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    "This is M.E." booklet by Action for ME - Feedback survey

    I disagree. I would say the main symptom is an intolerance of exercise and exertion. There's no mention of damage or permanent worsening and there's a focus on stress which could lead some to believe that the condition is psychological.
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    ME Association Website Survey: What are the most important things a GP needs to know about M.E.? | 08 January 2019

    They forgot an option that's relevant to me: Doctors should know not to terrorise their patients by threatening to have them sectioned and treating their symptoms as delusions. Oh and they should be aware that exercise beyond a patient's threshold can cause permanent damage.
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    ‘It’s the unknown’ – understanding anxiety: from the perspective of people with multiple sclerosis (2018) Chalder et al

    I don't think anyone has the answer to that yet. Edit: But ME might not turn out to be one discreet illness. So perhaps some versions of ME come along with physiologically caused mental health problems while some do not. This thread has been most enlightening 9/10.
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    Article: Verywell: Exercise for Fibromyalgia and Chronic Fatigue Syndrome

    In my case exercising caused me permanent damage numerous times. There needs to be more warnings for true ME patients, and preferably amendments to criteria to include permanent worsening. Edit: Do any ME criteria include permanent worsening after exertion as a symptom?
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    Who was it that said being in support groups leads to poor outcome?

    https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1014351/?page=5 Simon Wessely states enteroviral antigens were associated with poor outcome in CFS. He goes on to say that the antigen is also found in depression and neurological disorders.
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    Persistent fatigue induced by interferon-alpha: A novel, inflammation-based, proxy model of Chronic Fatigue Syndrome, 2018, Pariante et al

    That's a logical fallacy known as "Argument from authority", they should judge papers based on their merit not which journal they were published in. As for meta-analyses, garbage in - garbage out.
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    Obesity in adolescents with chronic fatigue syndrome: an observational study, 2016, Norris et al

    Doesn't say what criteria was used, probably something overly inclusive given that Esther Crawley was involved. The majority were not obese, and those that were could have been because of fatigue severity. Waste of money if you ask me.
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    The Psychologist: "Does psychology face an exaggeration crisis?", article by Brian Hughes

    I found this article on the same website: https://thepsychologist.bps.org.uk/volume-11/edition-5/chronic-fatigue-syndrome-suitable-case-treatment The article is from the 1990s, it's full of references to Wessely, Sharpe, White, Chalder, and even Elaine Showalter.
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    Myalgic Encephalomyelitis or What? The International Consensus Criteria (Frank Twisk, 2019)

    I suffer from PERI - Post Exertional Rheumatic Injury instead of PEM. Exertions can cause permanent worsening. I don't meet the CCC, ICC, or SEID, yet I'm considered very severe (100% bed bound). Edit: I would say I have atypical ME although it could be an undiscovered form of EDS.
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    NZ Herald running a series on EDS

    I was sectioned on 20th August 2014 and kept there for a month. The staff in the psychiatric ward told me I wasn't in any pain and on one occasion refused to help me up after I'd fallen over due to a reaction from the medication they forced me to take. They forced me to walk around despite...
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    Woman's fight to stop disabled people having to travel for benefit assessments - UK petition

    Exhaustion is too easily conflated with tiredness and fatigue. If people accept ME as exercise intolerance, they will question headlines like "Got ME? Get Out And Exercise". They will think "Hang on a minute, exercise makes ME patients worse". I think a great disservice has been done to ME...
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    Woman's fight to stop disabled people having to travel for benefit assessments - UK petition

    "Which can cause an intolerance of exercise & exertion" sounds better.
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    ME Association Monthly poll: Does your doctor (GP or specialist) provide medical evidence for benefit, work, education or social care purposes?

    When I was at college I got no diagnosis and no help what so ever with my illness. As a result I failed and was blamed. Later when I developed moderate to severe ME my GP refused to help me with my housing application which would have prevented me getting permanently worse. The house I was...
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    Socially constructed and structurally conditioned conflicts in territories of medical uncertainty

    I'd like to add two points of my own: 6) Stop conflating ME with fatigue. 7) Believe that patients can get permanently worse by being pushed beyond their threshold.
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    Jeopardy (TV show) asks a question based on SEID/CFS

    I thought the whole point of SEID was to distance ourselves from chronic fatigue not be synonymized with it.
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    Netflix "Afflicted" - ME included

    In the case of MCS the claim by patients is that they suffer symptoms as a result of exposure to certain chemicals not necessarily that they are better at detection than healthy controls. You mean like the easy answer that the cause is psychological or psychosomatic? So you're happy to be...
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    Low dose hydrocortisone as a treatment for ME/CFS

    Where is he getting these figures from? There's no way 2.6% of GP visits are ME patients, chronic fatigue may be but not ME. Conflating the two is a tactic often used by Wessely and his colleagues. I doubt 50% of ME patients have major depression, unfortunately the references for his claims are...
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    Some videos about various topics concerning ME collected by a member

    I replied on YouTube with: @10:48 "resistance to the diagnosis is about the stigma". This is a strawman argument against ME patients who suffer worsening of symptoms (in some cases permanently) from exercise or exertion. Under a psychological model worsening of symptoms are not believed by...
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    United Kingdom: Dr Suzanne O’Sullivan (BPS neurologist)

    Merged thread: The reality of imaginary illness I replied on YouTube with: @10:48 "resistance to the diagnosis is about the stigma". This is a strawman argument against ME patients who suffer worsening of symptoms (in some cases permanently) from exercise or exertion. Under a psychological...
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