQ/l/498105-how-do-i-export-the-youtube-auto-generated-captions

I guess they counted as having been randomised to receive free LP. I can see costs/benefits to either way of doing things and you can't impose perfect randomisation on people in a trial like this. Do we know if they prespecified how they'd analyse data for participants like these? In addition...

But then, you can't force people to receive the treatment they've been allocated, or to not pursue other treatments outside of the trial.

I expect correcting those words would be a lot easier than starting afresh. I need to work out how to do use this as I never really understood why I kept failing last time.

I remember reading youtube can do some auto-transcription thing, to produce subtitles... but when I tried to use this I wasted a lot of time and achieved nothing. That could show it's difficult to do, or just that I'm an idiot.

Maybe this is what Goldin was referring to in her comment about the trial not being truly 'randomized'? I'm too tired to think this through now but it did look like there was something odd with those figures and I hadn't seen people mention this before.

Can't they say that the participants were randomised to access to SMC + free LP vs SMC only? Even if some of those in SMC + free LP did not use the LP, and some in the SMC only group chose to pay for LP themselves, that's still a form of randomisation, even if it's far from ideal.

I'm not really sure what that means either. I wonder if Goldin is used to the term being used differently in another context? Ma6be she meant the participants are not from a random sample as they all volunteered (though that would be odd). The 'controlled' part of the title could be problematic...

Also, what's the point of having a 'stop criteria' if you just ignore it?

In this post: I was saying that the blog seemed to have been taken down from the NIHR site, and linked to an archived copy of it so that people could see what was originally there. Pages saved on web.archive are available there even when taken down from their original address. I'll edit that...

Do you just mean the archived page I linked to? The original page is here: https://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370

This blog seems to have been taken down? Here's a copy of it at web.archive, though it doesn't seem available at NIHR anymore. https://web.archive.org/web/20170213202259/http://www.nihr.ac.uk/blogs/doing-what-is-right-in-a-controversial-field/5370 Crawley's other NIHR blog is available here...

I'm sure we must already have discussed this, but I've not found the thread/discussion so thought that I'd risk to problem of a re-post (sorry mods). https://www.whatdotheyknow.com/request/cfs_fine_what_story_does_the_obj_2#incoming-1026066 Woolie's summary of FINE: As Woolie says, they did...

Best wishes to everyone trying to improve things. I'm sure a lot of people are doing all sorts of work behind the scenes that doesn't really get the appreciation it deserves. Sorry this didn't work out for those involved.

Just thought I should make clear that it's not like I'm really concerned by the posted tweet or anything. I can post about being annoyed by some of the tweets I see on twitter, so it could be people think I am here. I also think Kelland has shown she is terrible and that her bad work...

Yes, but that's a challenge we don't want her to take up!