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Unfortunately, this would simply be regarded as a positive for use of CBT for ME. Which is why NICE needs to make it crystal clear that the Chalder style CFS-CBT is not appropriate and should not be used.

maybe it's the Perrin wonky spine shot

One point that I don't think has been raised but comes up time and again, is the fact the CBT for ME/CFS is quite specific: https://www.kcl.ac.uk/ioppn/about/difference/22-CBT-for-chronic-fatigue-syndrome.aspx " CBT for chronic fatigue syndrome Our researchers were among the architects of a...

"What you must do, at the minimum we feel, is to issue an addendum to the existing NICE guidelines which states that not only are patients wanting to remove the recommendations for use of CBT and GET for ME but also that the USA agencies have removed CBT and GET from their recommendations. This...

see here: https://whatsnewonnetflix.com/germany/m/unrest-2017 " Get American Netflix January 2018 Update: Want to learn how to get American Netflix in Germany? Check out our Get American Netflix page for information on how to change your Netflix country to the USA or one of 5 different...

Bristol Cable article from July 2017 still accepting comments An excellent article from last year: " Trials on certain treatments of chronic fatigue syndrome, or ME, have pitted patients against researchers, and scientists against scientists – amid furious clashes on the validity of landmark...

If you can bear to listen: "As part of Radio 3's Why Music? The Key to Memory weekend, Michael Berkeley talks to the psychiatrist Sir Simon Wessely. Professor Sir Simon Wessely is one of our most eminent psychiatrists: until recently the President of the Royal College of Psychiatrists, he is...

Hmm, didn't think that was allowed....... but while we're at it the prodigal daughter has also returned and promoting Gupta style treatment. eta: just seen on FB "Phoenix Rising Health & wellness website" ??

OMF Receives $1 Million Donation 2018 is starting off to be a fantastic year. Today, OMF has received a $1 million donation! The Pineapple Fund has generously donated $1 million to OMF through Bitcoin, stating, "We chose the Open Medicine Foundation because ME/CFS is a serious and complicated...

This. Any campaign in the offing anywhere to get this going?

Another Patron is Caroline Lucas (Green Party)...........anyone have green connections?

This blog/ article has a few red flags..........maybe the writer should have done a bit more research or is it deliberate? Starts off OK ish..... "British people suffering from Myalgic Encephalitis otherwise known as ME or Chronic Fatigue syndrome (CFS) have suffered from over 30 years of...

Article by Caroline Christian " Yesterday I woke to a blue rose. I should have known something was wrong when there was very little activity in my favorite ME/CFS groups on Facebook. Blue rose days are like that. The community retreats in silence and grief on these days. We are afraid to admit...

I've posted this here in members only as I am not sure if it's allowed (I will report it myself to check). If it is, it might get moved, if not then I'm happy for it to be deleted. " Do you have a diagnosis of Chronic Fatigue Syndrome (CFS)/ myalgic encephalomyelitis (ME) and have you been in...

From OMF: Linda Tannenbaum Worldwide Tour Talk As a part of the 2017 End ME/CFS Worldwide Tour, Linda Tannenbaum, CEO/President, spoke in six European countries and seven U.S. cities. Each visit included a presentation, Q & A session, and personal meet and greet. On the tour, Linda had the...

I have been revisiting the CCC and ICC papers and it makes me wonder if anyone who was involved in the current NICE guidelines ever bothered to read either. this is the overview of the CCC (2003): http://www.name-us.org/defintionspages/DefinitionsArticles/ConsensusDocument Overview.pdf and the...

Not up to going thro it but Solve did a 'thingy' on PEM/PENE http://solvecfs.org/deciphering-post-exertional-malaise/ The webinar is here:

I like this description although not sure it helps with the debate: " PEM causes intense exhaustion as well as an upswing in other symptoms that last for at least 24 hours after physical exertion. That may not sound so unusual to those unfamiliar with it — after all, we all need time to recover...

"Is there a link between smartphone, social media and depression. Teen use of smartphones and social media skyrocketed simultaneously with rates of adolescent depression. Though causation has yet to be established, for parents — it’s better safe than sorry." "A study published last month by...

Agree, except Crawleys idea of severe is not necessarily what is generally considered severe. "The £6,000 with which Action for M.E. funded this study was contributed by a private corporate donor with a specific interest in seeing the alleviation of childhood suffering." maybe the donor found...