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    Dr Myhill’s complaint to GMC about PACE authors.

    interesting - I admire Dr Myhill's perseverance.
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    B12/Folic Acid and D3/K2 Supplementation

    Sue Jacksons blog carrys a lot of info presented in an easy to understand way. B12 is a NO scavenger and this may be why it has an effect for some. https://livewithcfs.blogspot.com/2014/04/vitamin-b12-and-mecfs.html?m=1 Certain genetic expressions also control the rate of B12 use / need for...
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    B12/Folic Acid and D3/K2 Supplementation

    And urine
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    Updates on status of ICD-11 and changes to other classification and terminology systems

    Thank you for your amazing perseverance. From the parent of an adolescent this is priceless and will mean so much to so many.
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    Blood pressure monitors and how to use them; taking a blood pressure measurement; continuous monitoring

    Our GP has 2 Omrons which are used by patients for a week at home to try and address white coat syndrome. You put your name on a list. It's used where it's thought there may be a problem, and if there is intermittent use is encouraged if people can't/ don't have a monitor of there own. As...
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    A System Theoretic Investigation of Cortisol Dysregulation in Fibromyalgia Patients with Chronic Fatigue, 2019, Padnekar et al

    Low T3 impedes cortisol clearance in liver. A low T3 state ( as opposed to low T3 syndrome) was suggested in a couple of papers- part of body shutting down, like a hibernation " dauer" response. Liver is key to many processes which are out of whack - bile, lipids, hormones, gut dysbiosis...
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    A System Theoretic Investigation of Cortisol Dysregulation in Fibromyalgia Patients with Chronic Fatigue, 2019, Padnekar et al

    Urine , saliva and hair, but not serum. My daughter had slightly low cortisol serum levels a couple of years ago, which prompted endocrinologist to try hydrocortisone. . Not tested since then .
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    Article: 'Is standing up for expertise a fool’s errand?' - Simon Wessely still being portrayed as the 'victim'

    Who was responsible ?
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    Use of antidepressants for/with ME/CFS?

    Does the impact of anti depressants vary with degree of severity? If you have less energy/ body resources to deal with side effects, does that make them greater?
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    Article: 'Is standing up for expertise a fool’s errand?' - Simon Wessely still being portrayed as the 'victim'

    Reinforcement of narratives is everywhere, expect peaks prior to conferences and pre NICE key milestones ( is there one coming up?) could this be seen as timely given the Danish ME debacle at the moment, I wonder...
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    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    Naturopaths and some other alternative practitioners also do this test, it is not just Myhill. I think people are looking for explanations and approaching it from a cellular energy point of view seemed to make sense when you seem to have none.
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    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    We gave no details re abilities. A wee questionnaire from memory to Myhill - brief medical history, age, the kind of thing you gsve to fill out everywhere. 4 We advised glandular fever likely trigger, " ill since" since timespan and We provided typical day's food diary. We were below 40-60% (...
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    Assessing cellular energy dysfunction in CFS/ME using a commercially available laboratory test, 2019, Morten, Newton et al

    We has mitochondrial test done. It's part of a number of tests within the ATP profiles " package" some of which were useful ( v low glutathione, low normal B3, one SODase low , one low normal). The interesting aspect for us was how well the energy score related to ability. It was spot on. I...
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    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    If this is, as multiple reports suggest, a relapsing and remitting condition, then " recovered" genetic info may play an important role.
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    Traumatic Brain Injury, Bile Acids and Blood Brain Barrier

    Bile Acid Metabolism and Signaling https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4422175/ Glucuronidation https://www.sciencedirect.com/topics/neuroscience/glucuronidation
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    UK Genome Wide Association Study (GWAS) project - draft website goes live, feedback sought on recruitment plan, and updates

    Data varies as chip versions have changed over time and so gene content has changed May not have particular Gene's as most are selective ( unless you have a full genome) . OMF do not use 23andme which is probably the widest consumer accessible provider. ( photo posted last year showed gene...
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    Low-dose naltrexone as a treatment for chronic fatigue syndrome, 2020, Bolton, Chapman, Van Marwijk

    I know 2 people who tried it, worked for one - has improved function greatly. Didn't work for other.
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    An Adrenalectomy Mouse Model Reflecting Clinical Features for Chronic Fatigue Syndrome, 2020, Lee et al

    Feeds into the cortisol resistance narrative ? @alex3619
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    UK All Party Parliamentary Group being reactivated - 2020

    Given the dearth of Conservative MPs in Scotland , there's a limit to my lobbying capabilities. I will contact my MP ( SNP) who is sympathetic.
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    Weekly collapses

    Thanks @Marky . It has been a development in the last 5 years, so kind of weird . I think the double tap theory holds good for both, so Gene's will have a role no doubt.
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