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  1. Subtropical Island

    How to deal with Unexpected stresses

    :bucktooth::nailbiting::(:hug::asleep: Take care, we’re thinking of you.
  2. Subtropical Island

    Whether to have a flu vaccination

    I do think that those who can get a flu shot without major negative consequences and who are exposed to either a large number of people or to those with compromised immune systems are doing a community-minded thing in getting the immunisation. That’s why the first responders get the flu...
  3. Subtropical Island

    Whether to have a flu vaccination

    This is just my personal 2018 anecdote: I got the flu vaccine this year (through a voluntary first responder organisation I am still a member of). Yes, as expected, I felt a bit knocked back for a couple of days after getting it. My father and in-laws got it routinely because of their age and...
  4. Subtropical Island

    How to deal with Unexpected stresses

    I do a lot of pretending to sleep in these circumstances. Finding the closest thing to a corner and huddling up as if I were exhausted and actually sleeping. I might be exhausted but I’m nowhere near sleeping but it keeps most people at bay. As a young woman backpacking I used to find the most...
  5. Subtropical Island

    Systematic review and statistical analysis of the integrity of 33 randomized controlled trials (2016)

    This is an article on the people who did the work to uncover the fraud (article by their own university). The actual study is published in Neurology 2016 There is a new article about the subject in the August 2018 issue of Science (link at the bottom of this article)...
  6. Subtropical Island

    New Scientist: Probiotics are mostly useless and can actually hurt you

    I too have found from painful personal experience that fermented things cause me no end of trouble these days (never before illness). Not just yeast though, almost anything. Including wine, beer, brandy etc. (But there is a yogurt I get direct from a farm that makes it commercially which is...
  7. Subtropical Island

    New Scientist: Probiotics are mostly useless and can actually hurt you

    My takeaway from this was that I wish I’d managed to collect and effectively store a sample of my own gut microbiology when I was adult and healthy. Imagine if I could restore that, wow. Might not have worked (my new gut might just have rejected the previous organisms) but would have been worth...
  8. Subtropical Island

    The Lancet: UK life science research: time to burst the biomedical bubble

    Thank you! :hug: This is just exactly the point. Worth embroidering on the wall, or something like that... maybe a billboard?
  9. Subtropical Island

    The "Biology-First" Hypothesis: Functional disorders may begin and end with biology-A scoping review (2018)

    Want to read/hear more (can see just a paragraph more than the abstract without a sub).
  10. Subtropical Island

    'I'm not looking for pity, just a cure' - NZ article

    LP: Isn’t it odd that paying a large amount of money for something makes people take it more seriously? For a therapy that only requires a group leader to run it (no qualifications, just trained to do it) the cost is one of the most offensive parts. I think people would find it easier to put it...
  11. Subtropical Island

    Kelly McLellan seeks feedback on his draft Edinburgh ME Scale

    I found this scale useful. I went to say more useful detail but ... not this week. I wanted to post something as I appreciete the effort gone into making it. My experience using this scale (averaging): Pre-illness 120-130% Onset (not including acute times) 50% 5yrs ago Last year or so 12.5%...
  12. Subtropical Island

    Psychiatry – the medical speciality that combines empathy and science

    I was going to say Decartes. A good example of when good ideas need to be reviewed from time to time and updated in line with newer understanding.
  13. Subtropical Island

    Aging affects the balance of neural entrainment and top-down neural modulation in the listening brain (2017) Molly J Henry

    https://www.nature.com/articles/ncomms15801 As this describes some (a minor but very frustrating part) of my experience: difficulty with auditory multi-tasking, screening out background noise while doing things etc. I wondered if some of these processes might be relevant to ME/CFS. I am...
  14. Subtropical Island

    Psychiatry – the medical speciality that combines empathy and science

    Fun as all this psychiatry bashing may be, I do think it’s a subject that warrants further investigation and study. Unfortunately, like much of the well conducted scientific research into ME/CFS, there hasn’t been enough of it. It would be lovely if they consistently held themselves to high...
  15. Subtropical Island

    Psychiatry – the medical speciality that combines empathy and science

    Combines empathy and science. Um, I thought that was _supposed_ to be your GP?
  16. Subtropical Island

    The Stanford Prison Experiment was massively influential. We just learned it was a fraud.

    Nice article, thanks @Indigophoton! I’m glad I’m on a day I could read the original. Pleased to think/imagine/hope that lack of replication in psychology is being addressed in earnest too :)
  17. Subtropical Island

    Personality as a risk factor for ME/CFS and similar diseases

    Funny, I’ve always thought of intelligence as being exactly that: enjoying the experience of being challenged, of learning, and of challenging and changing your assumptions. ...but maybe that’s just the path to enlightenment. ;)
  18. Subtropical Island

    Rethinking the treatment of chronic fatigue syndrome—A reanalysis and evaluation of findings from a recent major trial of graded exercise and CBT

    Non-complaining sick people = higher rates of ‘cure’ that can be claimed. So, no, not useful for society, resources, govt funding, etc etc (those who fund the research). But useful for the people doing the ‘research’: we got funded, we did something, it got published as a ‘success’, we’ll get...
  19. Subtropical Island

    Spoon theory

    I tend to describe myself as mild/moderate but on your scale I’m mostly 2 with frequent dips to 1 and regular dips to 0. So my scale is finer (more steps) in that range. ETA I think I might have used your scale 4yrs ago when I thought I was burnt out. Back then I was still working (and...
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