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  1. Webdog

    UpToDate ME/CFS information

    A copy of the reply.
  2. Webdog

    UpToDate ME/CFS information

    My continued interest in UpToDate in part stems from my realization that No, there is no appeal process as they decided not to pursue I filed that UpToDate was in violation of ACCME's CME Content Policy. But there is nothing preventing others from filing complaints...
  3. Webdog

    UpToDate ME/CFS information

    My complaint to the Accreditation Council for Continuing Medical Education (ACCME) will not be pursued.
  4. Webdog

    Action for ME: "We need your help! Connect M.E. survey"

    No evidence I can post on a public forum, sorry. But PM me if you have questions.
  5. Webdog

    Action for ME: "We need your help! Connect M.E. survey"

    At least 1 person on the AfME board of directors believes they were cured of ME by the lightning process. Their overarching philosophy seems to be to try everything and see what works. This is not an organization I personally trust. I will say no more.
  6. Webdog

    "Vitamin D Deficiency Elevates Colorectal Cancer Risk" (includes discussion of inflammatory disease and gut microbiome)

    One observational study suggests the optimal Vitamin D 25(OH) level for sleep for those with neurological symptoms is 60-80 ng/ml. The world epidemic of sleep disorders is linked to vitamin D deficiency (2012) Gominak SC1, Stumpf WE. https://www.ncbi.nlm.nih.gov/pubmed/22583560 The conversion...
  7. Webdog

    Woman faked qualifications and worked in uk as a psychiatrist for 20 years

    I once worked with someone who faked being an enrolled actuary for several years. Finally someone noticed his enrollment number was missing a digit or two. For years people just assumed it was an older number.
  8. Webdog

    "Vitamin D Deficiency Elevates Colorectal Cancer Risk" (includes discussion of inflammatory disease and gut microbiome)

    Though this video/article is primarily about vitamin D and colorectal cancer risk, it delves into Vitamin D's role in the gut microbiome and inflammatory/infectious disease. It covers research that will be published in 2019. It concludes that it's time for doctors right now to consider Vitamin...
  9. Webdog

    Japanese researchers transplant stem cells into brain to treat Parkinson's

    Reprogrammed Stem Cells Implanted into Patient with Parkinson’s Disease A man in his 50s is the first of seven patients to receive the experimental therapy https://www.scientificamerican.com/article/reprogrammed-stem-cells-implanted-into-patient-with-parkinsons-disease/
  10. Webdog

    UpToDate ME/CFS information

    Since UpToDate is accredited to provide continuing medical education (CME) with the Accreditation Council for Continuing Medical Education (ACCME), I've filed a complaint with ACCME. They haven't decided yet whether to pursue it or not. My complaint is that UpToDate's ME/CFS treatment...
  11. Webdog

    Healthwise to "retire the GET/CBT topics" from medical content

    Kaiser Permanente hasn't posted the new Nov 2018 Healthwise ME/CFS changes, but when they appear, it should be at this link: https://healthy.kaiserpermanente.org/health-wellness/health-encyclopedia/he.myalgic-encephalomyelitis-chronic-fatigue-syndrome.hw32907 Should be soon. Edit: The GET and...
  12. Webdog

    Cases of Acute Flaccid Myelitis in Minnesota and other states

    Acute Flaccid Myelitis Spreads to 90 Confirmed Cases in 27 States https://www.medscape.com/viewarticle/904842
  13. Webdog

    What do we want ME care to look like?

    Not sure if this is right place for this, but was just communicating with a doctor (in the US) who wants to make heart rate monitors available for thousands of ME/CFS patients. The issue is that, depending on what insurance plan the person has, heart rate monitors may or may not be covered. So...
  14. Webdog

    The New York Times: Peer Review: The Worst Way to Judge Research, Except for All the Others

    UpToDate has a formal peer review process (I actually have a copy of this). Repeated peer reviews have slowly moved UpToDate from strongly recommending GET/CBT for all ME/CFS patients to a weaker stance. But peer review still accepts PACE as evidence. The UpToDate peer review process in early...
  15. Webdog

    Japanese researchers transplant stem cells into brain to treat Parkinson's

    Researchers transplant stem cells into brain to treat Parkinson's https://japantoday.com/category/national/japan-team-transplants-stem-cells-into-brain-to-treat-parkinson's
  16. Webdog

    A Deep Learning Model to Predict a Diagnosis of Alzheimer Disease by Using 18F-FDG PET of the Brain, 2018, Ding et al

    Artificial intelligence predicts Alzheimer's years before diagnosis in small UCSF study. Study: A Deep Learning Model to Predict a Diagnosis of Alzheimer Disease by Using 18F-FDG PET of the Brain https://pubs.rsna.org/doi/10.1148/radiol.2018180958 Press Release: AI Predicts Alzheimers Years...
  17. Webdog

    UpToDate ME/CFS information

    I’ve had a glance at the latest (Nov 2) UpToDate changes on ME/CFS treatment. Still, recommendations for GET/CBT for some patients. In a nutshell, their position is this: Exercise is important for all CFS patients GET/CBT may benefit some patients GET/CBT may worsen PEM and other symptoms in...
  18. Webdog

    UpToDate ME/CFS information

    Just noticed there is a Nov 2, 2018 revision to the "Treatment of myalgic encephalomyelitis/chronic fatigue syndrome" section. I'll renew my sub and have a look at it later and see what has changed. The "Clinical features and diagnosis" section remains unchanged. But it's the treatment section...
  19. Webdog

    Active HHV-6 Infection of Cerebellar Purkinje Cells in Mood Disorders, 2018, Prusty et al

    Herpes virus link to bipolar disorder and depression https://blog.frontiersin.org/2018/09/28/microbiology-herpes-virus-depression-bipolar-disorder/
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