@Adrian, yes, I agree that testing LP was never really feasible given that, apart from anything else, it demands patients stop 'doing' ME and blames the patient for negative thinking if they don't get better, and, even more perniciously, requires a signature at the start saying that the...
@Graham, yes, that may be it, you made me laugh, but I think it's really a failure of competence when it comes to execution. It's a shame, because she could really do some good were her research skills up to par.
Funnily enough, @Trish , your first para is more or less what Crawley said on that point. I couldn't help wishing her research skills matched her vision. She's got it conceptually - research, test, verify - but when it actually comes to the research, she seems to be out of her depth.
Indeed, the Biopsychosocial model is the key driver of previous and current government thinking on benefits,
http://www.meassociation.org.uk/2016/06/biopsychosocial-basis-for-benefit-cuts-is-cavalier-unevidenced-and-misleading-disability-news-service-9-june-2016/
I'm not at all in favour of EC's flawed research, nor her approach to patients, but in the interests of fairness and balance, especially for anyone who doesn't watch the video, EC does also make some valid points in the talk, eg,
- More research is needed
- More funding for research is needed...
An interesting and accessible article describing some aspects of the state of the art understanding of what microglial cells are, what they do, and how they do it.
http://www.dana.org/Cerebrum/2017/Microglia__The_Brain_s_First_Responders/#
(Although microglial cells may well be involved in...
I don't know though - if something genuinely useful comes along (rituximab or whatever), then the fact that there is nothing at all for ME at the moment might help us to be prioritised.
Plus, those with ME who are economically inactive must be costing the country a bit, so it could be very...
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