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  1. Esther12

    Which Cochrane Review Group?

    Thanks for that @Peter Trewhitt - I really should have started doing that myself. I had a very vague memory of reading stuff I didn't think was good from Christopher Eccleston. A quick google showed him promoting Wessely, Knoop & PACE in a chapter on CFS...
  2. Esther12

    Wesselys Mental Health review could also replace Mental Capacity Act

    Doesn't anyone else get a pang of fear that it has been announced Wessely has been appointed to the House of Lords every time this thread is bumped?
  3. Esther12

    Which Cochrane Review Group?

    Probably what matters most to us is the caliber of the individuals with power over the group. If the people in charge had a history of standing up to powerful figures and challenging poor quality work that served the interests of researchers, that would be good news regardless of the label...
  4. Esther12

    Action for ME: Our new years resolutions

    That sounds terrible. Hazel O'Dowd and SEE ME... ffs.
  5. Esther12

    Action for ME: Our new years resolutions

    I didn't know Phil was on their board (or maybe I did, and just forgot) - no offense Phil!
  6. Esther12

    Action for ME: Our new years resolutions

    In addition to the other problems people have noted to them, and related, is that I just don't think the people at Action for ME are competent. I'd assume that they're well meaning, but easily manipulated by those who have other priorities than improving life for PwME. Even their priorities that...
  7. Esther12

    A general thread on the PACE trial!

    I wonder if the unusual patients turning up at KCL has had a wider impact on research from Wessely/Chalder over the years?
  8. Esther12

    Central sensitization: a matter of concern

    Don't most people respond to painful stimuli more when they're exhausted? I thought that it used to before falling ill, eg: stubbing my toe when run-down would seem to hurt more than at other times.
  9. Esther12

    There were not many ME/CFS research papers published in 2018 in comparison to many conditions

    Dump for me. I think that I could be using childhood slang that's thirty years out of date though. In the UK 'dumb' still has some associations with people who are unable to talk, although the US use of it is becoming more widespread.
  10. Esther12

    There were not many ME/CFS research papers published in 2018 in comparison to many conditions

    Sadly, there are still too many dump ME/CFS papers from Crawley & co to be able to keep up with.
  11. Esther12

    Surviving Ebola: A historical cohort study of Ebola mortality and survival in Sierra Leone 2014-2015 - Wing et al Dec 2018

    The references for that were [7,44–46], which didn't look to be promoting CBT/GET... I'm not sure about the coenzyme Q10 stuff either though: 7) Scott JT, Semple MG. Ebola virus disease sequelae: a challenge that is not going away [Internet]. The Lancet Infectious Diseases. 2017. pp. 470–471...
  12. Esther12

    Surviving Ebola: A historical cohort study of Ebola mortality and survival in Sierra Leone 2014-2015 - Wing et al Dec 2018

    I had been wondering if researchers looking at the ebola aftermath might turn up things that might relate to to ME/CFS. I didn't see a reference to CBT/GET. Maybe there's a growing awareness of the problems with these approaches?
  13. Esther12

    David Tuller: Trial By Error: Australian Draft Report Seeks Comment

    Wasn't Lloyd on some TV program where he was basically calling for this process to avoid re-doing the guidelines, and instead call for more widespread training? I think I can be more pessimistic than Tuller in my reading of documents like these (maybe I spend too much time comparing them to...
  14. Esther12

    David Tuller: Trial By Error: Australian Draft Report Seeks Comment

    A Tuller post on Christmas day? We must have been really good this year for Santa to work such wonders! I think I'll save this for when I open the rest of my presents.
  15. Esther12

    Patient: "The latest thinking on chronic fatigue syndrome"

    Yes, but it often seems to get misinterpreted.
  16. Esther12

    Patient: "The latest thinking on chronic fatigue syndrome"

    The 'not relieved by rest' thing is on the current CDC CFS page says: https://www.cdc.gov/me-cfs/symptoms-diagnosis/symptoms.html Is it from a part of the Fukuda criteria that keeps being misunderstood?: "is not substantially alleviated by rest" https://me-pedia.org/wiki/Fukuda_criteria
  17. Esther12

    News from Belgium

    Thanks for the summary. Interesting. It would be interesting to know how he she justified that claim.
  18. Esther12

    Patient: "The latest thinking on chronic fatigue syndrome"

    I didn't think that this was very good at all. I'm not going to pull out all the weaker bits, but thought I'd mention this bit from Shepherd: I'm not sure about this. Is specialist support really helpful for most patients? I've not seen any evidence of this. Also, there isn't any good...
  19. Esther12

    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    By weird coincidence, I just happened to stumble upon that letter myself today, as I was reading one from Wessely that came before it: http://sci-hub.tw/https://www.thelancet.com/journals/lancet/article/PIIS0140-6736(88)90028-1/fulltext?version=printerFriendly When this happened it seemed...
  20. Esther12

    Who said: 80% of ME is post-infectious

    Doesn't really sound like a solid claim for the main page on ME. Thanks for those looking into it.
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