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There's a lot of the typical background (mis)information about ME/CFS. High achiever, fear avoidance, deconditioning, blah blah blah: Who would've guessed that the state of medicine in 1996 was advanced enough to exclude all possibility of organic pathology? :rolleyes: It's not clear what...

Note that this is not a new study. Full text at http://sci-hub.bz/10.1017/s1352465800015241 Chalder T, Butler S, Wessely S. In-patient treatment of Chronic Fatigue Syndrome. Behavioural and Cognitive Psychotherapy 1996, 24; 315-365. I don't recall seeing anything published about in-patient...

Yes, be prepared to provide proof that ME is not psychosomatic :p

I have absolutely no problem with patients being completely ignorant about ME/CFS, even if they're (rightly or wrongly) diagnosed with it. But if someone's going to talk to the media about treatments, symptoms, etc, even in the context of their personal experience, they are bloody well beholden...

Most of the focus has been on the more overtly harmful CBT/GET bullshit, so maybe not.

A bit ironic that the Mayo Clinic found the obscure diagnosis, when they've systematically botched ME/CFS so badly :-P

Yes, it does rather sound as if the lawyer has no idea at all what is going on. Perhaps she simply ignored the original email until someone urgently prompted her to intervene at the last moment (indeed, after Tuller's blog was posted). Though sometimes I suspect Crawley simply has access to...

When my blood gases were analyzed at the hospital some months ago, before and after exertion (up and down a large flight of stairs) my venous oxygen saturation was quite low. I don't recall what it might mean, but my oxygen saturation on my pulse oximeter is always 98-99% (unless laying in the...

It's a part of Scientific Research Publishing (SCRIP): Wikipedia has a longer discussion of their misdeeds :-P

Some clinicians are completely incompetent at understanding research, so they might believe that exercise is really helpful even for a biomedical disease featuring exercise intolerance. There can also be a tendency to submit to whatever authority says GET helps. Was it part of the...

Attorney-client privilege wouldn't apply to the contents of the communication between Bristol and Berkeley. I also doubt their use of "private and confidential" has any legal standing in relation to a FOIA request - they're a public institution subject to FOIA requests, regardless of how...

It was about 5 years ago, but I'm pretty sure I lost my sanity several times in the process of reading Simon Wessely's life's work :woot:

Professor Kwun Fong looks like a solid biomedical researcher, primarily involving lung disease, and with no history involving ME/CFS. Dr Gary Deed is a clinician who tends toward using a naturopathic approach, but it sounds like he integrates it with mainstream biomedical treatments. He's...

The committee consists of:

Often? No wonder they have diagnostic problems :-P But this has a lot of potential, if it doesn't get hijacked by quacks.

DISABILITY PAYMENTS AND CARER ASSISTANCE Sickness benefits....At present individual [CFS] cases should be treated on their merits, but it is reasonable to expect a patient to cooperate with treatment before being labelled as chronically disabled. Wessely S, David A, Butler S, Chalder T. The...

EPIDEMIOLOGY Chronic fatigue was common. A total of 23 percent of the subjects reported having experienced the symptom of persistent fatigue sometime during their lives. Chronic fatigue syndrome, however, as defined by the Centers for Disease Control, appeared to be quite rare in the general...

CRITERIA, DEFINITIONS, DIAGNOSIS, AND CLASSIFICATIONS We suggest that many patients currently labelled as having "chronic fatigue syndrome" may not be cases of a discrete disorder, but instead may lie at the extreme end of a continuum that begins with the common feeling of tiredness described...

MENTAL ILLNESS - INVOLVEMENT AND COMPARISON Part II The assessment of possible comorbid psychiatric disorders such as depression or anxiety is mandatory. Sharpe M, Chalder T, Palmer I, Wessely S. Assessment and management of chronic fatigue syndrome. General Hospital Psychiatry 1997:19:185-199...

MENTAL ILLNESS - INVOLVEMENT AND COMPARISON Suggestible patients with a tendency to somatize will continue be found among sufferers from diseases with ill defined symptomatology and external (usually infective) causation until doctors learn to deal with them more effectively. Wessely S, Powell...