Yes I have a type of physical therapy called Bowen which is very gentle and I find it helpful. No objection to physical therapy whatsoever as long as it isn’t something that makes me worse.
ETA although of course as I have mild/ moderate ME I can tolerate a lot more than many with ME
Drawing a pentagon, writing a sentence. What season of the year is it. Being told 3 words then asked to repeat them a few minutes later. Did lots of appointments with parent 20 years ago - they used to sit in the car and say what year is it on the way to the appointment. Knew that was the...
This is a good point I’m not sure M.E. Association have fully taken on board the extent of the move away from CFS clinics and people being referred to generic community pain services instead.
I sort of managed to get away with going to the CFS clinic although in retrospect I did end up increasing activity while I was doing the programme at least I knew enough not to try going for daily walks or anything like that. And at least it is on record that I’ve done that so I can’t have not...
I think that’s likely to be interpreted in practice as having gone through an NHS CFS clinic. ETA see @Trish already made that point. The powers that be can’t argue that there is anything that could “help” if you’ve already gone to the clinic and it hasn’t helped. It’s rather Russian...
The bit about COPE is interesting- sorry I can’t cut and paste it - whether the anonymised study where retraction seems to be being considered is SMILE
https://www.meassociation.org.uk/2019/06/meeting-with-minister-raised-important-concerns-about-welfare-benefits-for-people-with-me-26-june-2019/
Hopefully DWP will take on board the issues raised
Ive never seen recurrent sore throats and swollen lymph nodes referred to as “Oxford symptoms* before. Not sure what the point is?
ETA. In the ICC these symptoms are referred to in C1 which covers flu like symptoms.........
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