Disappointing response from NICE. A bit strange too, because it's all beside the point that our letter made. Our letter wasn't about the...
I find that the quotes by Caroline Struther's ("every exercise is strengthening your body”, “there is no disease” etc.) are not in this document,...
Thanks for sharing your perspective @Tom Kindlon . I always learn a lot from what you say. I think it also depends in which country you're at. In...
Perhaps it was this one? Flo E, Chalder T. Prevalence and predictors of recovery from chronic fatigue syndrome in a routine clinical practice....
I agree. It would have been good to have a joint statement by the ME/CFS charities. They could have focused on the good work they are doing with...
Your critical comments are very much appreciated - well, at least by me. I think it's important that we have voices in our community who dare to...
There are so many wonderful sentences in this blog. For example: Thanks to Brian Hughes for writing this. I do however agree with the comments by...
Really? Haven't read the studies but that would very much surprise me. I always thought that the reason why this intervention was so easily...
The most likely explanation is that Medical express put the GET/CBT thing in there.
Didn't know Marcie Zinn also had ME/CFS. Sad that's mostly up to patients and their family members to find the cause of this illness.
I think the tactic of ignoring the bad Reuters article and sharing older, good articles wasn't the right strategy. We are sharing those articles...
Well, kudos to him then
The following posts have been moved from the Reuters thread. does it voluntarily. Really? That's quite amazing. Doesn't CS get paid by the...
This is very useful, thank you Simone. I think the most important issues are in there. It is difficult to start working on a document though,...
I thought her joke about spinal tab was actually quite funny.
Sorry, I might be a bit confused, but could you give more info about this: what showed that patients believed they could overcome their illness in...
ME/CFS is leaving the fatigue spectrum Abstract: Contrary to the conclusion by Flatt et al. [1] research has indicated several differences...
I've submitted the following comment to the publication by Flatt et al., but unfortunately it has not been accepted. I'm posting it here since I...
On Ted Kaptchuk:
True, but these articles could remain damaging to ME activism long after the whole controversy on GET/CBT and the PACE-trial.
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