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    Building an evidence base for management of severe ME (including sleep management)

    There is one thing that strikes me in particular from the other thread which has presumably precipitated this debate. There may possibly be a compression of time due either to the circumstances or to the illness, but if the comments are taken at face value, it sounds as though enforced...
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    Australian teenager tells story of threats and mistreatment

    It is not merely a question of training. It is the capacity to make judgments and to learn outside the delivered training. People have to be responsible for their own decisions.
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    Australian teenager tells story of threats and mistreatment

    That's a dreadful story. Do medical "professionals" now lack the capacity to take and comprehend a history, and, if so, why are they registered to practice? Do they think that iatrogenic harm can only be caused by others? Striking off seems to be an inadequate sanction for some.
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    Child and adolescent chronic fatigue syndrome/myalgic encephalomyelitis: where are we now?, 2019, Segal et al

    In view of the earlier discussion about GOSH I include this link to evidence at the contaminated blood enquiry. It makes disturbing reading. https://www.theguardian.com/uk-news/2019/may/09/haemophiliac-boys-mother-was-labelled-neurotic-blood-inquiry-hears
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    More PACE trial data released

    That's the way the money goes. Pop! goes the weasel.
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    Memory problems

    It's a difficult one is this. I suspect that many of us spend so much time on our own that tthere is nothing to challenge the recall that we have. And we wouldn't remember the things we had forgotten anyway. I do vaguely remember having a discussion with a doctor about memory problems and...
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    Psychiatrist Peter White at the Royal Society of Medicine 2008 - Defining CFS/ME

    I would like to go back to the comment by PDW that the epidemic cases were different to the modern sporadic cases and that the problem started with the 1978 meeting. It could be said that it is essential for the BPS followers to assert the distinction. Wessely, Hotopf and Sharpe are on record...
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    How to distinguish between Dysautonomia and ME/CFS?

    Merely as a matter of detail I wondered whether either of the postural or the orthostatic were otiose, being synonymous, or whether there was some postural tachycardia which was not orthostatic. It seems that the two are alternatives and that the term was PoTS- Postural Tachycardia Syndrome...
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    Paradox of diagnosis The positive effects and limitations of diagnosis in ME/CFS and fibromyalgia (Nojima, 2019)

    By way of contrast with the writing of this author I thought I would provide an indication of SW's earliest recorded musings on this subject in 1987. This was the reason this article seemed benign : The treatment of mass motor hysteria is more complex. Steps must be taken to remove the...
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    David Tuller: Trial By Error: My Letter about MUS to the British Journal of General Practice

    An astute editor might see this as an opportunity to steal a march on his competitors by showing a greater commitment to accuracy, integrity and ethical standards. A first very tentative step has been made. It just needs a little further reflection.
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    Discussing acceptance and commitment therapy in ME/CFS.

    I thought I had better find my authority for this claim. It was in part: We therefore propose that cognitive factors (in this case beliefs about health and illness) play an important part in perpetuating chronic disability. These so-called dysfunctional beliefs act as mediators of dysfunction...
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    Who is Simon Wessely?

    Clearly it must be put in the WOO category. Those who know their Beethoven will know that stands for Werke ohne Opus. I cannot imagine what you thought it was.
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    Who is Simon Wessely?

    Sorry, but the paper on mass hysteria was published a year before that. I will try to find it. It may take some time.
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    Who is Simon Wessely?

    It is necessary to add a caveat to the above. His first paper was on Mass Hysteria and a proposed recategorization. That included a reference to the Royal Free outbreak.
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    Psychiatrist Peter White at the Royal Society of Medicine 2008 - Defining CFS/ME

    @Mithriel I think you may have misunderstood my point. I may not have been clear. I do not for a moment doubt the existence of these symptoms in some cases, both epidemic and sporadic. My point was that the absence of these features does not rule out the diagnosis and their absence in many...
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    General news about Fabricated and Induced Illness syndrome (FII)

    The trouble with growth industries is that they introduce all sorts of potential conflicts of interest. Is the representation of the child properly independent and fearless in acting in the objective interests of the child, properly considering balance of risk, or is it influenced by scoring...
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    NZ Listener - Ills thought out - Wilson 2019

    One is immediately suspicious of a title like "Ills thought out". Too clever by half. Perhaps that is where all the effort went. Clearly indicates the authors "thinking".
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    A nanoelectronics-blood-based diagnostic biomarker for ME/CFS (2019) Esfandyarpour, Davis et al

    One would have thought that having a "personal interest" of the sort that RD does would make him quicker to discount false positive leads which could result in waste of time. His interest is in obtaining an outcome that works. One really does have to wonder about the capacities of some people...
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    Discussing acceptance and commitment therapy in ME/CFS.

    It is interesting to see the dependence on the analogy with treatment for pain. The early justification for use of CBT in CFS was analogy with the reported success of the treatment in fibromyalgia, I have often thought that that was the reason for Wessely and Sharpe having to emphasise...
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    Do ME symptoms fit with the faulty energy metabolism hypothesis?

    I wonder if any of this is related to the early hypothesis to account for the fact that medical staff were affected but patients were not. It was suggested that sedentary individuals might be protected.
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