Search results

I wonder if that's a genuinely mislead user or a Lightning Process shill.

On the plus side @21:00 she says about ME "A condition that's defined by exercise intolerance".

Could someone please explain to me what confidence intervals and p values are?

They've had years to prepare a response to this kind of crap, the militant anti-science patient trope has been around for a while now.

I find this description to be very disingenuous, given that for all intents and purposes he treats it as a mental illness. Here the author tries to discredit patients by comparing them to climate change deniers and anti-vaxers. Still conflating ME with fatigue, where's the mention of harm from...

The ACR dropped the tender points in their revised 2010 criteria for fibromyalgia.

@2:28:20 - He says people don't die of ME, she replies suicide rates are higher in ME patients. Does anyone have any official statistics on this?

Do any ME criteria include permanent worsening after exertion as a symptom?

Agreed, and patients with unexplained symptoms are treated worse than second class citizens. The law is worded really stupidly, if a GP does what most other GPs would do in that situation and follows the guidelines then they get away it. So if prescribing leeches was the norm in medicine they...

In my experience psychosocial quackery is more dangerous than biomedical quackery. Ideally we would have neither. Psychosocial quackery has made me 100% bedbound.

@1:25:00 - Charles Shepard said psychiatrists hijacked ME (which I commend him for). @1:36:10 - He says the NICE guidelines are being rewritten (Does any one know more about this?).

How does viewing ME as a multi-system disease lead to getting conned by quacks?

Since when does not being active make ME worse? That list really makes it sound as if they are framing ME as a mental illness. Also note that there's no mention of relapses lasting years or being permanent, it's as if they are trying to erase severe ME as a physical illness.

On page 5 the author is not at all critical of the Oxford criteria. Page 12 Page 18 Page 26 Rehabilitation? For severe ME patients?

https://www.ncbi.nlm.nih.gov/pubmed/30008263 Does anyone have access to the full paper?

I disagree. I would say the main symptom is an intolerance of exercise and exertion. There's no mention of damage or permanent worsening and there's a focus on stress which could lead some to believe that the condition is psychological.

They forgot an option that's relevant to me: Doctors should know not to terrorise their patients by threatening to have them sectioned and treating their symptoms as delusions. Oh and they should be aware that exercise beyond a patient's threshold can cause permanent damage.

I don't think anyone has the answer to that yet. Edit: But ME might not turn out to be one discreet illness. So perhaps some versions of ME come along with physiologically caused mental health problems while some do not. This thread has been most enlightening 9/10.

In my case exercising caused me permanent damage numerous times. There needs to be more warnings for true ME patients, and preferably amendments to criteria to include permanent worsening. Edit: Do any ME criteria include permanent worsening after exertion as a symptom?

https://www.ncbi.nlm.nih.gov/pmc/articles/PMC1014351/?page=5 Simon Wessely states enteroviral antigens were associated with poor outcome in CFS. He goes on to say that the antigen is also found in depression and neurological disorders.