Search results

  1. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    APPGs don’t have any actual power to DO things @ringding they are a high influence lobby group made up of MPs so are are able to use official Parliamentary routes like debates, publish their own reports, request formal meetings with ministers/officials who actually do exert power, use the...
  2. NelliePledge

    Imaging Brain Mechanisms of Functional Somatic Syndromes: Potential as a Biomarker?, 2020, Kano et al

    How does Alexithymia fit with excessive focussing on symptoms and catastrophising. Or is it a case of you’re psychologised if you don’t talk openly about your symptoms and psychologised if you do talk openly about them. Demonstration of the heads I win tails you lose mentality of this group.
  3. NelliePledge

    Coronavirus - worldwide spread and control

    I looked up on Dettol and Zoflora disinfectant websites although they haven’t yet been able to test against the new virus their products are also effective against similar viruses so there’s a good chance they will work. https://www.dettol.co.uk/about-us/understanding-coronavirus/
  4. NelliePledge

    Coronavirus - worldwide spread and control

    If loo paper runs short and you’re using the loo at home one option would be to wash with water and soap use the loo as an improvised bidet keep a plastic bottle by the loo you can fill with water to wash and rinse. You would then just need a small washable towel to dry with. ETA obviously...
  5. NelliePledge

    FINE trial patient booklet 29/04/05 Pauline Powell

    I have had jet lag arrived back in London at 8am and couldn’t stay awake to adapt to local time had to go to bed at 12 noon. I was very sleepy, I didn’t have any body pain or flu like symptoms. Nothing like ME. I possibly had a headache when I woke up at 8pm and was a bit dehydrated.
  6. NelliePledge

    #MEawarenesshour every wednesday on twitter

    The hour change in the UK is the last weekend in March
  7. NelliePledge

    Coronavirus - worldwide spread and control

    Problem solved as I’m not actually well enough today to go to the football anyway. Back to listening on local radio.
  8. NelliePledge

    Coronavirus - worldwide spread and control

    Thanks @Invisible Woman theres a meeting on Monday between the Football leagues and the government about what to do as it becomes more widespread. Possibly they will have games played in empty stadiums as is happening in Italy. So it might not be my decision after tomorrow. The next...
  9. NelliePledge

    Coronavirus - worldwide spread and control

    I’ve got tea tree wet wipes as they’re easy to carry round also they haven’t sold out. I’m going to a football match tomorrow do you think I’m daft?
  10. NelliePledge

    Trial By Error: New Biopsychosocial Study of Fatigue in HIV Patients

    BBc Article about a report by the all party parliamentary group on HIV highlighting mental health support needs of HIV patients. https://www.bbc.co.uk/news/health-51727221
  11. NelliePledge

    Daily Mail: EXCLUSIVE: Barely able to leave the house, told they are exaggerating and even that their ailment does not exist: Three ME patients reveal

    This. I suggest anyone wanting to learn more about dementia and how those diseases affect the brain check out Alzheimer’s Research UK. https://www.alzheimersresearchuk.org/orange/
  12. NelliePledge

    Trial By Error: New Biopsychosocial Study of Fatigue in HIV Patients

    There’s a lot to be said for having someone who isn’t a friend or relative, boss or colleague to talk to about stuff that you’re finding hard, grief for example - all those people have their own agendas. I have been talking to a counsellor regularly every 4-8 weeks for over 10 years. My mental...
  13. NelliePledge

    Chronic Fatigue Syndrome - Economic Impact, 2019, Petrova

    Apart from the issues around the CF article there’s a lot of translationese going on.
  14. NelliePledge

    UK: All Party Parliamentary Group (APPG) on ME news, 2020 onward

    Not necessarily bad news if he’s serious enough about trying to help there’s nothing to stop him using his network to have informal discussions with his fellow members of the government - so possibly can be more influential from within than he would be as a backbencher. Keeping up contact with...
  15. NelliePledge

    Trial By Error: New Biopsychosocial Study of Fatigue in HIV Patients

    At some point they will stick their fingers in a pie too far - could HIV be the one? Let’s hope so.
  16. NelliePledge

    You've made the diagnosis of functional neurological disorder: now what? (2018) Perez et al

    The answer to the question in the title - go and take a long hard look at yourself in a mirror.
  17. NelliePledge

    What does having ME mean to you?

    Having ME to me is a kaleidoscope of frustrations. Being annoyed about feeling lucky that I can do the things I manage to do. Being able to spend time with people but how crap that makes me feel afterwards. Being retired from work yet just organising my life to try to minimise PEM feels like a...
Back
Top Bottom