Search results

  1. Indigophoton

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    @Adrian, yes, I agree that testing LP was never really feasible given that, apart from anything else, it demands patients stop 'doing' ME and blames the patient for negative thinking if they don't get better, and, even more perniciously, requires a signature at the start saying that the...
  2. Indigophoton

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    @Graham, yes, that may be it, you made me laugh, but I think it's really a failure of competence when it comes to execution. It's a shame, because she could really do some good were her research skills up to par.
  3. Indigophoton

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Funnily enough, @Trish , your first para is more or less what Crawley said on that point. I couldn't help wishing her research skills matched her vision. She's got it conceptually - research, test, verify - but when it actually comes to the research, she seems to be out of her depth.
  4. Indigophoton

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    Yes, I rather thought that was the subtext too, especially about the funding.
  5. Indigophoton

    Tuller / Trial By Error: The Crawley Chronicles, Resumed

    Indeed, the Biopsychosocial model is the key driver of previous and current government thinking on benefits, http://www.meassociation.org.uk/2016/06/biopsychosocial-basis-for-benefit-cuts-is-cavalier-unevidenced-and-misleading-disability-news-service-9-june-2016/
  6. Indigophoton

    Open letter to TEDxBristol regarding Esther Crawley's presentation on 2 November 2017

    I'm not at all in favour of EC's flawed research, nor her approach to patients, but in the interests of fairness and balance, especially for anyone who doesn't watch the video, EC does also make some valid points in the talk, eg, - More research is needed - More funding for research is needed...
  7. Indigophoton

    NICE Guideline stakeholders workshop Jan 2018

    That's really excellent. Well done @Andy :emoji_dart:
  8. Indigophoton

    Article: Microglia: The Brain's First Responders, Bilbo, Stevens

    An interesting and accessible article describing some aspects of the state of the art understanding of what microglial cells are, what they do, and how they do it. http://www.dana.org/Cerebrum/2017/Microglia__The_Brain_s_First_Responders/# (Although microglial cells may well be involved in...
  9. Indigophoton

    Tips for ME blog: Attacked by Hope

    *laughing in recognition* Well said, @Jenny TipsforME
  10. Indigophoton

    UK: 5 New Drugs a year to be fast tracked to patients

    I don't know though - if something genuinely useful comes along (rituximab or whatever), then the fact that there is nothing at all for ME at the moment might help us to be prioritised. Plus, those with ME who are economically inactive must be costing the country a bit, so it could be very...
  11. Indigophoton

    UK: 5 New Drugs a year to be fast tracked to patients

    Good news for patients in the UK: http://www.bbc.com/news/health-41843320
  12. Indigophoton

    Getting Glasses When You Have ME-related Variable Eyesight

    Specsavers will come and do a home visit if you can't attend their stores without someone else coming with you.
Back
Top