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@Action for M.E. i may have missed it but I think this request for copies of the Hazel O Dowd and other GP videos hasn’t been addressed yet

Yes it seems their definition of “require” “make available” “full transparency” has been conveniently flexible

Welcome to my parlour said the spider to the fly

Please read @Unable post earlier on this thread about pacing yourself

Wot no shopping bag?

In a way I am relieved that I live on my own and don’t have family/partner relationships to cope with. When I stay with family I find having less control of my timetable and environment constrains my ability to adapt to fluctuations in ME. At home - when not coping with PEM from doing stuff...

Think you’re right @Wonko it brought the wizard of oz to mind - Behind the curtain there’s a programmer

This is getting into politics. As an ally of Gordon Brown Blanchflower getting slated by well known right wing blogger. The work programme DB criticised was the 2010-15 coalitions welfare to work programme. Using reference to thalidomide was possibly unwise but many people wouldn’t disagree...

It was 2006-2009 but the role doesn’t involve regulating the banking system

Wish I’d known this in 1999.

He used to be on the Bank of England monetary policy committee that decides each month whether the Bank of England interest rate should go up or down.a key role in the UK economy.

@ladycatlover love it I’m rewatching Rumpole of the Bailey in the afternoons at the moment - very therapeutic :D

Not giving them my click

Perhaps Trevor Butterworth would have a word with Danny Blanchflower too ;)

Agreed @Unable the dictionary definition of pacing yourself does hit the nail on the head we need to bring back yourself. ETA totally agree that the routine and structure stuff is dubious. It’s a fluctuating condition so trying to force people into a routine is putting square pegs in round...

Would be good if they could use ME as a comparator

Ha ha yes the one at DWP perhaps :whistle:

like @Barry i find the idea of having an energy budget helps describe what pacing is like I’ve mentioned before @Keela Too s blog about disposable energy rings true I think something like energy budgeting would work well as an alternative term for pacing...

Would this then be a good question for the likes of Pariante- do you subscribe to the psychoneuroimmunological model of ME

No but it’s good to have it confirmed