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  1. NelliePledge

    “Innovation in Assistive Technology: Voice of the User” Buchanan et al (2019)

    Does anyone know ME friendly OTs in the U.K. we could send this to. Would be great if there could be a group like @PhysiosforME for OTs.
  2. NelliePledge

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Well I imagine like RCGP their publishing process is somewhat long winded so possibly we can’t read anything into the time lag???
  3. NelliePledge

    Physios for ME

    Yes I have a type of physical therapy called Bowen which is very gentle and I find it helpful. No objection to physical therapy whatsoever as long as it isn’t something that makes me worse. ETA although of course as I have mild/ moderate ME I can tolerate a lot more than many with ME
  4. NelliePledge

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    Maybe he is just sick of their inability to see what’s wrong with their work without having it hammered into them.
  5. NelliePledge

    Physios for ME

    Sorry @DokaGirl not been on during the day thanks to @Binkie4 for answering your question
  6. NelliePledge

    Physios for ME

    Glad I spotted this welcome @PhysiosforME :thumbup:
  7. NelliePledge

    Cochrane Review: 'Exercise therapy for chronic fatigue syndrome' 2017, Larun et al. - Recent developments, 2018-19

    @Marit @memhj just tagging @dave30th in as he wasn’t on your list
  8. NelliePledge

    Memory problems

    Drawing a pentagon, writing a sentence. What season of the year is it. Being told 3 words then asked to repeat them a few minutes later. Did lots of appointments with parent 20 years ago - they used to sit in the car and say what year is it on the way to the appointment. Knew that was the...
  9. NelliePledge

    Physios for ME

    spotted this on twitter seems that a small group are getting together to advocate for ME patients to their profession.
  10. NelliePledge

    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    This is a good point I’m not sure M.E. Association have fully taken on board the extent of the move away from CFS clinics and people being referred to generic community pain services instead.
  11. NelliePledge

    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    I sort of managed to get away with going to the CFS clinic although in retrospect I did end up increasing activity while I was doing the programme at least I knew enough not to try going for daily walks or anything like that. And at least it is on record that I’ve done that so I can’t have not...
  12. NelliePledge

    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    I think that’s likely to be interpreted in practice as having gone through an NHS CFS clinic. ETA see @Trish already made that point. The powers that be can’t argue that there is anything that could “help” if you’ve already gone to the clinic and it hasn’t helped. It’s rather Russian...
  13. NelliePledge

    Trial By Error: An Update about the Pediatric MUS Systematic Review

    The bit about COPE is interesting- sorry I can’t cut and paste it - whether the anonymised study where retraction seems to be being considered is SMILE
  14. NelliePledge

    ME Association and Carol Monaghan meeting with DWP Minister about benefits

    https://www.meassociation.org.uk/2019/06/meeting-with-minister-raised-important-concerns-about-welfare-benefits-for-people-with-me-26-june-2019/ Hopefully DWP will take on board the issues raised
  15. NelliePledge

    Studentship in process: A Mixed Method Exploration of the Association between Autism and Central Sensitivity Syndromes, Sarah Grant, KCL

    Ive never seen recurrent sore throats and swollen lymph nodes referred to as “Oxford symptoms* before. Not sure what the point is? ETA. In the ICC these symptoms are referred to in C1 which covers flu like symptoms.........
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